ClusterHeadSurvivor Posted March 29, 2013 Share Posted March 29, 2013 Its to my understanding that the Mayo Clinic in Florida does research on CH. Is there anyone else who does research on CH? Heard of anyone who does research in Canada? Any proof?web links etc? thanks Quote Link to comment Share on other sites More sharing options...
blueballs Posted March 29, 2013 Share Posted March 29, 2013 Google Dr Peter Goadsby. Quote Link to comment Share on other sites More sharing options...
CHfather Posted March 29, 2013 Share Posted March 29, 2013 Any proof?web links etc? You could start here: http://scholar.google.com/scholar?as_ylo=2012&q=%22cluster+headache%22&hl=en&as_sdt=0,5Â Note that on the left side you can set the date range. Here's a list of CH-related clinical trials in the US: http://clinicaltrials.gov/ct2/results?term=%22cluster+headache%22&Search=Search Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted March 30, 2013 Author Share Posted March 30, 2013 I have spoken to Dr.Goadsby., He is a professor in nuerology ? I am asking if there is a research lab that researches the disease??? Quote Link to comment Share on other sites More sharing options...
Hipshot Posted March 30, 2013 Share Posted March 30, 2013 None that I am aware of. If I knew of any research center I would be the first to sign up Quote Link to comment Share on other sites More sharing options...
shocked Posted March 30, 2013 Share Posted March 30, 2013 Headache Group UCL Institute of Neurology http://www.ucl.ac.uk/ion/departments/repair/themes/headache shocked Quote Link to comment Share on other sites More sharing options...
blueballs Posted March 30, 2013 Share Posted March 30, 2013 I think the answer is no. That is a ggod question. The next one is, why not?... ... Quote Link to comment Share on other sites More sharing options...
blueballs Posted March 30, 2013 Share Posted March 30, 2013 Last research I know of was Dr Goadsby, torturing rats trying to figure out 02. Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted March 30, 2013 Author Share Posted March 30, 2013 I am writing a book and want to donate 25% net profits to research, Anyone know a publisher who is intrested in hearing my story?Remaining 25% goes to Michael J Fox Foundation and other 50% my family. I want NOTHING. Quote Link to comment Share on other sites More sharing options...
blueballs Posted March 30, 2013 Share Posted March 30, 2013 I would give it to clusterbusters. Quote Link to comment Share on other sites More sharing options...
Brew Posted March 31, 2013 Share Posted March 31, 2013 You're going to want to get yourself a good editor. Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted March 31, 2013 Author Share Posted March 31, 2013 LOL. I know spelling is my worst problem.LOL I am thinking if eBooking it first. Quote Link to comment Share on other sites More sharing options...
Brew Posted April 1, 2013 Share Posted April 1, 2013 EVERY writer needs a good editor. It's just a second set of eyes that you trust. Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted April 1, 2013 Author Share Posted April 1, 2013 Be safe to say Mayo Clinic in Florida is only place then in North America. Quote Link to comment Share on other sites More sharing options...
b.g. Posted April 1, 2013 Share Posted April 1, 2013 Be safe to say Mayo Clinic in Florida is only place then in North America. I'll be going to see my doctor on Thursday this week. Dr. Tepper at the Cleveland Clinic. I will ask him, as he is one of the few "CH Specialist" doctors in North America and stays well on top of everything that is going on. He has published tons of books, reviews, and editorials on CH and gives seminars very often to help raise awareness with other doctors who have no idea what a CH is. http://my.clevelandclinic.org/staff_directory/staff_display.aspx?doctorid=8820 Quote Link to comment Share on other sites More sharing options...
blueballs Posted April 1, 2013 Share Posted April 1, 2013 I think whats going on in San Fransisco is considered research. http://www.ucsfhealth.org/peter.goadsby If I were still in the bay I would be beating his door in..lol bb Quote Link to comment Share on other sites More sharing options...
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