Tony Only Posted March 17, 2023 Share Posted March 17, 2023 (edited) I had no clue this was going on ! From Instagram: (More info: https://ki.se/en/research/centre-for-cluster-headache ) Edited March 17, 2023 by Tony Only 3 Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted March 17, 2023 Share Posted March 17, 2023 News to me as well. 3 Quote Link to comment Share on other sites More sharing options...
CHfather Posted March 17, 2023 Share Posted March 17, 2023 Sounds very good: https://ki.se/en/research/centre-for-cluster-headache "The Centre for Cluster Headache includes all research at Karolinska Institutet regarding cluster headaches and offers a well-integrated collaboration between research and clinical operations. The main goal of our research is to understand the molecular and genetic mechanisms behind cluster headache, as well as to identify new targets for diagnosis and treatment." 2 Quote Link to comment Share on other sites More sharing options...
BoscoPiko Posted March 18, 2023 Share Posted March 18, 2023 This is uplifting! I can't help but to become so tired of the "we don't know, how or why" often mentioned in so many research studies. I suppose this recent development/research study is not much different in that way as of yet but the specific dedication to CH is a positive and makes me feel hopeful. 3 Quote Link to comment Share on other sites More sharing options...
spiny Posted March 18, 2023 Share Posted March 18, 2023 You submitted a manuscript to them Tony? Cool! This is encouraging news. One more avenue being pursued is a great thing! It is a medical school in Sweden apparently, so that is good too! 2 Quote Link to comment Share on other sites More sharing options...
Tony Only Posted March 18, 2023 Author Share Posted March 18, 2023 Oh no, not me, it has been submitted by PhD student Felicia Jennysdotter Olofsgård in Sweden. Here is a little more information about Centre for Cluster Headache, sounds very very promising ! https://ki.se/en/research/about-the-centre-for-cluster-headache https://nordiclifescience.org/the-worlds-first-research-centre-for-cluster-headaches/ 1 Quote Link to comment Share on other sites More sharing options...
spiny Posted March 19, 2023 Share Posted March 19, 2023 “The emergency prophylactic treatments available have been developed for other diseases and aren’t optimal,” “Our researchers are already making progress in the field, and we aim to get closer to a final solution to this medical mystery,” This is awesome Tony!!! 1 Quote Link to comment Share on other sites More sharing options...
Tony Only Posted March 21, 2023 Author Share Posted March 21, 2023 Article in swedish: https://www.hjarnfonden.se/2023/03/varldens-forsta-centrum-for-klusterhuvudvark-oppnat-pa-karolinska-institutet/ And a Google translate: The world's first center for cluster headaches opened at Karolinska Institutet Cluster headache (Horton's headache) is the most painful headache there is and is sometimes called a suicide headache. Now the world's first research center completely specialized in cluster headaches has been started at the Karolinska Institutet in Solna. The center has been made possible thanks to support from Hjärnfonden and a large donation from philanthropist Rune Andersson and his foundation Mellby Gård. On February 3, the world's first center for research on cluster headaches was inaugurated at Karolinska Institutet in Solna. The coordinator of the center is Andrea Carmine Belin, associate professor and research group leader, who for many years has received support for her research from the Brain Foundation. She is the spider in the web and the one who decides which projects should be pursued. - We needed to create a center for research on cluster headaches in order to gather all the expertise at Karolinska Institutet, start new collaborations and to make the disease visible, she says. At the new center, research and clinical activities can collaborate with the goal of better understanding the mechanisms behind the disease in order to be able to make a diagnosis earlier and develop better treatments or even a cure. - The fact that the center is right next to clinical operations that treat patients with cluster headaches and migraines means that we can easily test what we come up with, new treatments and other things, directly on the patients, says Andrea Carmine Belin. Donation of 34.3 million made the center possible The new center has been made possible through a donation of SEK 34.3 million by business leader and philanthropist Rune Andersson through his foundation Mellby Gård. The support is divided over seven years, which guarantees a long-term perspective and continuity in the research. Gilberto Fisone is a professor of neuroscience and has been involved in the project to set up the cluster headache center from the beginning. In addition to being on the board, he is head of the department of neuroscience and sits on the Brain Foundation's scientific committee. - It all started with the support that Andrea Carmine Belin's research received for many years from the Brain Foundation. The opportunity to build this center for cluster headache research was already created there. At an earlier stage, a donor in the form of the philanthropist and business leader Rune Andersson and his foundation Mellby Gård came in via Hjärnfonden's Donor Program and supported the research that Andrea was conducting, he says. At Karolinska Institutet, the conditions for creating a center have existed for a while with modern research environments and a well-developed contact with care. But above all because of the completely unique biobank with biological samples and clinical information from patients diagnosed with cluster headaches. - The biobank is the world's largest and it is the entire core of our research. With it as a base, we can do both biological and epidemiological survey studies. We continue to build it all the time, says Andrea proudly. What has been missing for a research center to become a reality has been funding. Therefore, Rune Andersson's donation of SEK 34.3 million was absolutely decisive. - Rune Andersson's contribution is extremely important, above all because it is long-term support, says Andrea. We have received funding to run the center for seven years and this investment will be able to lift our research even further and bring us closer to the goal of finding a solution to this disease mystery. What does the Hjärnfonden's support mean for the centre? - The brain fund has meant an enormous amount to me and the research I conduct, says Andrea. I received my first scholarship as a newly awarded researcher from Hjärnfonden and it enabled me to continue on this path. Getting support early in the career is extremely crucial for many researchers, in order to be able to continue at all. If the Brain Foundation had not supported my research from the very beginning, we would not have a cluster headache center today. What projects do you have going on right now? - Heredity is our greatest interest. Between 11 and 20 percent of cluster headache sufferers have a close relative with the disorder. We look at some different genes, if you have certain types of deviations in them, it means a greater risk of getting the disease. Circadian rhythm is also important as we know that nocturnal attacks of cluster headaches are common. That's why we follow patients' sleep patterns closely. We are also very interested in gender differences and have seen that women suffer more from the chronic variant of cluster headache while men more often get the episodic variant. The result can be of great importance for how and when a diagnosis is made and what treatment the patient receives. How was the inauguration of the new center? - Very funny! It was a good opportunity to invite those who supported our research, collaboration partners and the rector of Karolinska Institutet. The support from the private sector is incredibly important for our research to continue, says Andrea Carmine Belin. What does the center mean for KI and your institution? - It is very important for both the department, for Karolinska Institutet and for research into cluster headaches. There is no other center in the world that is focused on cluster headaches. This puts the diagnosis on the map internationally, says Gilberto Fisone. The fact that the support to the center is also long-term, that it will be implemented over seven years, gives us opportunities to coordinate the research better and gives room for new ideas and to test new angles. It is unusual for medical research in such a specific field to have the opportunity for such continuity at all. 1 Quote Link to comment Share on other sites More sharing options...
Royster Posted March 21, 2023 Share Posted March 21, 2023 Where is this place?? Quote Link to comment Share on other sites More sharing options...
Tony Only Posted March 21, 2023 Author Share Posted March 21, 2023 8 minutes ago, Royster said: Where is this place?? It's in northern Europe, Sweden. Quote Link to comment Share on other sites More sharing options...
Royster Posted March 21, 2023 Share Posted March 21, 2023 Thanks Tony, I'll look more into it, I'm a bit desperate I might put myself up for any future trials, and I here the women are beautiful Quote Link to comment Share on other sites More sharing options...
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