MoxieGirl Posted January 9, 2014 Share Posted January 9, 2014 A discussion came up on another board I'm, and the poster was wondering if many CH'ers have additional incurable illnesses. She is wondering if there is a trend here. The list of incurable illnesses hasn't been defined. For example, I would answer No, but I do have mild asthma. So does that count? I can't see that being a contributing factor as I've had it all my life and clusters only 7 years. I am thinking she means more along the lines of fybromyalgia, MS or Ehlers Danlos, for example. I said I'd ask around and see if many people I know do. MG Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted January 9, 2014 Share Posted January 9, 2014 If your referring to CH.com that was me, IM no she. Im a he.lol I asked if anyone could get a second nuerological disease. Some people/person misunderstood and thought I asked if CH could give you another nuero disease. I was NOT asking that...I asked if anyone had heard of anyone suffering another nuerological disease as well.( Parkinsons or ......) If it was another board then please accept my apology but I did ask that question on CH.com Myself. have CCH,Migraines,Tension Headaches, exzema, Irritable Bowl Syndrome... I have passed along to my son Migraines and Tension headaches and praying he does not get CH because he has Elhers Danlos Syndrome (EDS) Thanks Moxie...great question! Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted January 9, 2014 Share Posted January 9, 2014 I had to think about this one real hard... Does being a sex addict count,? (ok just joking, I voted no, but diabetes does run in my fathers side of the family). J Quote Link to comment Share on other sites More sharing options...
MoxieGirl Posted January 9, 2014 Author Share Posted January 9, 2014 Nah, CHS, it was a Karen on a CH Facebook page. Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 9, 2014 Share Posted January 9, 2014 In Rozen's large 2011 study of CH, he apparently asked people about other conditions. I'm not sure how this question was asked -- open-ended, I assume, but maybe it was focused on some particular things. FWIW, here's what came from that: A personal history of depression occurred in 24% of the survey responders, while 14% had a history of sleep apnea, 11% restless leg syndrome, and 9% asthma. Interestingly, a very low percentage had known cardiovascular disease (myocardial infarction 1%, bypass surgery 0.3%, and coronary stent placement 1%). Strokes were rare occurring in only 0.2%.A diagnosis of emphysema or chronic obstructive pulmonary disease (COPD) was noted in only 2%, while lung cancer occurred in only 3 patients or 0.3%. Peptic or duodenal ulcer disease was noted in only 5%, while diabetes occurred in 3%. Epilepsy was noted in only 1%.A personal history of migraine and other headaches was not obtained. http://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=1&ved=0CCwQFjAA&url=http%3A%2F%2Fwww.ouch-us.org%2Fchgeneral%2FCluster_Headache_in_USA.pdf&ei=6-vOUujBHsbP2wXVlIEo&usg=AFQjCNE-e4t9U7Gt6P4D8iuKFBJW39KbAA&sig2=LltYRxfRDA23lMNIdlf_uw&bvm=bv.59026428,d.b2I Quote Link to comment Share on other sites More sharing options...
ClusterHeadSurvivor Posted January 9, 2014 Share Posted January 9, 2014 Nah, CHS, it was a Karen on a CH Facebook page. Brooks? Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted January 9, 2014 Share Posted January 9, 2014 CHFather, I'm very surprised at the COPD and Lung Cancer. Given an overwhelming percentage of those with CH either smoke or have smoked (90% ish if I remember right), it seems indeed very low. Maybe along with CH we get some sort of a resistance to lung disease? J Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 9, 2014 Share Posted January 9, 2014 Jeff, Heart disease also low, especially considering the percentage of smokers. Rozen theorized some possible "protective effect" of CH, but trying to figure out what that might be wasn't really part of what he was doing. Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted January 10, 2014 Share Posted January 10, 2014 Rozen theorized some possible "protective effect" of CH Weird and unexpected if actually true, but I imagine I can speak for many of us when I say I would be happy to accept such a consolation prize! Quote Link to comment Share on other sites More sharing options...
MoxieGirl Posted January 10, 2014 Author Share Posted January 10, 2014 Nah, CHS, it was a Karen on a CH Facebook page. Brooks? Nope. Quote Link to comment Share on other sites More sharing options...
Brew Posted January 10, 2014 Share Posted January 10, 2014 Three that I can think of: That last one, well, I'm not sure if it's an incurable disease or if it just means that I have to be careful which, if any, biologic medications I can take in the future. I've been told that use of biologics like Humira, Remicade, etc. can increase the chances that I'll develop lupus. The first two - treatable but not "curable." Quote Link to comment Share on other sites More sharing options...
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