spiny

Keep plugging away Mrsg. 8-) I know it is hard and dis-heartening right now, but brighter days are ahead. It is the waiting that really sucks, I know. > All the best to you! This hell is hell, but it can end well and a good life awaits you. Take care of yourself. spiny

Purple, I am sorry that I offended you. :-[ spiny

404 I don't think they get less, but perhaps they get fewer 'random' hits. Mine go by the clock normally. But, when I start to get those 'odd' ones, it is a sure sign the weather is changing and barometric dropping. Rising pressure does not cause a problem. When ucky weather is moving in (gonna rain, etc.) the baro goes down and my CH goes into overdrive. I have been watching this for over a year now when I am active with CH. Front came thru yesterday and I paid for it. Hit at 1:00, 4:30, 8:30, 9:30, and 12:30. Baro is up today and I only had one at 4:30 with shadows all day. I think the shadows are leftovers!! > But, it leaves me in a $h.... place for tonight. Shadows turn when I try to sleep. With any luck it will be a single about 9:30. I can safely go down the mountain, to higher pressure with no problem. Coming back up, I will get hit. Weird. :-?

Purple, That's the Auburn. It shows in the sun and under some lights. At other times, you don't see it unless you spend a lot of time outdoors and then it really gets lighter and redder. Other articles I have read in the past say that redheads have higher pain threshold. How a mutant could cause this I don't know. But the study was based on women during labor and delivery. How is it that you need more anesthetic, so that means you have a lower tolerance for pain? Either you are out or you are not. I do know that every time I have been put out for surgery, I wake up immediately after. I have gotten in trouble in recovery because I was too awake and wanting out of there right away. Go figure.

Bob, That's what I have heard from my Neuro. We have had a mild winter, but killer, almost constant barometric changes. I can almost tell someone when the pressure starts to drop, cause CH kicks in. Time has nothing to do with it. I will get a random hit when that little arrow points 'down' on my weather station. So, if the barometer drops, would that mean that the pressure in your noggin is too high relative to the ambient pressure? Does this set the random's into motion? I do think so, as I will get a random when moving to higher altitudes with lower pressure. Evidently I am not the only one either. Now, if we could just figure out how to lower that head pressure!!!!!

Yepper. Add that congestion to the CH and off to hell we go. > Steam helps me. Try a hot shower if ya like showers. Otherwise, a hot, wet washcloth wrapped around rice in a sock nuked for 2 minutes helps loosen it up. Often wake to find a wet rice pack loose in the bed. The dragon will return tho. Benadryl also seems to help.

bejeeber: 8-) 8-) 8-) 8-) We don't even need a 'sturdy' table! Does anyone else realize that 'SweetWilliam' is a FLOWER??? :

Auburn here. Guess that means I am an episodic redhead! ;D ;D

I have been in my longest cycle. It peaked at Christmas/New Years. While it is better now, it isn't gone. I have never had such aggravation and pain and lost life for so long. This time a year ago, I was fine. Mostly PF for a year. Then, the Dilitazam stopped working. I had de-tox for two weeks before going back to Verap. That started the hell. Sept 15th, I realized I was in full cycle even though back on the Verap. The bitch hasn't left since. But, she has lost a lot of power. :) For that I am extremely grateful.

Thanks. Personally, if I have to put one more scoop of something into one more glass of something, I will puke. : Other Bean Poles here are likely sucking down all the Whey Powder they can as well. Not mention all the vitamins taken everyday...... Hell, I can't even get the office chair to drop down when I pull the dang lever anymore!!!! :-[

Might want to leave out those four letter words we sometimes use. You could draw a terrified face with a finger poking into one eye and lava shooting out the temple of that side! > Or, instead of the finger, show roach clips on the ends of two wires clipped to the eyeball and sparks flying off the clips. Be sure to keep the lava though. Not a 'fixed' CH, but a CH attack. Then show a calm guy drinking a beer, with the hypo fixed (not lit up from the attack) CH fixed! ;D Make em graphic stick figures, except for the head. Put the details there. 8-) Probably not helpful, but fun to describe to you. Sorry

Groupies or gropes? ;D

Alley, I laughed so hard tears ran down my leg! ;D ;D

Hey Alley, Now you are 'officially' an Old Fart too. 8-) 8-) 8-) Keep on Trucking! :D :D Party Hearty!

8-) 8-) 8-) 8-) Definitely, have a marvelous Bday!! And stay around. I like those long and thoughtful posts! Carry on with that 'young at heart' attitude. It works! 8-)

Have the past 12 months been worse or better? I just wondered, because mine has been the worst and I am seeing a lot of new people on here. I'm sure the Nat Geo exposure has done a lot to help, but I am curious to know if there has been an uptick all around or not. Things like: 1 Is your cycle longer? 2 Have you had more cycles? 3 Have you gone from episodic to chronic? 4 Are your hits harder? 5 Are you getting more hits per day? 6 Do you have to bust more frequently now? 7 Have you had to change your busting meds? 8 Are you using more per bust? Add to the list if you can or wish to. spiny curiouser and curiouser

Wooligun, Make your own O2 set-up. Dr's are notoriously stupid. Get a non-rebreather mask, a 25LPM regulator and an O2 tank from a local welding supply company. I use it and it does the trick. Course, my Neuro said O2 was too expensive and to keep taking expensive drugs he prescribed!!!!! > spiny who no longer trusts doc's

FunGuy, That thread says to start with 8-10 RC seeds, I think. Seems like the current rate is 25-30 for starters and up from there if necessary. Am I wrong?

