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Showing content with the highest reputation on 10/15/2020 in all areas

  1. I use the small 5hr energy drinks or coffee type energy drinks if that is all I have. I can use them all times of day and night and they do not keep me awake. I run my oxygen reg at 25 lpm at first and dial it back as I get the cluster under control. If I catch it fast enough with the O2 I do not tend to need the 5hr drink and can sometimes abort in about 5 minutes. the longer it takes me to get on the oxygen the longer the abort takes. I will also add benadryl to the D3 regimen when things get bad for me you can read all about that on this site and XXX(Batch) will be more then happy to help you along with that. Some have help off cycles all together just by taking vitamins. Holding a ice pack on my cluster side also helps me, I don't know if it just distracts me from the pain or really does something but if it works I will try it
    2 points
  2. No Escape Today is like any other, Yesterday, today & tomorrow, all blur together. Day in and day out, everyday the same, I wish I could escape this game. The Beast visits most when least expected, My face drains of colour, and I feel quite infected. Into one eyeball, always just the one, the Beast comes, Blinding and piercing like I’ve been poked hard, with a thumb. My eye seems to freeze as if turned to ice, And the pressure builds as if placed in a vice. My nose starts to run and my eye begins to tear, As my body is gripped with fear. Red hot nails, they pierce and twist in my eye, The burning is such that I wish to die. Sharp blades cut and rip through my skull, As I pace the room and bang my head on the wall. I can feel my cranium crack, As all my world turns to black. For one hour or maybe two, How long it really lasts, I dare not tell you. For all that time, I pace and I walk, Sat on my bed, back and forth I rock. I suck on oxygen and drink caffeine, I can be quite snappy and downright mean. But eventually the nails are removed, as are the blades, And the pain within, all but fades. I am drained, I am spent, My energy is at zero percent. I need water, I need food, But instead, I lay here unable to move. I take one deep breath, and maybe two, Before the next symptoms ensue. Then the crying truly begins, As my body shakes from my bones to my skin. I am racked with hot convulsions in wave upon wave, To this terror I am now but a slave. Eventually, even this fades to a whimper, As my body begins to shiver. Wrapped in a blanket I raise myself up, Sloshing some water into a cup. Today was like any other, Yesterday, today & tomorrow, they all blur together. Day in and day out, everyday the same, Oh, how I wish I could escape this pain.
    1 point
  3. I’ve been episodic for 14 years. Been micro dosing shrooms for the last 8. Been very helpful. Doesn’t eliminate my cycle but changes it. They have been shorter cycles since the regimen began. I’m 4 weeks typically now instead of 6-8 weeks that I was for 7 years before I discovered this wonderful website. My cycle started 2 weeks ago. Normal pattern. Soon as I go into rem I awake to a kip 5. That’s how they usually start. Then they come before I fall asleep and increase in intensity. Strong coffee and ice is my go to. If I’m lucky I can abort before they grab hold. It’s hit and miss. I was at my chiro when they started. He’s a functional neurologist. He wanted to try stimulating my trigeminal nerve with a mini stim. It pulses like a small electric shock. I start on my tongue 15 seconds. Then my eyebrow. Then my temple. All 15 seconds. I do 3 rotations. At 5:30. Then again before sleep. Zero attacks. I can even enjoy a few scotches at night. Cycle is still here. I’ve woken up and feel it starting and do a few rotations with the stim. It stops it every time. Wondering if anyone out there has tried this? Game changer for me. Props to Dr Jeremy Husk at the Georgia chiropractic neurology Centre!
    1 point
  4. Hey Marlon. Welcome! I'm 49 and mine started when I was 27 and I also thought they were migraines or something since prior to that I never knew what a headache was except for maybe a hangover. Anyway, once per three years is not too bad! I'm once a year and this place has had me in remission for three years now! Hang in there and read up all the good info. You are in good company.
    1 point
  5. not very true. actually the wim hof method do help with Vitamin D deficiency, it helps the autonomic nervous system and the Endocannabinoid system function. although I do both the D3 regimen and wim hof method with cold showers.. personally for me - there's no argument WHM does help a lot. I use it to abort attacks faster than when using oxygen. see here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4034215/ https://twinlabphytocab.com/feeling-cloudy-how-vitamin-d-with-cbd-can-affect-the-endocannabinoid-system/ and here: https://www.migrainekey.com/blog/what-causes-migraines-migraines-oxidative-stress-and-endocannabinoid-deficiency/ at least give it a fair try.
    1 point
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