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Showing content with the highest reputation on 04/12/2017 in all areas

  1. Last Chance! One week to go before this study closes. This study which will be the largest study of cluster headache ever conducted and it's resulting data will be useful in future studies, advocacy and awareness for years to come. Please take part if you haven't already and be part of history. This study closes on April 20th 2017. Cluster Headache Questionnaire: A New International Study Clusterbusters® is pleased to announce the final collection days of a very important research study: Study Title: Cluster Headache: Investigating severity of pain, suicidality, personal burden, access to effective treatment, and demographics among a large International survey sample. We are seeking respondents in the US and worldwide as our survey is translated into 10 languages. If you have been diagnosed with Cluster Headaches and are at least 18 years old, you are cordially invited to complete this important survey. This study will provide important research data and help advance future research and advocacy. Despite numerous descriptions in the literature suggesting Cluster Headache is among the most painful medical conditions, it has been difficult to measure and describe with precision the severity of the pain that occurs during an attack. Our study focuses on the following questions: Severity of pain Prevalence, severity, risk factors, and protective factors of suicide Personal burden (impact on relationships, work, and daily living) Effectiveness of treatment as well as obstacles Psychological impact To access our survey please visit the following link: www.clusterheadache.center This study is a collaboration between Clusterbusters® and Larry Schor, PhD Professor of Psychology at the University of West Georgia with additional support to the University of West Georgia generously provided by Autonomic Technologies™.
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  2. Shay, thank you for being a supporter!!!! I would suggest that you (or he!) start a thread in one of the other forums here (Share Your Busting Stories is a good one, even though you probably don't have a busting story to tell). Let us know -- as specifically as possible -- what he's doing for his CH (meds with dosages; other treatments); what seems to help and what doesn't. There are likely to be a bunch of things he can do to make his situation better. Isolation is very common, with many underlying factors, but knowing that his CH is more manageable is definitely a very good way to start changing that.
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  3. G'mornin Shay! Welcome to the community! Attending the conference will be life changing for both of you! The only thing that he might be overwhelmed by is knowledge gained and the cluster bud love! ! And, we have many, many supporters who attend as well.....we love our supporters!!! Dallas Denny
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  4. Hey Guys, First time on the site, first time posting. I've been dating a 5 year CH sufferer for the last year and have felt him getting more and more isolated due to his condition (coupled with unemployment). I am trying to get him more connected with his fellow CH community, do you think coming out for this would be helpful or overwhelming for him? Also, is this conference for CH sufferers only, or is it open to supporters to attend as well? Many Thanks! Shay
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