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ThatHurtsMyHead

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Everything posted by ThatHurtsMyHead

  1. ThatHurtsMyHead

    My Face Hurts

    Elrik, I'm unsure if your doc doesn't know what he's doing or he's trying an experiment on you. Indomethacin doesn't work on CH. That's not opinion, just fact. It does work on a similar condition called Hemicrania Continua. Some doctors use a short script to see which condition the patient has. If it works you don't have CH. If it doesn't work, then likely it is CH. https://en.wikipedia.org/wiki/Hemicrania_continua If he says you definitely have CH and prescribed Indomethacin then he's not done his research. J
  2. ThatHurtsMyHead

    My Face Hurts

    The company that just took over for VA outpatient oxygen here is similar. They won't do anything unless it's on a script from the VA. It's cheap and easy to buy your own non rebreather masks off amazon. I think someone posted a link recently that they were about $6 each for a basic mask. Also, make sure you do as Jon above recommended. Tape over or install one way disks (if you can) over the open holes on the mask. J
  3. ThatHurtsMyHead

    Amitriptyline... Anyone heard of it?

    BOF, My oxygen co, prefers E tanks because they're easy to transport, both in the truck and around your house. I keep a rack of 10 in my front hall closet. Then transfer 2 at a time to my "CH Chair". Then I put the empties in a rack on the front porch for the O2 guy to swap out whenever he comes around. You can easily carry an E tank, but the M and M60, not so easily. J
  4. ThatHurtsMyHead

    Amitriptyline... Anyone heard of it?

    Oh, about forgot the VA gave me Amitriptyline some time back as a last resort sorta med. I read the side effects list and decided not to take it. A friend of mine is a nurse and his hospital uses an off brand of the exact same stuff called Elavil. The nurses nicknamed it Evil.... Because most people that take it, become manic when they give it to them... J
  5. ThatHurtsMyHead

    Amitriptyline... Anyone heard of it?

    I need to meet FunTimes one of these days. His process of getting extra O2 tanks is exactly what I've done. Often the drivers have no accountability for what they have on the truck, and don't report what they pickup or drop off other than what's on the drop off sheet. When they come to drop the 2 tanks. Say you really need another to get through to the next drop off. I've had guys pushing me to take 2 or 3 extra tanks before. The company just wants to get paid from the insurance co., and have to spend as little in gas exchanging tanks as possible. If you call every two days for refills, I'd bet they'll start leaving extra tanks. J
  6. ThatHurtsMyHead

    Women with CH

    Cheryl, I'm not opposed to it, but it doesn't seem like something that would help. Everything from treatment, to symptoms etc, etc are exactly the same regardless of gender. It's educating the doctors that's the real issue. J
  7. ThatHurtsMyHead

    Natural treatments for cluster headaches

    I might try to look for that option in the software and see if I can default it to a link. J
  8. ThatHurtsMyHead

    Natural treatments for cluster headaches

    Quite funny.... Here's a repost of the link for a regular browser. https://www.youtube.com/watch?v=FblD-PAEzNI&feature=youtu.be J
  9. ThatHurtsMyHead

    Natural treatments for cluster headaches

    Yep, embedded remote HTML is disabled by default in the message board software. It reduces the likelihood of viruses. When you post HTML there will be a message that pops up below it to embed as a link instead. That should work fine. J
  10. ThatHurtsMyHead

    Pounding Head, Broken Heart

    MG, Sending you some good vibes from across the pond. J
  11. ThatHurtsMyHead

    My Face Hurts

    Elrik138, Does your mast have a bag on it below where the oxygen tube comes in? Please post a picture and we'll make sure you're using the right stuff. Also, on the regulator that's a pretty standard 15 LPM regulator. You can buy a 25 LPM off amazon for pretty cheap. PFW, J
  12. ThatHurtsMyHead

    Oxygen concentrators?

    CHMom, I Second CHFathers post. I believe all home concentrators max out at 8 liters per minute (which is pretty useless for most of us). For most people 15 LPM is the minimum to abort and 25 works best. The only way to get high flow is to use O2 tanks. I find using 25 LPM for the first 10 mins or so till the ramp up in pain sorta levels off. Then I cut it down to 15 LPM till the pain stops. Then I drop it to 10 LPM and breathe normally for 5 to 10 minutes post attack. The extra time at the end of the attack reduces the likelihood that I get another attack back to back. PFW, J
  13. ThatHurtsMyHead

    Newbie with 02, increase in attacks, any advice/help?

    Another warning.. I would strongly recommend NOT using poly tubing with the 50 psi regulator port. It might not explode right away, but I'll BET it will eventually. Polly tubing is not rated for 50 psi. J
  14. ThatHurtsMyHead

    Newbie with 02, increase in attacks, any advice/help?

    This PDF is pretty self explanatory of the dangers... DON'T_MIX_OXYGEN_AND_OIL.pdf
  15. ThatHurtsMyHead

    Newbie with 02, increase in attacks, any advice/help?

    ***Warning*** ok, trying to make sure someone doesn't kill themselves here. Oxygen under pressure in the presence of hydrocarbons WILL EXPLODE. That is a simple fact of chemistry. I appreciate dlnmerced's opinion and advice, but do NOT use SCUBA regulators or equipment with 100% O2 unless they are O2 certified by the manufacturer AND O2 clean by a SCUBA shop. There are reasons some doctors are reluctant to prescribe Oxygen. Oxygen and hydrocarbons under pressure will explode. It's great dlnmerced has been lucky to date, but having a regulator explode in your face is not something anyone wants. If you follow his advice, make sure your regulator and hoses are properly certified for 100% O2. Any questions, feel free to speak to your Oxygen supplier or SCUBA shop will voice the same warning. J
  16. ThatHurtsMyHead

    Long-term consumption

    Freud's post is spot on. If I recall correctly mm's toxicity is lower than eating bbq pork. ha ha... I myself have taken regular doses of lsa, mm and another hallucinogen for nearly 10 years and have zero health or other negative effects. To the contrary, I find I get a mood lift that lasts for months after my regular doses. J
  17. ThatHurtsMyHead

    Newbie with 02, increase in attacks, any advice/help?

