Katrina Posted January 31, 2019 Share Posted January 31, 2019 Good evening! I've been searching for a forum like this for a few years now?! This one actually seems to be active!! I have been diagnosed with SUNA syndrome nearly 5 yrs ago, have been on many medications. I have blackouts due to the pain so went into a London hospital last year and have been re-diagnosed with CH. I also have a paralyzed pupil on the same side as my pain! Can have upto 50 attacks per day and over 120 on a worst day! I'm looking to talk with ppl that have a similar situation and advice as to if I should go for a third opinion.... which is what my husband wants..... Hope to hear!!!! Quote Link to comment Share on other sites More sharing options...
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