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Showing content with the highest reputation on 01/29/2019 in all areas

  1. Hi Daniel...welcome.. Looked it up.....Grandpa powder = caffeine+aspirin+paracetamol. Caffeine is our friend...the powder gets it there quicker....but careful re longterm use...the aspirin and paracetamol in there can have significant negative side effects... What is the availability of energy drinks in SA? Anything with at least 100 mg caffeine and 1000 mg taurine (caffeine booster among other things) taken quickly and in my case, super cold, will get ya the needed effect (blood vessel constriction) quickly as you crank open the OXYGEN tank. Speaking of OXYGEN....if your CH progresses (likely but let's hope not!) you're gonna want an effective, quick, cheap, safe, medically acknowledged, side effect free, front line BEST abortive. That would be O2! Dunno what your med system is.... but you might wanna start now looking into how to get the right script and the logistics of obtaining. High flow (15 LPM) or a demand valve type, proper non rebreather mask, and proper technique.... has saved the life and/or sanity of many a clusterhead.... In the meantime.... look into the vitamin D3 regimen...also quite effective for a high percentage of clusterheads... Best Jon
    2 points
  2. https://www.docguide.com/sphenopalatine-neuralgia-independent-neuralgia-entity-pooled-analysis-case-series-and-literature-rev?tsid=5 "The clinical characteristics of SN [sphenopalatine neuralgia] might mimic cluster headache with the exception of cluster pattern and treatment response to oxygen. The typical duration of pain episodes in SN was several hours to several days; and in some cases, pain was persistent."
    1 point
  3. These are the first published results that I have seen from the big questionnaire-based study that Larry Schor and others carried out, which many people here contributed to. Nothing particularly shocking to us, but very important that it's out in the medical community. Thank you, Larry and others!!!! https://www.docguide.com/effectiveness-oxygen-and-other-acute-treatments-cluster-headache-results-cluster-headache-questionna?tsid=5
    1 point
  4. Yo Daniel, ....no intent to rag on you for what works for you....but I believe in informed decisions and cost:benefit calculations....only you can do that for you... ...one of the soul crushing aspects of CH is that what works today may not work tomorrow...for no discernible reason.....so: …"to ensure peace one must prepare for war"....now...not after Pearl Harbor.... Best Jon PS: to be clear...caffeine is good...and a lot of it at the right time is better...for clusterheads anyway...
    1 point
  5. Hi Daniel, Really appreciated you tell us what is working for you ! It's great people do that ! Some methods proposed here are as eccentric as it can be but who cares. Even if a million try it and there is only one patient for who the method works, that is already a huge victory Best Regards ! siegfried
    1 point
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