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DK, I've been keeping up with the thread, wondering if it was going anywhere. As others have pointed out. Someone comes to the board every few weeks announcing a cure. There is no cure. Only remission. I myself have gone 2 years without an attack, then back to episodic then to chronic. Others 10 years or more and it comes back. I manage my beast with the natural medicines primarily discussed on this board. That said. I like to follow Bob's lead and let people speak freely without fear of repercussions. MM was once thought of as being a quack management technique. It is now, thanks to Bob and others like him, in my opinion one of the best treatments out there along with Oxygen. If you feel cured, then I'm happy for you. I'd recommend not claiming a cure though. Those of us that have been around are sorta tired of people claiming a cure, yet they're clearly simply in remission. I thought verapamil was a cure many years ago. The first time my doctor prescribed it for me, my CH disappeared a few weeks later. I was over the top happy that I finally found something that worked. The next year my CH came back and I went to the doc for another script of verapamil. It didn't do anything. Absolutely nothing accept give me tachycardia. (A dangerously slow heart beat). I realized thinking back. The first year was about 2 months into my cycle. At the time my cycles ran 2 to 3 months. I realized then, that my cycle had simply stopped on it's on, and had absolutely nothing to do with the verapamil other than coincidence. I've read about others having similar experiences with Kudsu, chriopractic care, hot baths, hotsauce up the nose, having the facial nerves cut, Adkins diet, vegetarian diet, etc etc. and the list goes on. They were not cures, just chance coincidence, or at best something that provided a small bit of help (which we all need at one point or another). What works for one person, may or may not provide help for another. It's great you're in remission, but people will not take you seriously by claiming a cure. You're in remission, that's great and happy for you. Cheers, J

Personally I never want to discourage the free exchange of information and ideas because you never know when the next "Flash moment" will appear. We are all aware that when folks get desperate they are vulnerable to any idea or snake oil salesperson. Evidence of this includes offering unsubstantiated surgical procedures at great cost and risk which people consider and actually agree to. In this particular situation I suspicion there may be a mental health issue in play. Whether the initial poster is attention seeking, manipulative or well intentioned their verbose nonsensical communication style speaks to a lost soul. Now that the story is out each person can judge it for themselves, take pity and move on.

Attacking and demanding attention is not a good way to post. You want input from those who are here a lot, you have had it! State your case and stop whining already. We are open to anything that helps with this hell. And yes, some, including me, have had 10 year remissions only to find that the beast just laid in wait and GREW over that time. I wish you the best and hope that you never get another parasite. Understand that many here have had sinus surgeries and our sinuses reamed out prior to diagnosis. We have had teeth pulled and given up favorite foods looking for relief. We, as a group have done a lot of things suggested by the medical field before getting a proper diagnosis. We, as a group, have helped many people get to pain free status. We began with ONE man! Coming in and carrying on like this is not the way to get anyone to give notice or credit for anything, much less a CURE! You are being very arrogant! Not to mention demanding! Not to mention your mistaken belief that you could get the funding for any 'trial' of your cure. Lots of luck with that one and let us know when you have a trial going. We keep abreast of ALL trials for anything to kill the beast. Over and out.

...hi d-rock...glad ya found what works...this is such an odd affliction that while many have found your same success with vigorous exercise (at least aborting a hit) for some the same is a trigger...go figure! have you tried oxygen?... it's way more convenient... best jonathan

Four hours of typing to say nothing. The parasite theory has been floated before and not well received for obvious reasoms not the least of which it is provable by “modern science”. Being withholding and secretive is the stuff of attention seeking and manipulators. Folks with quality information are generous and forethcoming. Batch set the standard for this and many others have done so to a lesser degree . I am happy you have resolved you CH issue but it seems you have other things to work on.

Sounds like one of those "I'll only tell ya if you beg, plead and recognize me." type posts. I've seen many through the years. I know that if one of the many people I know with CH were to somehow stumble on to a real cure for this crap we have, they would be shouting it from the treetops. No one that lives with this shit would withhold information that could bring relief to others that suffer. The desire for personal gain causing a closed mind??? Here???? Seriously????? The fact the you even suggest such a thing shows how off target your sales pitch is. This place is a direct result of Bob's quest to help others. Because of that, many others here have spent far more than they'd care to admit trying to educate people on options, advocate for our collective and lending a helping hand when needed. To suggest a profit motive here of all places is beyond asinine....at best. I'd better stop here before I earn a posting vacation for my non-PC, obscenity laced tirade kicks in to high gear.

D'K, What you are saying is not sensible. There is no one person here who has some kind of huge following that could produce the results you say you want. You post what you have learned, one person at a time tries it (or doesn't), they report on the results, and that either inspires others or doesn't. Why would you not want to help just one person, if that's all you reached? And very few people here have the clout with a doctor to get an off-brand prescription. This site was created because one person tried an alternative treatment that probably 95% of people with CH ridiculed and/or attacked. He put it out there, and some other people tried it, and it worked for them as it had for him. They really did have to "BELIEVE," to use your word, because it involved obtaining and consuming illegal, hallucinogenic substances. Whatever you have to offer has much better odds of being tried and adopted than that did, if it works. So, I say with no real disrespect, you either have to put up or shut up. That's how it works here. I doubt that anyone is going to beg you.

@Brain on fire same. I started the d3 regimen, continuing to take verapamil and rozatriptan as an abortive. I got two clusters today at work. I’m just tired of this pain.

Just go to a welding gas supplier and purchase or rent a tank. They come in sizes from about 16 inches tall to around 4 feet. The bigger they are the more O2 they hold. I use one that is about 3 feet tall and it lasts me 2 or 3 months with DAILY us for up to about 30 minutes each time. Costs about $20 exchange the tank for a full one. You will have to purchase an oxygen regulator for welding tanks. It hooks up to a welding hose but you can get a fitting that connects to it and allows you to attach a "food grade" plastic hose to it with a small hose clamp. I then just hook up a standard "blow gun" from Harbor freight to it and set the regulator to a pressure that allows me to stick the blow gun in my mouth and feeds O2 at a pressure/volume that allows me to take a normal deep breath from it. You can then take the tank to the same "Brand" welding gas supplier pretty much anywhere in the US, any time they are open and exchange your tank for a full one. I suggest buying a regulator sized for one of the "mini" Oxy/Acetylene welding tank sets used buy Air conditioning or refrigerator service companies. The same regulator should fit ANY size of welding oxygen tank the suppliers have, and the smallest O2 regulator you can buy will put out more than enough O2 for this purpose.. It works best if you always carry your paperwork from the original place from when and where you purchased or rented your tank. I happen to be a welder, so I actually OWN my tanks and have 2 different sizes. And you don't need to tell the gas supplier that you use the O2 for cluster headaches. In some cases it might help, but in other cases they may refuse to sell you the tank or re-fill it. They will say that you MUST use only "medical" O2 and tanks for that. But the truth is that you can follow one of their delivery trucks to any hospital and watch them unload the very same large, standard, all green heavy steel tanks used for welding at the hospital, where they are then taken to their basement "tank room" where they have a whole bank of those "welding" tanks hooked up to feed the entire hospital with "MEDICAL" O2. (What a joke!) By the way, I use NEXAIR for mine. It's the same company I bought my tanks from about 40 years ago, but they have changed names several times.