Brad

Yeah, That's right (doin the cabbage patch), I gots my tank and I goes to 15 lpm and the Imitrex injections. Haven't had a headache in two days but I'm ready now. "BRING IT ON", I say.

I was thinking about the Melatonin and Benedryl, Ting. Is it ok to use them w/ the d3 regimin?

in reply to a post that i saw earlier but can't find. i think having a cold suppresses the attacks. i seem to have been experiencing that for about 2 days now. hmmmmmmm.....

Well, my doc ordered the tank and the imitrex injections and I wasn't taking "No" for an answer. So now I'm just waiting to see if my Ins will cover them. Fingers crossed. On my way to health store to get D3 regimen. Things are looking up.

Actually, Zolmig was the greatest triptan that I hadever used. I requested it again but my previous insurance denied it. It raised my blood pressure a little but aborted nearly every attack that I threw it at it just 15 minutes. As soon as you start to feel the drip in your throat. the headache subsides. but everybody's body chemistry is different so what works for one may not for the other. This site is great though because it supplies numerous approaches and testimonials for individual cases. Welcome and good luck.

That's Gnarly! I am going to Vegas next May or June to a personal training boot camp through my school. I have never been. Hopefully they are around the same time, either way, I see there are several different types, times, and other places with these conventions. It would be very nice to meet and greet some fellow "clusterheads" [i like that term]. What excactly does KIP stand for (mean)?

Awesome! Im totally there. I live in Springfield (2 hrs away)!

That's an amazing encounter! Are these conventions usually is Chicago? I only live 4 hours from there in Springfield.

I have a book that my wife bought me from a library book sale called Prescription For Nutritional Healing 3rd edition. It has some interesting recommendations. I forgot all about this book! Guarana, L-tyrosine, DL-phenylalanine, ginko biloba extract, L-glutamine nd quercetin all seem to be useful ammo for against CH.

Its funny you mentioned it. I actually tried that the other day and it worked but I have been reducing my coffee intake for the last several months and I'm not acclimated to that high dose so I made my chest a little uncomfortable but I'll take that over an attack any day. They are a little expensive and funds are short right now but on payday I plan to pick up a case. Good Call!!! I will request the shots fro doc and DEFINTELY O2. Have to wait till thursday till appt, though. Im a strong guy who is not afraid of anybody but when my kids see me like this I might as well be pansy. My 4 year old kissed me on the head today during my attack. I have awesome kids!

I swear they feel like they are getting worse each cycle. Sometimes I feel like some of these imitrex pills are just placebo because One CH can sometimes bust right through as if I didn't take anything. Even if it did, my CH is kicked in and at full force in less than 3 to 5 minutes from that first initial little "ting" behind the eye. I almost broke my hand from punching the wall during my last bout. I almost want to take chemistry myself so I can produce BOL and give it out for free. It would be the right thing to do.

I know my doc is going to try to push the carbamazepine again because he was convinced that it worked last cycle even though I told him I was already towards the end anyway. I mentioned o2 before and here steered me away. I dont have a PhD, but I sometimes question his experience or true agenda. I'm thinking of changing. If he tries to deny o2 again then I will request a new doc.

Thank you CHFather. You are very wise and understanding am I fully respect yours and everyone here's advice. I guess I am on the ultimate question of "Why me (us)?" Such a small percentage on this big ass rock that we live on. I'm glad to hear that it is not highly hereditary (minus a few small cases) so my daughters may not get it but I'll be damned if I go on much longer, w/my sanity intact. I lost my voice again because on the late nights attacks accompanied with the loud hollering and yelling that I do to keep me from bashing my head against the brick wall (in the basement away from sleeping family. I know I am ranting but it feels good to get it out. Thx!

Thanks. Im calling my Dr today to sched an appt. Just wann get my facts straight plus I print the necessary O2 info. Im in th U.S., would he be able to prescribe ketamine because I heard it works like busting, as well. I look back at my younger partying days and can say that I was in an unusually, long stretch (about 3 years) with no pain. I am a dad now and quit all of that a long time ago. But now, I am starting to understand why. Because of what I was taking was unknowingly keeping pain free and I was just having a little fun.

