FunTimes

Sorry.. I did correct that to say NOT block. Sometimes my brain and hands are not on the same page.

@ChrisZ, The CBD oils will NOT block any busting that I am aware of.

Who is planning on attending this year?

Sorry to hear this but you should do a little more investigating. What things do you notice about your headaches? Same time every day? Same location? Anything trigger them like smells, foods or drink? Alcohol is a big trigger for most, can you drink a beer and not have your headache set in? What are you currently doing that successfully relives the pain your having? What type of doctor told you this and have you had a second opinion? If you do have Clusters the D3 and Oxygen are a great start to battling this and I would get on both as soon as you can! Poke around the site and ask as many questions as you have. Use the search bar at the top of the screen and if yo can think of it someone here has probably tried it and talked about it. We are a good group of head bangers here and willing to help out, as a group or in some cases one on one, anyone who is trying to help themselves

Here are links for regulators I have gotten, You can find them for a better price on amazon or used on ebay sometimes also Larger M60 and M tanks use the CGA540 Oxygen Standard Body Click Regulator CGA 540 From WT Farley Smaller E tanks use https://www.wtfarley.com/Oxygen-Standard-Body-Click-Regulator

Not sure what a "Normal" life is anymore. My new normal is to deal with things one day at a time and adjust. I know I am going to get beat down with a massive cluster at any time of any day so I am always ready to fight back with whatever I can. I keep oxygen in the car at all times, I have it in my office at work keep a triptan injection near by as much as I can and a 5hr energy drink in my pocket. I can no longer drink alcohol so my new norm in a social aspect is water and coffee. I am not shy or hiding my clusters so when someone who does not know what I deal with and comments about not drinking or avoiding some sort of smell I tell them how it is. I can no longer burn a candle, my wife can no longer ware perfumes and depending on how my clusters are on any given day I need to avoid other scented things like cooking dinner. This is my normal life, not great but it is what I have so I embrace it and know things could always be worse. The new normal and I still love it.

I would thing a business card type note or description as to what you ware going through and how others can best help would work best. Others here on the site have talked about this type thing in the past. I thought about putting a sign in my car for when I am huffing oxygen to keep the concerned citizen from knocking on the windows trying to help. You can not blame people and feel thankful that strangers that are willing to help others still exist in this world.

In the winter time I sometimes can trigger myself breathing cold air in through my nose. Makes no sense because in the summer breathing in cold also helps abort a cluster.. AHHH, the life of a clusterhead! Stuffy and or runny nose is also a common side effect of an attack

Best of luck to you and hope that fixes the problem. If not we will still be hanging out here at the head bangin party for ya. Save your cup, we have free refills!

This is so common, I had a maxillofacial surgeon tell me I had clusters after a root canal did nothing to help me. You never know what type of doc your gonna get until you meet them for the first time. My doc not only knows clusters but also looks at and supports this site. You may luck out and get a clear diagnoses and find out its not clusters (that would be ideal) or you may end up having clusters(not so much fun) but at least you will know what path you will need to take. Your above description sounds like clusters to me for sure, you also seem to have a somewhat upbeat attitude about this knowing the type of pain your having. Keep your head up and just take it one step at a time and we are all here to help answer any questions you may have.

Ask here and ask at your appointment. I bet you we will have a better explained answer than the doctor.

I have to fight with my oxygen company often as well. I keep calling and make my way up from call center to local manager and now I have the reginal managers number and we are on a first name basis.. Don't give up and call until you get what you need. I don't know your situation but I found that paying out of pocket in cheaper for me and also better for the oxygen company because they do not have to deal with the insurance approvals and things like that. I just pay my bill on time and that keeps them happy. Tank supplies at my distribution center get depleted and I have issues getting the M size tanks but getting to know the delivery driver and being kind to him went a long way with me building up a nice stash of "extra" tanks. A cold bottle of water, fresh veggies from the garden or a few bucks goes a long way with the delivery person! Find a way to get someone on the phone that is willing to listen to you and work to get you the tanks you need. as long as they are getting paid for each tank what do they care how many you are using. The supermarket doesn't tell you you can not but 10 gallons of milk a week do they? They just want to sell it and make the profit! Dont take no for an answer and move up the chain of command until you get it. I am not in your area so I do not have a suggestion for what company would be better for you sorry.

You should find what you need on this site. https://vitamindwiki.com/Cluster+Headaches+treated+by+high-dose+Vitamin+D%2C+etc.+(interview+and+transcript)+-+Feb+2022

I also get pain in the upper jaw below my eye like a tooth is being torn out. It will move around from my ear to upper and lower eye. Welcome to the club.. Read up and ask as many questions as you can think of, We are all here to help each other and no matter what your feeling someone here has most likly dealt with it and may have a trick for you to make it just a little better.

I did a clinical trial for this a few years ago with no major improvements. But that is not to say it will not work for you. If I remember correctly I was in the office for about an hour or two each time with the infusion lasting maybe 40 minutes?