Frilling Posted August 20, 2014 Share Posted August 20, 2014 New Device At Ohio State Wexner Medical Center Takes Aim At Cluster Headaches : Quote Link to comment Share on other sites More sharing options...
Psiloscribe Posted August 20, 2014 Share Posted August 20, 2014 I met with the company doing the studies and took a look at the device. They will be at our conference in Nashville. Bob Quote Link to comment Share on other sites More sharing options...
Frilling Posted August 21, 2014 Author Share Posted August 21, 2014 It appears this device is only treating people with the chronic episodes thus far and not the episodic. I am happy to see this is finally getting some attention! Quote Link to comment Share on other sites More sharing options...
didgens Posted August 21, 2014 Share Posted August 21, 2014 ok so where's his update ??! Quote Link to comment Share on other sites More sharing options...
didgens Posted August 21, 2014 Share Posted August 21, 2014 from the video (which isn't exact by any means) im wondering and have been now for a couple weeks from reading and reading and reading if this device isn't stimulating the CIliary Ganglion instead of the Sphenopaletine or Peterygopalatine ganglion... in my reading its the Ciliary Ganglion that caused the lacrimimal glands to secrete tears and the nose to run in the CH's (classic symptoms).. this might be why the Sphenopaletine ganglion blocks don't have compelte or desired affects that the numbing agents applied need to be directed at the Ciliary Ganglion... Thoughts ???? (way to much free time on my hands) Quote Link to comment Share on other sites More sharing options...
didgens Posted August 21, 2014 Share Posted August 21, 2014 I do not suffer CH's (mom of CHer) can you tell me please if this picture shows where the eye pain exists ?? http://path.medrounds.org/2006/03/where-is-ciliary-ganglion.html Quote Link to comment Share on other sites More sharing options...
didgens Posted August 21, 2014 Share Posted August 21, 2014 heres more http://medicalxpress.com/news/2014-08-first-of-a-kind-surgery-severe-headaches.html Quote Link to comment Share on other sites More sharing options...
didgens Posted August 21, 2014 Share Posted August 21, 2014 ok .. you know me .. sinking my teeth in .. http://onlinelibrary.wiley.com/doi/10.1111/j.1526-4610.2010.01661.x/abstract Quote Link to comment Share on other sites More sharing options...
razorPP Posted August 26, 2014 Share Posted August 26, 2014 Dee, you are one database digging, fact finding one of a kind, we love ya, keep it up.... yea where is the PF news from this device, would acupuncture stimulation the Sphenopalatine Ganglion, waiting for more new about this device. Quote Link to comment Share on other sites More sharing options...
didgens Posted August 26, 2014 Share Posted August 26, 2014 ,, thanks ,, just wanna know its like the X-Files .. the truth is out there ,, lol Quote Link to comment Share on other sites More sharing options...
ChronicNeumonic Posted September 10, 2014 Share Posted September 10, 2014 I believe you are speaking of the Autonomic Technologies Inc (ATI) Sphenopalantine Ganglion (SPG) neurostimulator device, correct? I pretty much give myself away to the very few who may know this but I have this electrode and set of 6 SPG neurostimulators surgically implanted. I paid and fought to have this procedure done in Hamburg, Germany in August of last year as a 15 year CH sufferer (last 3 years of which "chronic" and pretty much end of the line). Prior to the start of US trials at Ohio State, I am pretty sure I am the only American citizen, if there is another please speak up!, with the implant. Such a long journey but cutting edge technology and a fairly non-invasive procedure for those who find themselves even considering a surgical option when compared to Occipital Nerve Stimulators or Deep Brain Stimulation. Unlike the horrific messy stimulator procedures FDA approved in the US for treating CH this device has 1 lead wire where migration is near impossible, no battery (power generated by external radio frequency remote when held gently over upper left cheek and couples with electrode under skin) so ideally no continual surgery to replace and store battery in new part of body, and actually targets the set of nerves and fibers that are much more universally recognized as the origin of the unspeakable pain in CH attacks. I am a bio-chemist by trade, and no question the SPG, Maxillary, and surrounding offshoots of the Trigeminal are the nerves that need high frequency stimulation. 1 hour general anesthetic procedure with simple incision in the upper gum. Clinically proven MRI safe. No external scars and although non-invasive for a neurostimulator, surgery still is surgery and risks are present. However, my expected CH attacks have decreased by an astounding 90% in the last 8 months. Quote Link to comment Share on other sites More sharing options...