Jeebs, The history of our 'drug laws' points directly to our 'society'. Everything on the 'no,no' list was put there by a special interests group. Get rid of X because the poor or A. American or Hispanics use it and scare us 'good' folks to death!!!!!! : Ever watch 'The History of Drugs'? I think that is the name. William Randolph Hearst got pot on the list so he could sell his new technique for making paper!!!! > Now we can't even make hemp ropes for crying out loud!!! Of course, all of these drugs have made some segment of society 'dangerous' to some other segment. Therefore, they must be banned. Gotta protect all the kids and women folk ya know. No, you didn't violate a 'hot button' in my opinion. I firmly believe the gov should stay out of my business anyway. Protect the kids? Sure. The adults are supposed to be adult, aren't they? spiny who hopes she didn't hit a Hot Button

If the mercury causes CH, I should have gotten them by age 7 or 8. My Aunt had a little bowl of the stuff and let us see how it behaved on several occasions by taking out the bowl, separating the mercury into many drops to watch them re-connect. Good science lesson, bad for humans. Also, I worked as a dental assistant off and on for many years starting at age 15. At that time, amalgam fillings were the norm for all back teeth. I mixed a lot of it. I also had many of them in my mouth from the age of 6. No Fluoride in those days. Now, I am not saying mercury is GOOD for you, I just don't hold with the concept of removing them and putting in a tooth colored restoration just 'because'. Nor do I believe they cause CH. Mine have all been removed due to other procedures. Otherwise, I would have left them in place. I do understand people having them removed for esthetic reasons. We all want out teeth to look whole and healthy. People live, learn, and grow in wisdom (hopefully). We change many things based on 'new knowledge'. This is good. But, I believe our 'new knowledge' must be based in fact. Not an eye catching report that makes the national news. Point in fact. Hormone Replacement Therapy was dis-continued based on a large study of 1,000's of women. The study said it did not improve or protect bone density. It was reported on every main TV station. Most Drs would not renew scripts for it - at all. FIVE YEARS later, the final report showed that 80% of the women withdrew from the multi-year study in the first few months, due to menopause symptoms!!!!!!! That totally invalidated the study. Those findings barely got a mention. And a lot of women went thru HELL, for no reason. > >Â Now, HRT is regularly prescribed again. That comes under the heading of 'false new knowledge'. See what I mean? Proper studies with proper reporting and proper analysis of the results, that should be the 'proper' path. Purple, Yup, it does sound like meditation! So does my method of using O2. I visualize my breathing and control it with concentration. Course, it doesn't work so well if I am already at a high Kip. Â Anything below an 8, I can run with 'in with the good air, out with the bad air'. 'Push it out hard, pull it in deep'. spiny who might already be nuts since this post is sooo long:

We've had silver fillings around for longer than you or I have been alive. No, they don't cause CH. Your dentist is right, they are a fine solution for reconstruction. Actually, they are still among the BEST fillings out there, due to thermal changes (expansion and contraction) in your mouth. Their rate of change most closely matches the change in your teeth. Sinus surgery won't get rid of CH, neither will having some teeth pulled. Lots of us have tried. Having your septum straightened won't fix it either. And no, a chiropractor can't kill them with an 'adjustment' either. It is not your neck, but CH will make your neck hurt like hell. > > You can have sleep apnea with or without CH. Doesn't matter. The same with TMJ. Your neuro should do a MRI and perhaps a MRA to make sure you don't have a physical impingement on the Trigeminal Nerve or an Aneurism (sp?). Your eyes? I've had all that done too, recently. CH will give you Horners Syndrome. Horners does not give you CH. Purple404, Sweating is common, especially on the CH side. Sweat will run down only that one side of my head and face. Just like your sinuses running or your eye dripping. And I am right there with you on the 'don't talk to me' thing. If I focus or try to, it gets worse, rapidly!!! > It seems to connect to the eye movement when trying to listen to someone. The eyes move and my head explodes in short cascades of pain. It seems to me that bringing my vision into focus sets it off. Background, only background. Some people are light sensitive. Most are not. That's my take anyway. And I have spent a helluva lot of money gathering this info too. > > spiny the indomitable!

Positive, healing vibes on the way. May she come thru the surgery with flying colors and the recovery go fast and smooth! I'm with you Tucker. May take time, but ya can't get yesterday back, so start now!!!! 8-)

Absolutely: GOOD LUCK!!!!! :) Keep posting. No cure out there, yet. A decent Neuro is hard to find. Hope you get one of the great ones!!!

Tuckerman48, Just the guy I was suggesting! I'll see about researching the non-profit issue in the next few days. Not an attorney, but I do have some resources. Let's keep plugging to see if it is possible!

Pixie, So glad you are home and your heart is fine. All the rest bites!!!! > If you have to have the nitro your heart, it makes for a tough decision. If anything else will do the trick - scream LOUDLY against it!!!! When you are young, they mistakenly think you are naive or ignorant. Put them in their place on that one. Do you have or have you considered one of those Medical ID bracelets? You might have too many no no's to put on one (I do) but you might consider something like 'Check My Medical Records before ANYTHING'. Glad you are out. Now, get better!