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Since you’re asking make sure you insist the script has the following: 1diagnosis w/ code 2 “oxygen @15-25LPM via NON-REBREATHER mask PRN (as needed) CH 3. Please supply Pt w/ M tanks and E tanks i put in the tank sizes bc some places require that others automatically give M tanks to CH patients and you need a second script for the smaller portable E tanks. You will probably have to buy your own regulators to get above 15LPM but a few places have the higher flow regs. Hope this helps, I suggest Apria healthcare. They have been great to me. All CH patients are in an “on call” delivery setup. So you call when you need. I try and give them a day but it has happened that they have come same day. The drivers say the policy is 3M tanks per pt. But I currently have 9. Lol. Every time I called I asked them to put in the notes 4 tanks, then one day they say as usual when hanging up “is there anything else I can do?” I said yes, could I get 5 tanks? They put it in the notes and wala I got 5. I call when I get down to 3-4 tanks and reorder 4-5 tanks. If I have half filled tanks or still have a full tank when they come my delivery guys just leave what ever I have left and bring all the new tanks in too. Last week the yard was low on tanks and he only brought 3. Then randomly the door bell rang last night around 7:30pm. It was one of my oxygen guys. He was on call got called out kinda close to my area so he threw 5 more tanks in the truck and brought them over and surprised me! I’ve had nothing but good things to say about Apria...

That's an affirmative on the pizza and beer Freud! Lmao at "perfect record of resisting honky tonks"......I lived in Cowtown from 68 to 84 and played guitar and sang in bands the majority of that time period.....I imagine I've sang a country song in near about every honkytonk in town!! Sounds like we're gonna have a big crowd with lots of 1st timers this year so really looking forward to meeting all of ya'll...I had the pleasure of meeting Pete in Austin after knowing him online for many years and looking forward to seeing him again......and I've talked to several folks that I've met and known here for a long time ( all from the early days of the board but who are no longer active here) but have never met in person that are coming as well.....AND, I finally get to meet my co-conspirator, err, umm, I mean co-moderator Spiny in person AND, bejeebers is gonna try to make it up from Austin......and, of course, my BFF "hipshot" AKA Hollywood Dan of Nat Geo fame will be there! Shit the bed Loretta! It's gonna get rowdy ya'll......Yeeee Feckin Hawwww! DD

Moxie Girl's first rule of clusters: No two clusterheads suffer the same, and as soon as you figure yours out, it changes. I certainly agree that our diets have a lot to answer for. The absolute rubbish that goes into some of our foods, the manufacturers should be in jail! Everything is worth a try. Like you say, everyone is different and what works for one person won't for another. But I shy away from the word 'cure' when it comes to clusters. I know people with 4 and 5 year period of remissions, and even longer. Come back to us in 10 years, if you're still pain free all that time, we'll be impressed. Mox

Unfortunately many people have posted about diets here. Be it keto diets or histamine free diets, some have said it helped them. However, some times it’s just coincidence. Spontaneous remissions do happen to episodic and chronics. It’s rare, but I am skeptical. Like Dana says it’s no cure but may have been a trigger for you. We all have different triggers. If you want to see how many people found a cure only to find out it wasn’t search in the search field for “cure”. Start with the oldest post and read to current. There are over 25 pages of cures. I hope to god you never get another CH. but please don’t use the word cure here. Thank you for sharing hopefully it helps someone else.