alleyoop Posted September 11, 2014 Share Posted September 11, 2014 Hi ChronicNeumonic and Welcome! I do hope that you can make time to attend our upcoming conference in Nashville 9/18 - 9/21, as I am sure your input would be invaluable. Let me know if I can help make this happen. Thanks for posting. alley Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted September 11, 2014 Share Posted September 11, 2014 ..my expected CH attacks have decreased by an astounding 90% in the last 8 months... Well now that is the bona fide zinger right there, for a chronic CH'er to get such results. WooDAWGY, man it would be cool if you could make the upcoming conference. Granted it's a bit of a hike from California, but hey you're so close to the Ontario airport there, and Nashville can be fairly nice this time of year (no guarantees though ). CONGRATS on that astounding 90% decrease. Quote Link to comment Share on other sites More sharing options...
razorPP Posted September 12, 2014 Share Posted September 12, 2014 CN thanks for the update, very happy for your results, I'm chronic and learning more about the Sphenopalantine Ganglion. I would consider a non-invasive as possible surgical option (damn i must be getting to the end of my option for treatment). CN please post more about when and how you use your device and does it abort a CH, when you do have an hit what's the kip level and duration, sorry for so many question, it's just a new way to squash the beast and I'm all for it. thanks, peace Quote Link to comment Share on other sites More sharing options...
b.g. Posted October 9, 2014 Share Posted October 9, 2014 The first implant in the US has been done. I will be the second. Initial appointment next week. Should have the implants within 30 days. Quote Link to comment Share on other sites More sharing options...
CHfather Posted October 9, 2014 Share Posted October 9, 2014 Would be so, so happy if this is an answer for you, bg!! Thanks for the conference pics. I still love the one of you and me from last year's conference. Quote Link to comment Share on other sites More sharing options...
b.g. Posted October 9, 2014 Share Posted October 9, 2014 Â Missed you this year Sir!! Quote Link to comment Share on other sites More sharing options...
Fabalicious Posted October 9, 2014 Share Posted October 9, 2014 Only thing missing from this pic is our resident photo bomber...lol , cant wait to meet everyone face to face...i assume that next years conference dates will be posted ina timely manner? Quote Link to comment Share on other sites More sharing options...
b.g. Posted October 9, 2014 Share Posted October 9, 2014 Chicago is most definitely the place .......... and I am assuming the dates will be posted in the next 30-60 days. Already looking forward to it. Headache on the Hill will be here before we know it!! D.C. here we come again! Quote Link to comment Share on other sites More sharing options...
razorPP Posted October 10, 2014 Share Posted October 10, 2014 good luck b.g. .... by you doing this you give me hope, peace Quote Link to comment Share on other sites More sharing options...
razorPP Posted October 13, 2014 Share Posted October 13, 2014 Web site for device www.ati-SPG.com Quote Link to comment Share on other sites More sharing options...
didgens Posted October 13, 2014 Share Posted October 13, 2014 CHF is that you on the left ??! always nice to know what someone looks like that you talk to Quote Link to comment Share on other sites More sharing options...
CHfather Posted October 13, 2014 Share Posted October 13, 2014 i think it's george clooney. Quote Link to comment Share on other sites More sharing options...
didgens Posted October 14, 2014 Share Posted October 14, 2014 you're too funny Quote Link to comment Share on other sites More sharing options...
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