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Everything posted by spiny
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;D ;D There is some mighty cool 'gallows' humor here! BB: That must have been most amusing. Glad ya got some help on hand now. 8-) I will remember the 'formal' invite for future reference.
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Fishing is Goooood! 8-) Yeah, O2 doesn't get all of them. Having just popped out of HELL myself after months that I refuse to count now, I got your number on that one. Sorta 15 minutes sleep, O2, O2, O2, Coffee, O2, O2 and nap in the 'Barca' lounger for an hour and you are READY FOR THE DAY! Â And we all look so purty with our 'beauty nap' for the day. Dragon loves 'prone' position, doesn't he? Does his best work there. Bucking Feast as the saying goes. > Catch some fish!!!! Had a big mess of white perch last week. FRIED FOOD. 8-) 8-) Southern soul food. Lots of blood pressure medicine there. Sorry it sucks so bad. :'( :-*
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Yikes!!! Sorry your LOA went so far south kymera. That is beyond creepy.
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:'( Sucky, sucky BB What happened to the Trex????
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kymera, You out there? The Zombies didn't get ya did they???? We can't hold our collective breath much longer here.
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A question fellow clusterheads: sleep and appetite
spiny replied to cludster's topic in General Board
Lack of appetite or anorexia can be a hypo. problem. It also affects or controls sleep/wake cycle. -
Glad you are back and PF! 8-) So, tell us!
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Arde: Of course it does. Superman in his cape, Hello! 8-)
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Seems to be the case for many Linda. I am sorry that you are in a bad spot right now. Until 2011, my longest cycle was about 6 months of getting hit everyday at 8:00 pm with a 2 1/2 hour session. In 2011, I started with the 4 per night saga for over 6 months plus shadows and short daytime hits. But, 2011 was a bruiser for many CHers. Like Jeebs said, don't get too worried. Cycles change apparently, but that doesn't mean they won't still be cycles. I had the same worry for several months myself. I have been basically PF since March 20th, so I am feeling a real 'renewal' this spring. Joining this site and learning how to manage the pain better has been a huge gift.
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Arde, Nope. I am broke. They are legit. Back track and you will find out that they are the ones trying to get us BOL-148 for treating CLUSTER HEADACHES. I contacted them about the time I joined this board. Big concern right now is that the Germans will buy them out and we will have to wait a helluva long time for BOL-148. Sorry more people didn't respond to this. It is news. edit to add: If I am wrong, then I would appreciate someone who knows Entheogen telling me that I am wrong and being dupped. >
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Just observing, but we have fewer new people in severe pain showing up right now. To me, it might be the whole 'cyclical' time of year thingy. Here's PF wishes to all and don't forget the Summer Solstice! Changing of the seasons, changing of our priorities, changing of our free time. Without change, all things die. We change or die. To life! [smiley=happy.gif] [smiley=happy.gif] [smiley=happy.gif]
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Rotundus Maximus Cranial Implosion Extraordinaire?
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Wooligun, Awesome graphics!!!!! Beautiful drawings and color rendition You get an A+++ in my class. 8-) 8-) You really should get an A+ for the graphics. Thank you for showing us the final creation. You did a super job. Perhaps we could use it on the new site????
