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Showing content with the highest reputation on 10/19/2020 in all areas

  1. As a way to cope with this crazy disease, I thought it would help to imagine my Cluster Headaches as characters in a cartoon strip. I wonder how my imaginary "Cluster Boss" demon must feel when he's working on my cycle. Maybe he's as frustrated as I am! Just my perverse way to find some humor in this horrible disease.
    2 points
  2. Well done Double A. Great artwork! An art major working on is Masters at the Tyler School of Art and Architecture, Temple University, listened to my description of a cluster headache beast that chewed through my brain and eye socket, then sculpted the following as one of his art projects. It won an award so I took a photo of it. Take care and keep up the great art work. V/R, Batch .
    2 points
  3. I'm in Beaufort, SC - between Hilton Head and Charleston, SC. I'm getting oxygen from Resource Medical Supply Group https://resourcemedicalgroup.com/ who have multiple locations in SC and one in Savannah GA. By paying out-of-pocket, its $10 per E (M24) tank (680L), and they just got me an M122 tank (3455L) for $25. So the bigger tank is quite a bit less. I haven't finished my cycle so I'm not sure how much I will be spending. As long as they can keep my on the larger tank for most needs, I think it will be pretty reasonable. By comparison, they told me it would be $100/month for oxygen delivery service if it were covered by insurance. The store is only 3 miles from my house, so the proximity makes it very easy to get to for me. My focus right now is to make sure I can get sufficient oxygen from a steady supplier. They only had a 8L regulator for the large tank, so I will order one of my own. So I'm trying to get both sizes of tanks, and 25L regulators for both sizes.
    1 point
  4. The great part about the regimen is that you can do it WHILE on MM. so you get the best of both worlds. I stick to 50,000 IU per day for an extra one or two weeks when my cycles are particularly bad
    1 point
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