Leaderboard

Have experienced cluster headaches for 15 years now. Finally went in to neurology for exam. Diagnosed as cluster headaches. I started on a small dose of prednisone for 5 days, a week later began 100mg verapamil 3x/day. Those doses began 20 days ago. I have not noticed any significant reduction in headaches (average 4-6/day) and is very, very depressing. If things do not improve soon I might have to search for more professional help. But for the time being I'll continue on with my research here. I've visited other forums/sites but ClusterBusters seems to contain much more information and it's also very active. Have been reading thru some of the topic's/messages here and have found a vast amount of information. Of course I need to study more here and figure out what all the acronyms stand for! Thanks so much for making this forum available. This is my 1st post so I hope I've posted it in the correct board. Jeff from Iowa City

Welcome. I usually check in every 3 days when I'm out of cycle. Daily when in, which I'm not. Hopefully with what you gather for an arsenal here you can extend your time between attacks. That being said if you need someone to vent to I get it and I'm close. I've never met anyone else with clusters personally.

Wow Batch thanks for all the info! I wasn’t specifically looking for an RA taylored program but how is the best way to bump him up. You’re knowledge and desire to help others is honorable! thanks again Brian So my last dose of L was Sunday. Tuesday and Wednesday I actually got 3 hrs of sleep a night. Then I got hit all day yesterday until 3am. Slept to 1030am today which hasn’t happened in 4 months. I’ve only had one CH today so far! So I’m probably going to dose w L tomorrow. And stretch it out a week at a time to a month if I can make it. Then monthly doses. I’m getting ahead of myself but it just might be working again!