Jump to content

Leaderboard

Popular Content

Showing content with the highest reputation on 04/29/2019 in all areas

  1. It’s real interesting what comes up if you search “cure” Click here 26 pages! I only got through the first few but it’s real interesting.
    2 points
  2. There are some threads here about Emgality. Put it in the search bar (top right of the page) and you'll see them. Emgality is only expected to work for people with episodic CH, not chronic, but from your description, you might not meet the specific definition of chronic. It's not likely that O2 ended your cycle. Doesn't really do that (but since CH is pretty different for everyone, I wouldn't state that as a certainty). Check out the D3 regimen; it has helped hundreds: http://www.vitamindwiki.com/tiki-download_wiki_attachment.php?attId=7708
    2 points
  3. Thanks to LazyGrind, we can now add pooping to the list of "treatments," if not cures. Like you say, j'c', who knows (except that many of them have been tried, with mixed success).
    2 points
  4. I have thoroughly enjoyed the convo this started...
    1 point
  5. I know that O2 is just supposed to help while you're having the headache. Whats weird CHfather, Is that I had tried everything else and the longest i had gone in 10 years with out one was one month. I only had the tank for about 2 weeks and had only used it 10 times before they stopped. I kept it for 6 months thinking there was no way, But they never came back. I'm trying a sample of Emagilty tonight, Hopefully I can actually get 8 hours of sleep. Also, I will check out that anti inflammatory regimen!
    1 point
  6. Thanks CHF you’re a freaking wealth of knowledge. My parents are super supportive in every sense of the word but other than a simple web search one day reading and then explaining the nick name at dinner. They just rely on me to do all the research. Probably bc I have a medical degree... I am so grateful for them but you are a saint! Edit:For the community as well! You are such an asset for those that come here. For some one without CH your dedication is admirable!
    1 point
  7. @FunTimes Hahaha I feel ya man. I got one right as my tattoo artist was shaving my arm. He looked a little perplexed. I was like "no judgement here right?" and did a bump. I never could have imagined these were a thing. Life was just normal. Then I hit 25 and it all changed. For a few months of the year anyways. I skipped a year once after using psilocybin and thought I cured myself. Then they came back for another 3. This year the Verapimil and indomethacin worked like a charm. I hope to everything Holy that it continues to work next season. I am sorry to hear you're chronic my man/woman. I couldn't imagine day to day. You're a legend for sticking it out.
    1 point
  8. EggMan You are getting the hang of it now.. Everyone reacts to things different and we do not have a set thing that will work for all. What works for you today may not work for you tomorrow and may work again for you next year. It does get overwhelming at times with all of the information here. I dont think anyone is claiming to have the real "cure" here on this site, if they do they are not around for very long. What you will find is all of the information on this site if what has worked for someone at one point in time. What you and I and everyone else does here is take in as much information as you can and try it all out tweaking it along the way until you find something that helps. Is you are ECH that can be a little harder because you dont know if your cycle ended or if what you did in the last few days worked and it chased your clusters away. I am LUCKY! I am chronic so I get to mess around all year round with adding and subtracting to my daily regimen to see what helps me the best.. It is all part of the fun I think my next thing I am going to try is facing south standing on my left leg when I take my jar of vitamin D pills and chase it down with a shot of Crown Royal Keep on trying and you will stumble on something to help
    1 point
  9. All the “fixes” get overwhelming. I’ve heard/read/tried prescriptions, vitamin regimens, psychedelics, oxygen, triptans... and many say “theirs” is the cure... almost everyone though is still trying something else or looking for something better. I’ve had many false positives over the years only to discover “the magic fix” doesn’t work the next time (maybe didn’t work the first time). Part of me wonders if I’d be better off accepting it’s something I have to deal with and make it through my “cycle.” Just got fully on the D3 regimen (realized it’s more than just taking a lot of D3). Going for oxygen tank this weekend and might give the RC seeds a shot...
    1 point
×
×
  • Create New...