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ClusterBusters

Rush

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Everything posted by Rush

  1. Rush

    IMPORTANT CMS O2 SURVEY!!

    I do have question about this letter, do you put your name or any other info on it? or just the text only.
  2. Rush

    D3 Experience

    I go this advice from Batch last year when I started getting shadows.. (everyone is different) but it worked for me.. knocked my shadows right out.
  3. Rush

    IMPORTANT CMS O2 SURVEY!!

    Thanks for the input Batch, I am writing it at this moment and logged on to see if I could get any pointers.
  4. Rush

    Prescription Frustrations - long rant

    HOT DAMN!!!... Boy I am glad to hear somebody is able to hit the lottery :).... I used to have a monster tank that was setup in my house like that (oddly enough 15 years ago I didn't have a problem getting it), then my Insurance AND doctor changed because of my employer, then I hit a brick wall. Hallelujah!
  5. Rush

    Prescription Frustrations - long rant

    The fact that your Doctor "gets it" is definitely a plus.. I have brought in literature and such, and mine has next to no clue what a CH REALLY is.. the only place I had luck with several years ago, was a "sleep deprivation" (spelling?) institute that took my Rx with no problems at all, they went out of business and I have had no luck trying to get the medical o2... thats when I went through these message boards to look into the welding setup which a lot of people use. GOOD LUCK !!!
  6. Rush

    Prescription Frustrations - long rant

    I went to the Orlando Medical Rentals website, and it looked familiar, but that's all I can remember from 2+ years ago when I had the Rx.. I got so frustrated after a couple months that I gave up to go with the welding setup.. My wife is so irritated that I did not follow through when I decided to go with the welding tank, because my cycle ended and have been pain free for 2+ years. The 125 tank sounds good, I found a place about an hour from here that didn't seem overly interested in what I needed it for so I am going to go that route. Still only having shadows for now, but my last cycle was hitting me HARD 2-4 times every night so I was curious about the tank size. Kinda strange, I have been getting these since my early twenties (I am 61 now).. and they mostly were all during the day, but last 2 cycles were 95% during the night.. odd The neurologist I saw to get the Rx I only saw once, or I would give it one last shot with the Place you found.. to scared to wait now :\ Thanks for info Chris!!
  7. Rush

    Prescription Frustrations - long rant

    Good luck !! I have given up trying, I had an Rx from my doctor, but could not get anyone in Orlando to fill it.. It would be nice if we could pass a few of our CH's on to these people so they would understand in a BIG WAY
  8. Rush

    Prescription Frustrations - long rant

    I have had no CH cycle since I started the vitamin regimen, been about 2 years :).. now out of the blue I have been getting shadows the last couple of nights and am HELL BENT on getting my welding setup.. 2 years ago I spent countless hours trying to get medical oxygen and it is enough to frustrate ANYBODY! I was looking at the 125 tank, has that worked good for you Chris?.. I am also going to order the non re breather mask, and have to look into the best regulator to use. I don't care about having to haul a heavy tank, I would rather have enough to last longer when I have a bout.. thanks
  9. Rush

    Craziest Place ever had an attack

    Well I know I remember my first one... riding down the road standing in the bed of a roofing truck in 1979, it was not an odd place but boy do I remember it..
  10. Rush

    Stay on D3 regiment?

    I actually started magnesium quite some time ago (pharmacist told me about it)... and it did help.. but either the Calcium or the D3 combined with the magnesium worked much better than the magnesium by itself (I have a feeling it might be the calcium).. RLS can be REALLY annoying, but kinda petty when compared to CH's
  11. Rush

    Question for Melatonin Users

    Just the part about "less" O2 is a major plus in itself (especially after seeing your calculations on the 125cf tank)
  12. Rush

    Question for Melatonin Users

    Yes sir, some of his posts (Batch) I can't even understand .. smart cookie.. I will definitely read that info. I have done it wrong, so I want to try doing it right for a change.
  13. Rush

    Question for Melatonin Users

    I like that idea, I could strap it right to the hand truck.. very good idea.. Once I get this first setup right, I will add a 60 to it.. Thanks guys, I only had a regular mask with holes in it last year.. gonna do it right this time, will take a look at the CH mask. Take Care!!!!
  14. Rush

    Question for Melatonin Users

    WOW... I thought it be a little better than that... the tank I rented last year (now out of business) was at least 4 ft high (or more) but I don't recall the cf of it.. mesquit thickets damn, all up hill I am sure yes, I know the rules about the welding tanks (read enough here to pick that up), I did boiler work for alot of years, so hopefully I got enough knowledge to squeeze by. I am 58 years old, but I will gladly drag it through any thickets.. I have had cycles with and without O2, I don't care how heavy it is lol
  15. Rush

    Stay on D3 regiment?

