didgens Posted June 8, 2015 Share Posted June 8, 2015 My Son has had more headaches in 2015 then he did for all of the other years since he started getting them. I am going to say this with OUT A DOUBT ,, EVERY cluster period goes along with sinus symptoms. Every single one. I noted this time he had a CH and 1 day later BAM he had a cold. his CH's are definitely sinus cavity inflammation related .. I bet on it. I think that's why inhaleing cold air works so well for some ?? it stop sinus cavity swelling.. anyway ,, I don't know how that helps anything. I didn't notice the weird smell in the neighborhood this time around .. and our weather has really been all over the place 90 degrees ,, then 60 and raining ,, then 100 degrees ,, then 60 and rainging .. sheesh Quote Link to comment Share on other sites More sharing options...
spiny Posted June 9, 2015 Share Posted June 9, 2015 didgens, Many of us notice an increase in hits year over year. It just seems to get worse over time for many. I am one who lost teeth due to this: It must be THAT tooth. Nope. In addition, I have had sinus surgery hoping for help in past years. It was no help. CH just went on its' merry little way, no matter that they drilled and straightened and so on. Is he doing the D3? Has he added the benadryl like Batch suggested? Perhaps try that. I hope he gets relief soon. Quote Link to comment Share on other sites More sharing options...
HazBaz Posted June 9, 2015 Share Posted June 9, 2015 So many good teeth. So much waste. So much money. So little help! Quote Link to comment Share on other sites More sharing options...
ThatHurtsMyHead Posted June 10, 2015 Share Posted June 10, 2015 CH is commonly misdiagnosed as sinusitis (recurrent sinus infections). Due to the stuffy sinuses and drainage. I usually get a cold either just before or right after my CH cycles (but not always). J Quote Link to comment Share on other sites More sharing options...
didgens Posted June 10, 2015 Author Share Posted June 10, 2015 thanks guys.. J ,, that's really fascinating .. wondering about that Spiny ,, he ran out of benedryl a while back so I had to pick up some more.. not has not started the D3 ,, he's just like "its fine mom .. whatever" not sure what level or duration of pain or number of occurances will cause him to try something other than O's .. so for now im just the mom that is there if he ever needs me to dig out information for him ... sigh :-/ Quote Link to comment Share on other sites More sharing options...
spiny Posted June 11, 2015 Share Posted June 11, 2015 He is young and invulnerable. Just the way things are. I have found that the D3 reduces the level of pain for most of my hits. Does not prevent, but does help me. But, at his age, I doubt that I would have been willing to take a handful of pills everyday unless I was incapacitated! It is really hard as a parent I am sure. When he is ready, he will appreciate all your hard work on his behalf. Quote Link to comment Share on other sites More sharing options...
CHfather Posted June 11, 2015 Share Posted June 11, 2015 I notice over at the CH Facebook group that there's discussion about the dalt having a big sinus-clearing effect as it works, for some people. The relevant posts are at the end (as of today) of the comments at the dalt thread that's pinned at the top of the page. Quote Link to comment Share on other sites More sharing options...
didgens Posted June 11, 2015 Author Share Posted June 11, 2015 thanks spiny CHF ,, can you add a link to that post here for us ?? thanks Quote Link to comment Share on other sites More sharing options...
CHfather Posted June 11, 2015 Share Posted June 11, 2015 CHF ,, can you add a link to that post here for us ?? thanks   Can't, really . . . You need to go there and request membership in the group, so a link won't take you there (I tried). It's the Cluster Headaches group (not the Cluster Headache Support Group). Quote Link to comment Share on other sites More sharing options...
didgens Posted June 11, 2015 Author Share Posted June 11, 2015 ok thanks ,, I will take a look see here's a link to some basic info I found http://clusterheadachefoundation.com/5meodasytrin.html Quote Link to comment Share on other sites More sharing options...
didgens Posted June 11, 2015 Author Share Posted June 11, 2015 is it the one with the little purple person in the square at the top ?? there seems to be a Cluster Headaches (plural) and a Cluster Headache group ?? thanks Quote Link to comment Share on other sites More sharing options...
CHfather Posted June 11, 2015 Share Posted June 11, 2015 Yes, one with the purple person. Quote Link to comment Share on other sites More sharing options...
didgens Posted June 12, 2015 Author Share Posted June 12, 2015 THanks ,, I was able to join. Lots of very interesting stuff on the 5-MeO-DALT there ,, I found this link .. but am a little scared by the caveat "Harmful if Swallowed" ?? also I wouldn't know how to break this apart or do anything with it once received. ?? https://biochemlabsupply.com/substituted-tryptamine/35-5-meo-dalt-hcl.html Quote Link to comment Share on other sites More sharing options...
CHfather Posted June 13, 2015 Share Posted June 13, 2015 didg, denny answered your other questions at the other thread on this board . . . there's plenty of advice about making it into doses at the FB thread. sounds slightly complicated (measuring very small amounts and putting that into a capsule), but not beyond your capabilities. Quote Link to comment Share on other sites More sharing options...
didgens Posted June 16, 2015 Author Share Posted June 16, 2015 THANKS ! Quote Link to comment Share on other sites More sharing options...
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