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Showing content with the highest reputation on 03/15/2018 in all areas

  1. That is terrific! And thank you for taking part in the study. That is soooo important.
    1 point
  2. I saw this device on the news today. People should be glad there is a new effective treatment rather than demonizing the company that produces and markets it? Someone spent millions to test, develop and get the device FDA approved. If they can't make a profit, guess what? No new development. Probably one reason that there are so few effective treatments for CH as there are not many of us as compared to migraine. There's not as much profit potential. I would see the real villains as the insurance companies who will refuse to pay for it just because they can. Have you ever tried to get your insurance to pay for daily imitrex? I think my last episode, I paid for O2 out of pocket because insurance would not pay. That was several $100. The O2 works fine, but maybe the new device is more convenient and portable for those it works for.
    1 point
  3. Man I am glad you said something about sound. I have had Chronic Cluster Headaches for twenty years and back then not too many doctors or headaches sufferers knew what to call them or even understand them. Sound without a doubt can trigger my headaches to start or even get worse. But also stress and anxiety for me can make them worse. Sound is a very big trigger for me. I no longer go to concerts, listen to loud music, even going to my church and singing can start them. I can't imagine having kids! I literally use ear plugs made for shooting guns to help me socially. Thanks for sharing, I guess I am not the only one. LOL You have a long road ahead to learn about this life changing, painful disease. There are many opinions and some arguments among the cluster headache community on what to do, what to take and who to see. I believe you have a responsibility now to learn what they are, what kind and even educate medical professionals if need be along with your family and friends. Learn, learn learn become the expert! This site is a great place to start. I really feel for you and I will say a prayer for you and your family. If you have any questions I would be happy to listen. In twenty years with endless funds I have had many opportunities to see the best of the best. I have tried some dumb things I regret trying or even doing. Although with time comes some wisdom. With care search, learn and listen. Kris
    1 point
  4. I contacted the company that makes the gammaCore device. I am satisfied that the signal is an electrical one, and not just a sound. spinebob I am happy to continue this conversation as needed, you may have more information. I appreciate your skepticism, but in this case it does not appear to be true. I am not an engineer! Regards, Brian E McGeeney, MD, MPH, MBA BostonHeadacheDoc
    1 point
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