    When I started the D3/Mag/Calcium last year, my restless leg syndrome has all but vanished while I have been off cycle... I am convinced the D3 regime is what has helped it.. Nothing worse than 3 CH's a night with restless leg syndrome it between arghhhh..
  16. Rush

    Question for Melatonin Users

    MIND READER!!!.. I was just researching regulators and masks, I have a regulator but it is old and leaks when I adjust the flow knob. I never got a re breather mask like everyone said to use, so I am going to get one for this setup. Even got the place picked for the tank, but it's about 60 miles away so I am going to have to pick a day to run over there. I hope the 125 cf tank I am looking at is big enough.. Thank you sir!!
  17. Rush

    Question for Melatonin Users

    I went through it for months last year.. saw the neurologist and got an Rx, but spent forever trying to fill it to no avail, small tanks are not a problem, but won't cut it for CH.. I really did want to stay with the med O2, but they just make it impossible. Thanks guys!
  18. Rush

    Question for Melatonin Users

    I will give it a try.. lord knows it can't hurt... I never understood why don't get their blood work the same as the Dr. :|
  19. Rush

    Question for Melatonin Users

    My cardiologist did a bunch of blood work, which I noticed included D3, but unfortunately I never saw the numbers.. I imagine it would be smart to get those numbers so I know where I stand... I am spending so much time trying to find oxygen here in Florida it's enough to make you crazy... got Rx for med o2 last year, but NOBODY would fill the darn thing, so now I am going to resort to a welding tank, tired of fighting with these people. Thanks for the info kind sir, I will see if I can get the D3 numbers, good advice.
  20. Rush

    Question for Melatonin Users

    As in preventing CH in part or whole.. As opposed to taking it just because your Melatonin is low because your in cycle, but you just cleared that up. I guess I am just hoping it may help with my fall cycle, I have been doing the D3 regimen since fall of last year, it would be nice if the Melatonin added benefit in addition to the D3. You more than anyone know how we grasp at straws
  21. Rush

    Question for Melatonin Users

    Sleep through an attack !?!??!?!?! Surely you jest :(... It does help me sleep when off cycle, that's the only reason I started taking it.. I get cycles in the fall or spring usually about two months long... It doesn't sound like it helps anyone in a preventative way for CH though ?
  22. Rush

    Question for Melatonin Users

    Odd, I take 10mg of Melatonin every night, I have never noticed being groggy from it.. this is also the first time I read about it in relation to CH, I started taking it about 8 months ago to help me sleep. My cycles always hit around October, any chance the Melatonin will help at all ??
  23. Hi all, I have been a regular "spectator" on this site for some time, but just recently joined. I am 58 years old, and have been getting CH's since my early twenties. I am nearing the end of my fall cycle, but can not locate a supplier for oxygen. I live in Orlando FL. I used to get it from a sleep disorder company who has gone out of business. I spent the last two days on the phone and google and it seems the large tanks that I used to get are next to impossible to find. I see my neurologist this Friday, but it is looking like a prescription for o2 will be useless. If there is anyone on here that lives in central Florida I would be REALLY appreciate any info on a supplier. At this point I am going to have to look into the welding o2 (wife has not been keen on the idea)... I did recently start Batch's <(spelling) Mag/cal/d3 regimen on Nov 26 so I am hoping It will help for next bout. This site has helped me get through some tough times, it's how I first found out about the oxygen some years back, and just reading about others helps you mentally, because it seems like NOBODY has a clue about what cluster heads go through. So if anyone does have info on o2 in Orlando area PLEASE drop me a line. PF wishes to all!!!!
  24. Rush

    Newbie can't find medical o2 supplier

    Ahhh good info, going to send these to her now.. I got to admit that I have been hesitant in the past myself, but with no better understanding than this world has with CH's they don't give you much choice... Thanks very much for the ammo/info
  25. Rush

    Newbie can't find medical o2 supplier

    I just book marked the Visiting Nurse Association of Florida, I had no knowledge of these and will look into it this afternoon, Lord knows it can't hurt :/ Thanks!!
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