LOl. Yeah, FunGuy, right after I posted that I Googled the subject and it took me to the same page that you did. There was some good info on there, definitely. I'm sorry, I'm a little sleep deprived due to the now expected 2 a.m. CH visits shooting me out of a dead sleep. Imitrex pills take to long. Could I dissolve them in water to speed up absorption, just till I can see my doc?

ummm......Anybody?

I know carbamazapine is typically for facial pain but it is a little complicated with several extra visits for blood tests and I think it was actually triggering a few attacks in the beginning. If anyone has any info before I see my doc that would be awesome. Thx.

It is almost like it has a consciousness of it's own. Very twisted stuff. Every time I SAY ANYTHING of feeling good or how long it's been, its like somebody is just pressing a button to prove me wrong. It's our own personal HELL! Is it actually linked to testosterone deficiency because I am sometimes told may have too much (Ive been an ass a time or two [chuckle]), or is it more gene related?

Wow! I can and can't believe it. Only about 2 hours after I wrote in my last thread that I had no pain for 4 days one came in and it came in fast and STRONG! I noticed your kip scale and I rated it about a 12. Then last night I had another one just as intense for about and hour. I had about 4 headaches at about 6 and 7 at the start of this cycle which is normal for me. But the 4 day stretch was not. I really like the options on this site but I do choose to take a more legal route, respectively. I am a student raising 3 of 4 daughters on just my wife's modest income. We have decent insurance and i have a script of imitrex tabs 25 by default from our previous insurance thats was not as good for they would not allow the Zolmig nasal sprays (which worked great for me). I am going to set up another appt with my primary and request for them again and o2. Does anyone have legit info on carbamazapine? We started it late in my last cycle so I am unsure if my cycle was over anyway, or if it was the med. My neighbor hasnt got back with me yet on the o2, so ill just ask my doc. Desperation sucks and I am wasting so much useful energy on this curse. What does any eight year old do to deserve this torture (as I always thought as a kid). I am anxiously awaiting the BOL release. Thank you for your concerns. Its nice to have somebody listen without deaf ears because they have no idea. You are all ROCKSTARS, in my book!!!

Wow! I hope your ok. I haven't had that in class yet but from what I just researched its seems pretty serious. You have some intense recovery to go through, huh? Mind over matter and you'll be fine.

Thank you! Weirdest thing. Contrary to my typical cycle, I have gone now, 4 days w/no headache. I usually don't like to say anything because I seem to jinx it or it just simply proves me wrong. So now after writing this I may get one, but im not complaining. I wonder if the sense of hope and lessoned anxiety of not understanding my condition may have something to do with it. I am always gratefu for pain-free dayzz!!!

I'm 9 months into school and I graduate next July. Then I will transfer to the local university here and work on my doctorate in physical therapy. About 5 years of school, total. I have painted house for 18 years and I am sick of it. I also figure if i work in a wellness and health field then I would be that much closer to finding a solution to our collective condition. CH!!!!! I am a VERY ambitious person and a life of agony is my initial drive as well as my family's well-being.

I have the chinese character for strength on my arm. It has several meanings to me and a tribal just below it. My life was a mess when I got it and it has helped me cope with all of the secret and not so secret pains in my life. I didnt realize the balance aspect and maybe should consider another meaningful tattoo on my other side. I always said that I only wanted one more. Thanks Ting. P.S. Coming from a personal training student, nice job on taking care of yourself; mind, body and soul....KUDOS!!!

Aaarrgg!! Just finished off a two hour attack. It was about an 7. Took 2 25 mg (Puny doses) imitrex with no help, finally took a third after 2nd hr which worked. Had to blow off a Halloween party for this crap. So annoyed!

Well put. Either way, it is a good feeling to know their is light at the end of the tunnel after all! I am an out going guy but this has made me feel secluded and alienate through out the majority of my life. I am a firm believer of positive thinking and the laws of attraction and I can strongly feel it at play. But that's just me. Thank you!