Leaderboard

Welcome to the community Primrose! I've had clusters for 30 plus years and personally know many, many clusterheads and have only met 2 for who oxygen didn't work!! We see many here who make that statement but it's usually due to inadequate equipment and/or ineffective breathing technique! Like yourself, I can't tolerate breathing it thru my nose, in fact, I can't tolerate anything touching my face during a hit so I use the mouthpiece that comes with the optiO2mask. I stand facing my large O2 cylinder and forcefully exhale and then do a mini crunch to force the last bit of air from my lungs....using the mouthpiece I inhale as much O2 as I can and hold it while the ambubag refills....repeat the exhale cycle.....I typically abort attacks in 5 to 8 minutes!! Dallas Denny

This is the mask (of which you can use just the breathing tube) that Denny was talking about: http://www.clusterheadaches.com/ccp8/index.php?app=ecom&ns=prodshow&ref=clustero2kit The vitamin D3 regimen has helped a lot of people. The creater of that regimen, who has followed it closely, is Batch. I'd strongly urge you to contact Batch -- who will be happy to hear from you and will respond quickly and supportively -- to discuss the regimen for your situation. To contact him, go to the envelope icon at the top right of the page, and type Batch on the To line. It's very rare for sumatriptan pills to work so well. You are fortunate in that regard -- thank goodness, since so little else seems to help you. Many people here have ended cycles and even sometimes prevented them through "busting." Busting is why this site was created. You can read about busting in the numbered files in the ClusterBuster Files section of this board. If you want to know more, all you have to do is ask (preferably at one of the closed boards, such as "Share Your Busting Stories."