eileenbunny Posted March 27, 2023 Share Posted March 27, 2023 We are excited to open registration for the Clusterbusters 18th Annual U.S. Patient Conference in Disney Springs, FL. Join us for a long weekend of support, education, and family from Sept 7-10, 2023. Register today! https://386964908.planningpod.com/ 3 Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted March 28, 2023 Share Posted March 28, 2023 !!!!! Quote Link to comment Share on other sites More sharing options...
gegibsonjr Posted May 22, 2023 Share Posted May 22, 2023 Is there a rough agenda regarding timing? I thought I had seen one previously - starting Thursday evening and finishing Sunday at noon. I am working on travel arrangements for this conference and trying be be a cost conscientious. Thank you! Quote Link to comment Share on other sites More sharing options...
eileenbunny Posted May 22, 2023 Author Share Posted May 22, 2023 We will kick off on Thursday evening with a cocktail reception and registration. Following will be two full days of presentations, workshops, and sessions, (Friday and Saturday), and there will be a half day of presentations and discussion on Sunday. We will finish at around noon on Sunday. 3 Quote Link to comment Share on other sites More sharing options...
gegibsonjr Posted May 25, 2023 Share Posted May 25, 2023 @eileenbunny Thank you!! Looking forward to this. 1 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted June 3, 2023 Share Posted June 3, 2023 We can't wait to see our cluster family in person September 7-10, 2023 in Disney Springs, FL at the Clusterbusters 18th Annual U.S. Patient Conference! Register today! https://386964908.planningpod.com/ 1 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted July 15, 2023 Share Posted July 15, 2023 Less than two months until the Clusterbusters 18th Annual U.S. Patient Conference in Disney Springs, FL! Join the cluster community for a long weekend of support, education, and family from Sept 7 - 10, 2023.For more info and to register:https://386964908.planningpod.com/ Quote Link to comment Share on other sites More sharing options...
Racer1_NC Posted July 25, 2023 Share Posted July 25, 2023 It's getting closer......if you are on the fence, just come on and join us. Chances are you won't regret it. 2 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 14, 2023 Share Posted August 14, 2023 Clusterbusters 18th Annual U.S. Patient Conference is less than a month away. Join us Sept 7-10 for a long weekend of cluster community, support and education! For more information and to register: https://386964908.planningpod.com/ Secure your room at the conference hotel through August 16, 2023, to receive a special discounted group rate. Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU 2 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 18, 2023 Share Posted August 18, 2023 Dr. Emmanuelle Schindler will be presenting "Research: What's Next?" as well "Busting Basics" with members of the Clusterbusters Board and Bob Wold, our Founder and Executive Director. Join them at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/ Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUDr. Schindler is Medical Director of the Headache Center of Excellence at Veterans Affairs (VA) Connecticut Healthcare System and Assistant Professor of Neurology at Yale School of Medicine.Among her efforts to optimize the management of headache disorders, she has developed and executed the first controlled trials investigating the effects and mechanisms of action of psilocybin in cluster, migraine, and post-traumatic headache.Previously, Dr. Schindler studied the neuropharmacology of psychedelics and other serotonergic compounds in the context of receptor binding and intracellular signaling. 1 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 18, 2023 Share Posted August 18, 2023 Ms. Kim Dudley Farley will be presenting her Patient Perspective at the Clusterbusters 18th Annual U.S. Patient Conference.Kim lives in the heart of the Shenandoah Valley. She has been married to one of her best friends, Stacy, for 21 years. They have two beautiful children together. Kim started her journey with migraines at the age of 9 and after a horse injury to the head at 25 she was diagnosed with cluster headaches in 2003.Kim’s professional life spans from a Real Estate Agent, Kickboxing Coach, Manager and Coach of a local Orangetherory franchise and most recently the Education and Fitness Manager of a holistic wellness retreat resort. Outside of work she loves to travel to new areas, and try new adventures. Depending on the season, you can catch her on a baseball field cheering on favorite baseball player, Dominick, or spending time in nature on a hike with Karis.She believes caring for your body both physically and mentally are the keys to optimal health. She takes a holistic approach to wellness and healing of the body and spends much of her free time researching nutrition and alternative medicine.Kim is a relationship based individual, who thrives on connection with others. She attended her first Clusterbusters conference in Austin in 2016 and the connections she made have been immeasurable. The CB community has been an integral piece of her healing and she will be forever grateful she found this family.She is incredibly humbled to be asked to speak at this year's conference and share her journey with you.Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU 2 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 20, 2023 Share Posted August 20, 2023 Dr. Melissa Rayhill will be presenting "Co-Occurring Headache Diseases/Misdiagnoses" with Clusterbusters Board Member and Patient Advocate Ms. Anna Williams. Join them at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUDr. Melissa Rayhill graduated cum laude from the University at Buffalo School of Medicine (SUNY) where she was inducted into the Alpha Omega Alpha honor society and Gold Humanism Honor Society. She completed her Internship and Residency at Boston University Medical Center in Boston, Massachusetts where she served as Chief Resident. She completed a Fellowship in Headache Medicine at the Brigham and Women’s Hospital/Harvard Medical School Program at the John R. Graham Headache Center.After her training, she joined the Department of Neurology at the University at Buffalo Jacobs School of Medicine. Dr. Rayhill was named a Fellow of the American Headache Society and a Fellow of the American Academy of Neurology. She served as an Associate Editor for the journal Headache, and serves on the editorial board for Pain Medicine. Dr. Rayhill is the Program Director for the Adult Neurology Residency Training Program at the University at Buffalo (SUNY). She founded the Women in Neurology section of the New York State Neurological Society, and currently serves as the society’s Treasurer. 2 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 23, 2023 Share Posted August 23, 2023 Mr. Bill Mingus is a long time veteran of cluster headaches. He has been active in the online community and was a member of OUCH USA for many years. Considered by many as an expert on the use of oxygen in the management of cluster headache, Bill will share his knowledge during our pre-conference and lunch sessions: “Oxygen - Making It Work For You. A Hands On Demonstration and Discussion.” This will be an opportunity to learn more about oxygen use including tips and tricks to optimize its effectiveness.Join Bill at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU 1 Quote Link to comment Share on other sites More sharing options...
