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Semantics are important. It makes a difference when you call CH a disorder instead of a disease, and it make huge difference if you think in terms of causes and cures instead of triggers and treatments. As for special abortive methods and Technics - I have quite a few of them myself. I had CH for over 20 years before I was properly diagnosed (in some point I already knew, but doctors had proved themselves so useless that I didn't even try to seek help with them). So I had a lot of time to come up with all kinds of methods, many of which I'm sure all veterans here already know. I also learned a lot about triggers, and managed to be PF for several years - but this always comes to an end sooner or later. From my experience, most methods lose effectiveness with time. This can be explained in several ways, but it's a fact that many clusterheads report "cures" which do work for some time and than just don't. Other methods remain useful, but aren't enough when the CH gets worse, which it usually does. Personally, I always try a few tricks before reaching for the Imitrex shot, and I abort over 90% of my attacks in 2-5 minutes. But in the long run, it's a good idea to concentrate more on prevention, and keep the abortives for breakthrough-attacks. It's best to realize that BEFORE you get to a point where you have 30-40 hits a week.

...umm......well...I kinda thought that's what CLUSTERBUSTERS.org was all about...………………...

Well thanks for finally changing the title. I still strongly suggest you read the 27 pages of “Cure”s in the search field before you make another post like this again. Elliot’s posts are a good place to start. You never know. He may still be looking for volunteers for his masterbation study.

Here is my last comment on this thread, and the subject of thread titles. Probably. When I was considering buying an Audi TT, I joined a local TT forum that had regular meet-ups and such, to talk to others and get their perspective on the car. At some point I started a thread with an enticing title. I don't remember the words I used exactly, but it was designed to get people to open the thread. It wasn't misleading, but was very much an OH MY GOSH type phrase. I got a lot of backlash from the community because a few months before I joined, one of their well known members had died and my title brought back memories of the thread used to announce that person's death. It upset a lot of people, and I promptly changed the title and dialled it down. I learned a couple things from that. One, a forum isn't a newspaper and we don't need to entice readership with over the top post titles like newspapers use to get people to buy the paper. Two, you never know what is going to upset someone else. Every title and post I write I suspect will piss someone off, but I try not to. Sometimes, when I've got a migraine or am just in one of those moods, I have less patience with people than is required, and that comes through in my writing. For that, I'm sorry but am also human. The comment about keeping on topic is a good one. If Freud wants to know more, I'm sure he can PM me. Mox

Benadryl is a chemical too. Triptamines - including LSD, imitrex, melatonin and serotonin - are all chemicals. And hey, I'm as thrilled about using medications as you are. But in some cases it's better than the alternatives. The important thing is that you found something that is working for you.

ClusterSwarm, I'm a CH sufferer for 36 years now, during which I've done some reading. So let me save you a lot of time. (a) CH is not an allergy, histamine is not the cause for CH, and your body also produces histamine without being allergic. Histamine is not only a marker of allergy but also an inflammatory agent, just like CGRP, Substance P and other molecules involved in the mechanism behind CH. (b) If the doctors you went to did not know what to do with CH, they were clearly not headache specialists. Actually, if somebody gives you painkillers for CH, he certainly ISN'T a headache specialist. First line for CH is Highflow O2 and Imitrex as abortives; Verapamil as prophylactic; and a steroid taper as transitional therapy. Pain killers are a waste of time.

Holy f'ing shit.....how could I have been so stupid to miss this for 38 years??????!!!!