FunTimes

I think we all just learn to deal with it and take it as it comes. Not like we can really do much to avoid a hit, they come when they want to and hit as hard as they want to. Some have had success with busting other not so much. Sometimes it brings the pain down, makes it go away for a period of time or does nothing at all. No rhyme or reason that we know of. Just when you think you have it tamed things change and we blame it on the weather, moon or life event. I truly believe that we were all just picked to have clusters because we can deal with it like no others can. We are all the lucky ones that can honestly say they have a high threshold for pain and back it up by the countless hours we spend every week, month or year banging out head into our hands, walls floors or anything else that looks fun to take your mind off the devil inside you trying to escape. It is what it is but we are all lucky to have this site to get it out in the open with others that understand it. Just do your best and keep moving forward in hopes that someday we will have a cure for this infliction.

I feel I am lucky to have an employer that understands what I deal with. Maybe not 100% but they let me come and go as needed, keep oxygen tank in my office and work from home when needed. I am 100 % honest with them and they work with me. When shit hits the fan and I am in a bad cluster bout I work less, when things are good and I can I will make up he time I cut out when I could not make it a full day. I am chronic and get hit every day but the timing is still predictable but changes from day to night on occasion. I take the D3 regimen, oxygen, 5hr drinks and bust. Tweaking everything to find the best method for me. It still sucks and I still go into that dark place from time to time but it always works out in the end. If I did not have a understanding employer I do not know what I would do. Maybe you could employ someone to work for you so you can be more "hands off" when things flare up? Adjust your schedule around your clusters and let people know what you are dealing with. It could be a good way to spread awareness? Try to think of ways to make this shit condition work in your favor?

I use empty prescription bottles I have. I fill up as many days as I need to take with me and have kept them in my carryon bag and/or checked baggage. I have yet to be asked any questions. I only have flown in the US but have taken cruises wit no issues either.

I have also put regulators on my go to list when people ask me what I want for birthday/Christmas or anything else. Also mix in a mask once a year. I keep "extra" in the car home and work.

The last regulators I purchased a few years ago were here: https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator-CGA-540 I have no complaints. I did have one fail in the past and they did replace it for me.

I will sometimes have leg cramps but I think the cause is to much caffeine. What helps me is Bananas (potassium) drinking lots of water and stretching on the floor (fake yoga). Not sure if this will help you with the pred cramps but it does help me.

Not sure about TRT but I have read here that people had bad experiences with Cialis and Viagra type medications.

Try this link https://www.clusterheadaches.com/wwwboard2/index.html Looks to be up

No change in my clusters so far this week at all due to earth wind or fire. See you on the dark side of the moon!

I gave it a go a few years back. The first month it seemed to help by the 3rd month things were back to normal with my clusters. I have heard both good and neutral results about it, we are all a little different. If you can get it for a reasonable price I would say to give it a try. I was taking 3x's the migraine dose, I think it was like 100mg? 3 shots once a month. Make sure they are room temp when you use them or it will hurt.

I fish as much as I can, At the ocean and inland at local streams and lakes. I have not found any connection with fishing and clusters.

Sorry.. I did correct that to say NOT block. Sometimes my brain and hands are not on the same page.

@ChrisZ, The CBD oils will NOT block any busting that I am aware of.

Who is planning on attending this year?

Sorry to hear this but you should do a little more investigating. What things do you notice about your headaches? Same time every day? Same location? Anything trigger them like smells, foods or drink? Alcohol is a big trigger for most, can you drink a beer and not have your headache set in? What are you currently doing that successfully relives the pain your having? What type of doctor told you this and have you had a second opinion? If you do have Clusters the D3 and Oxygen are a great start to battling this and I would get on both as soon as you can! Poke around the site and ask as many questions as you have. Use the search bar at the top of the screen and if yo can think of it someone here has probably tried it and talked about it. We are a good group of head bangers here and willing to help out, as a group or in some cases one on one, anyone who is trying to help themselves