Quinton Posted August 24, 2023 Share Posted August 24, 2023 Will any of the sessions from this conference be recorded or streamed for those who are not able to attend? 1 Quote Link to comment Share on other sites More sharing options...
eileenbunny Posted August 24, 2023 Author Share Posted August 24, 2023 We will not be streaming any content, but we will be recording some of the content and posting it on our YouTube. 1 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 25, 2023 Share Posted August 25, 2023 Join Ms. Anna Williams at Clusterbusters 18th Annual U.S. Patient Conference Sept 7-10, 2023 where she will be introducing ClusterBuddies, our new pilot program! She will also be presenting "Co-Occurring Headache Diseases/Misdiagnoses" with Dr. Melissa Rayhill.For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUAnna had her first cluster headache attack in 2013. Like many in our community, she was initially misdiagnosed with migraine. In 2017, she experienced an increase in attacks and was diagnosed correctly. Discouraged over the absence of relief offered by the many prescription medications she was prescribed, Anna set out to research information about CH. Her research led her to Clusterbusters.org, where she further educated herself about the illness and its traditional and alternative treatment options. During this time, Anna’s condition shifted from being episodic to chronic. Also during this time, she felt compelled to help others with the condition and began affiliating with advocacy groups to raise awareness of the disorder and the challenges faced with getting properly diagnosed and treated.In 2020, Anna was diagnosed with SUNCT (Short-lasting Unilateral Neuralgiform headache attacks with Conjunctival injection and Tearing), which, like CH, is a Trigeminal Autonomic Cephalalgia (TAC). This led her to a new level of desperation for locating effective treatments. Finding the most helpful combination of treatments to best target her condition/s has not been easy, but with consistency and perseverance, she is steadily finding useful ways to manage the disease that was chipping away at her joy.In January 2023, Anna joined the Board of Directors for Clusterbusters.Anna is a proud mom to two teenage daughters who find themselves advocating and bringing awareness to headache disease. Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 26, 2023 Share Posted August 26, 2023 Mr. Phil Battle will be presenting his Patient Perspective at the Clusterbusters 18th Annual U.S. Patient Conference. Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUPhil was born in Glen Cove, NY which is on the North Shore of Long Island. He is the middle child from a family of 10, 7 boys. 3 girls.Never married. No kids, but has always worked with kids volunteering his time coaching baseball and basketball.He has been a survivor of episodic cluster attacks for 14yrs. He was fortunate enough to have been diagnosed correctly by the first doctor he saw.He is a DIEHARD OAKLAND RAIDER Fan and is an ice cream addict. This is his 3rd conference the first being a life changing experience. Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 30, 2023 Share Posted August 30, 2023 Mr. Steve Keschinger will be co-MC at Clusterbusters 18th Annual U.S. Patient Conference. Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIUSteve was born and raised in New York and after working for the railroad for 27 years is enjoying his retirement living in South Carolina for the last 8 years. Steve has been married to his very supportive wife, Heather, for 40 years and they are the proud parents of two sons and grandparents of twin girls. He is a diehard NY Yankees fan along with the NY Rangers and NY Giants.Steve has had chronic cluster headaches for many years, after consulting many Doctors and neurologists and being on a harsh treatment plan and pharmaceutical merry go round, he discovered Clusterbusters, where he describes his connection as “meeting the most amazing, caring and understanding people I have ever known in my life. Clusterbusters members are my Family!”Steve has attended 3 Headache on the Hill events and this will be his 10th conference. He is proud and honored to be co-MC for this year's conference. 1 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted August 31, 2023 Share Posted August 31, 2023 Ms. Heather Keschinger will be presenting a Caregiver Perspective at Clusterbusters 18th Annual U.S. Patient Conference.Heather has been married to Steven for over 40 years. She is a proud mother of two sons and a grandmother of twin girls. Heather has attended 3 Headache on the Hill Events and this will be her 10th conference.She has been a supporter/advocate/caregiver to her husband Steven with Cluster Headaches for over 20 years. She says "Clusterbusters has saved both of them."Join us in Disney Springs Sept 7-10, 2023. For more information and to register: https://386964908.planningpod.com/Due to a generous donation, limited scholarships are still available if you need some travel assistance. Scholarship Applications: https://conta.cc/3DUZxIU 1 Quote Link to comment Share on other sites More sharing options...
MichelleC Posted September 5, 2023 Share Posted September 5, 2023 Clusterbusters 18th Annual U.S. Patient Conference is almost here! For those attending it's a good time to review tips to prepare for & travel with cluster headache: https://conta.cc/462QWjr Quote Link to comment Share on other sites More sharing options...
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