    Word of caution. If you're going to try to use a SCUBA 2nd stage regulator. First make sure it's rated for 100% O2 by the manufacturer. Most are not and are manufactured with rubber O rings and pressure valves that are not O2 compatible. They are also mostly lubricated with hydrocarbons that can spontaneously combust if exposed to 100% O2. Once you verify that a manufacturer's regulator is O2 ready you should make sure it's O2 "Clean". Most any SCUBA shop can O2 clean a regulator for you for a few bucks. I normally dive mixed gases and O2 clean gear is a must to prevent your gear from catching fire or malfunctioning. Hydrocarbons can spontaneously combust in pressurized pure oxygen. I don't mean to scare anyone, but using pressurized O2 should only be done with O2 certified and cleaned equipment. J
  18. ThatHurtsMyHead

    I'm so excited I have to tell someone

    Ok, I'm so excited I have to tell someone about this.... A company spammed the message board yesterday. I sorta got ticked off as It wasn't your regular viagra, trojan virus etc type of garbage. This looked like a legitimate company embarking on a very deceitful tactic of spamming message boards. Sooooooo.. I decided to play with them.. They had (yea had, as in past tense) an interactive help desk chat on their website. I got on their chat (a LOT of times) and just harassed them with garbage, and telling them to stop spamming message boards, but was a general pain in the A$$ off and on for a few hours.. I also started spamming their online email with requests to... Yep you guessed it, to stop spamming message boards... I was considering writing a macro that would spam them night and day (just to give them a taste of their own medicine. This morning I thought I'd go out and ping them another message... Guess what.. They have their email and web chat turned off now.. ha ha..... They might have blocked my IP, but I sorta doubt it, as their website is NOT very secure, says they don't know much about web stuff. These are the guys if you're interested: https://www.fieldengineer.com/contact-us-form Funny, that I feel so good about giving them some of their own medicine back... J
  19. ThatHurtsMyHead

    Energy shots question

    I get RockStar from the local dollar store (dollar tree). Buy them by the case. J
  20. ThatHurtsMyHead

    Energy shots question

    I average 2 energy drinks a night when getting the night attacks. yea, all the sugar makes me feel cr@ppy. J
  21. ThatHurtsMyHead

    Persistent shadows after cycle

    BrainOnFire, A shadow is usually what we call a very small hit, or often it's just a bad feeling. It could be your head doesn't feel right, you feel off almost like you're having a CH attack, but there's no pain. There's lots of ways people describe it, but it's basically any bad feeling we have related to (or caused by) our CH short of a full blown attack. J
  22. ThatHurtsMyHead

    Persistent shadows after cycle

    Rodgjf, Sadly we can get shadows at about anytime. I can get them between cycles, after a cycle or more commonly a few weeks up to two months before a cycle starts. I'd keep at the ready just incase a cycle might flare back up. J
  23. ThatHurtsMyHead

    Side Effects D3

    Madam, I'd postulate that if you can get off the opiates long enough to detox, then the MM might (might) help you stay off the opiates. Just a thought. J
  24. ThatHurtsMyHead

    Side Effects D3

    Madam, I'm not sure what interaction there is between Tramadol and mm, but... MM is 100% non addictive. Actually it's just the opposite. There were several studies in the 60's before mm was scheduled here in the US on their use as an addiction reversal. Studies for smoking, alcohol, heroin and other addictions were done and from what I've read they were all massively successful in helping people kick addictive substances. I notice quite profoundly that after I dose with mm, I have no desire to drink for quite some time. MM has zero physical addictive qualities as the experience isn't a high like opiates etc. If you're sober, I definitely can appreciate and am glad for your sobriety. On the other hand mm has the possibility of helping you in not just one, but two ways. Funny, I just did a Google Scholar search. Over 4,800 articles came up in reference to using psilocybin to treat alcohol addiction. https://scholar.google.com/scholar?q=psilocybin+and+alcoholism+treatment&hl=en&as_sdt=0&as_vis=1&oi=scholart PFW, J
  25. ThatHurtsMyHead

    Newbie looking for any advice on obtaining O2

    Oh funny.. Ignore my links below. The Amazon link FunTimes posted above is by far much much better! J Ebay is also a great place to get regulators. At a minimum I'd get a 15 liter per minute, or the best regulators will go up to 25 lpm. It's very likely the oxygen company will only stock 8 lpm regulators (I've had this issue with every O2 company I've dealt with over the years). For the most part 8 lpm doesn't do anything for our CH. Buying your own is cheap and you'll never be without it! 25 liter per minute - https://www.ebay.com/itm/medical-oxygen-regulator/323535378941?hash=item4b543619fd:g:Kb4AAOSwRxJb4H1E:rk:22:pf:0 15 lpm - https://www.ebay.com/itm/NEW-Drive-Medical-Oxygen-Tank-Regulator-Model-18301GM-0-15-LPM-Barb-Outlet/352326271208?epid=2254403594&hash=item52084840e8:g:UvoAAOSwCZ5VfLl3:rk:9:pf:0 Cheers, J
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