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1961: Your are getting TOO good with that marquis. [move]Hurray!!![/move] Now, if I could just find a teletype to insert! ;D
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I know. Maybe I am not 'the proper lady' my father tried so desperately to raise. :-[ American Dad: The best was when he took his pistol for a ride in the car and played gitchi, gitchi, goo and pulled the trigger. ;D And, Roger rocks. 8-)
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It has been months since I signed up with them, so I was tickled to get an update and see us noted in the letter. 8-) Imagine, just THREE people there trying to get this off the ground. Just wish I had some VC to invest with them! :'(
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Just received this via email. Dear Friends, Thank you for registering with us as one of over 700 people who are awaiting BOL-148 to treat their cluster headache (and thanks to the migraine people as well). This is our first communication and on behalf of Entheogen I would like to provide some updates and answer some recurring questions. We are still trying to get enough funding for our 9-month ADME/Tox animal safety study, which is required before we can launch our Phase II clinical trial at 10 centers in Germany and Austria. While we have some investors, we cannot proceed until we source all the required funds. It's difficult to ask people suffering these terrible headaches to be patient and wait for clinical approvals, and the regulatory process is often not viewed very favorably, however it is a necessary evil that keeps thousands of dangerous substances from being sold without any scientific evidence that demonstrates safety and efficacy. Between the economy and the Life Science industry, we are trying to raise money during the most challenging time in history. Overall, venture capital and Big Pharma are looking for platform technologies and are moving away from small companies with a single chemical entity, and if there is an interest then there is a preference for late stage clinical assets. This is unfortunate because there are no platforms working on cluster headache or migraine, and while several startup companies have raised large sums from VC, they are all working on abortives and there appears to be no innovation to get excited about. We have been in contact with Big Pharma who has consistently told us to come back to them once we have Phase II results to show. For the time being they are content to sell abortives, where they are heavily invested, and ignore innovation. We did receive a VC offer last September, which has been crawling through a long and tedious due diligence process that has not turned up anything bad regarding our company or our product. While this transaction may close in 3-months, we are also pursuing other options and are in discussions with 4 mid-sized pharma companies regarding a collaboration. We are still talking to new investors and we are confident that we will get our funding this year. Many of you have asked how you can join our clinical trials? When we announce the start of our trial everyone who has registered at our site will be notified. As of now, the upcoming trial will only be in Germany and Austria and there is no additional information available. We have also been frequently asked if we can help with your cluster headache? While we are doing everything we can, unfortunately there is not much we can do for anyone individually. We are a small 3-person company with limited funds and do not have the time and resources to respond to people's personal requests. Our mission is to get BOL-148 approved for human consumption, and this will take an unpredictable length of time. In the meantime, if you are not familiar with www.clusterbusters.com you may want to take a look and see how members of this community have been finding relief. We are eager to get our clinical trials started as quickly as possible, and we know how difficult it is for everyone suffering these sinister headaches. We greatly appreciate your strength and courage, your support and patience, and look forward to eventually ridding the world of cluster headaches together. Sincerely, Ari Mello, CEO www.entheogencorp.com
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Nope. But a hot cup of coffee works for me. I can't stand cold on the nerves, but the heat rising off the top of the woodburner is soothing.
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Cluster Bomb, as in a REAL bomb that covers a lot of territory with one explosion Neurological Shit Storm (what I currently use) Brain Explosion Evil monkey, like Family Guy Hypothalamus IED Biologic Miss-Fire If I had a beer in hand I am sure I could think of some more. 8-) Maybe later!
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A day w/out CHf is like an orange w/out sunshine!
spiny replied to Bejeeber's topic in General Board
OK. Something is NOT right in the world Jeebs, you are correct. Maybe a vacation AFTER storming the halls of Congress? :'( -
Supercalifragilisticexpialidosis Absolutely wonderful news, all around! I am so happy for you and her. Sounds like one all around pain relief for you and her. Must be the Equinox working some magic. You must have fed the faeries GOOD stuff this time!!!! [smiley=2vrolijk_08.gif] [smiley=tekst-toppie.gif]
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The mask is CHEAP and can be bought from sister site Clusterheadaches.com. About 28.00 and they ship immediately! 8-) 8-) Go for it. You will be rocking by the weekend most likely.
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Sounds like the solution has been found. Now, can we move on this? We have some donations pending and should put them to good use. 8-)
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Re: MJ, Drug checkpoint led 2 Alabama Arrest HELP!!!!!
spiny replied to ThatHurtsMyHead's topic in General Board
Around here it is called "Prayer for Judgement". : That means that if you stay clean and out of trouble for a year, it goes away forever. Might be worth checking out. -
Brad, Sounds like a good Dr in your corner! Mine has just gotten to where he listens to me and all because I told him I joined a Cluster Headache Site and was in contact with literally 100's of people with this affliction! 8-) Mind you, that is more sufferers than he will see in his whole career! All the best spiny