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  1. ^^^^^^^everything CHf said!...so I'll repeat for emphasis... ….that is a weird and potent mix yur on....if the Indo works it changes your diagnosis and you can drop 2 of those right away....be aware of potential stomach issues and talk to your Doc about remediation measures...problem now being you won't know which of the 3 is effective. normal practice is to try the Indo first and alone to RULE OUT hemicania continua.... ...if truly CH....GET OXYGEN (the BEST abortive)….it has changed/saved many a clusterhead's life and sanity (decades ago for me)...add an energy drink (minimum 100 mg caffeine/1000 mg taurine) at the first sign of a hit improves efficacy for me and many... NOTHING to lose with the D3 regimen (except possibly ALL other measures )...and its good for ya CH or not.... ...totally understand the fear of 'chronic'...I was same..... but having been both, the difference was just attitude...once ya got a plan and the tools it's just different forms of the same beast to manage...was episodic for 23 yrs, it helped me to think of episodic as just being "chronically periodic"....perhaps just a semantics game, but "it's all in yur head" anyway, right? Best Jon
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  2. That's rough, Ken'. I don't think they're sure it's CH, or they probably wouldn't have prescribed indomethacin, which doesn't treat CH but a condition that's a CH "lookalike." You are getting three preventive medications and no abortive. That's pretty weird. Two of them, or all three of them, can make you feel like crap in various ways. You weren't prescribed either oxygen or some kind of triptan, such as Imitrex, for stopping your attacks? No attempt to try prednisone while the preventive cocktail takes effect? When you say "high doses," what were the actual dosages? (I'll bet they're not high for treating CH.) Are they monitoring you -- both Depakote and Verapamil should be monitored in the first weeks, for different reasons. Get on the vitamin D3 regimen. GET OXYGEN. READ THIS: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ What are your actual symptoms? Can't be still during an attack? Eye red, runny? Nose runny? Pain where? Pain when? How long? Shands has a good general reputation, but most docs suck at treating CH.
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