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Hi All, I, for the first time am currently following though with the D3 approach. It's been almost a week and a half of stagnently starting it as I did not have immediate access to all the vitamins mentioned. However I do now. I have my O2 ready on standby. Whilst I always hate to count my chickens before they hatch, there has been improment. ie. From 9 nocturnal attacks, I'm gone down to 2 per night. I have been stealing much more sleep in the last 3 nights, which feels great. I know It does take roughly 3 weeks to kick in correctly as I am still loading as per the D3 schedule provided. However, I must admit that this is the most effective approach and promising results I ever felt in 25 years. The attacks that I do get are less painful, less frequent and shorter already. This is just a note to say a huge thank you to Spiny and Batch who has so selflessly helped me get in the wagon without delay. You guys are just too awesome and help without hesitation. This will come as a shock to all but my D3 levels were at 18.5 at the start of this cycle. It also explained why my nocturnal attacks were so fierce and frequent. I will be doing bloods every so often to make sure it does not ever go to this figure again and will keep it in check. It is just 'suspensful' to visit clinics or labs right now and brings fear of contacting covid. However, I will plan appropriately and take all the relevant measures. I will admit, the hand sanitizers do pose a bit of discomfort, seeing that it does contain alot if alcohol. However, I try to either hold my breath ever with the masks on and keep my hands away from my face. After. While it does evaporate. Even though our skin does absorb some eventually. I carry cooler with Redbull and a portable tank each time I am required to leave my house. So that's cool. So thanks guys. You have no idea how much you have helped me and I am truly grateful. You saved alot of lives including mine and I can feel some sort of ' control' over the beast. This gives me hope which is the only thing I can cling to. Also, if you are out there and like me, hesitant about the D3 approach, I beg you to reconsider and keep to it. Honestly, I have no doubts about it anymore and it is the safest thing I have ever tried in my CH life even though I know I still have a long way to go. Understanding that I will be on this treatment for the rest of my life, cycle or not, The only question that circles my mind right now is once I am 'D3 complient' and out of season, do I still avoid all the triggers? Much appreciated and pain free wishes to all and stay safe. Snowflake

I look forward to your followup Seff! Many thanks for posting this! ATB!

Just to update this post: My serum 25(OH)D came back at 144ng/mL when I did this test back in 2018. Which suggests to me at that time, my D3 was in a high enough range before I started loading for me to be pain free but I wasn't. I think what probably helped at the time in addition to my high D3 levels were the continued use of Benadryl, Probiotics and Tumeric (Curcumin) - 1100 mg due to persistent allergies. ==Current Situation== Throughout the year, I lapsed with the regimen, general good health and nutrition. And about 2-3 weeks ago, like clockwork my CH cycle started. Based on how the year went and the missed D3 maintenance doses, I started loading about 1-2 weeks ago for 8 days @ 100,000 IU daily orally, then an additional 3 days @ 100,000 IU daily sublingually with no relief. However, I stopped and cut back to the maintenance dose of 10,000 IU last week Friday and decided to add Benadryl because at the rate I was taking D3, I should have been pain free. Four (4) days passed on the Benadryl and I began to see improvements (yesterday I was basically pain free). However, I messed up my diet and ate corned beef (which contains nitrates) and I woke up with a headache that has not left since 7am. ==The Plan Going Forward== I chatted with my PCP today (but could not get a serum 25(OH)D test done today and probably won't be able to until after Christmas) With that in mind, we believe my D3 levels are way above 144 as was reported when I had my test back in 2018 based on how often I have been taking it over the past 2 weeks. So instead we will focus on my allergies and anything that can cause a negative immune response. I'm gonna stop taking the Benadryl and start using the following while on the maintenance dose of 10,000 IU of D3 daily: - A 10 Billion Probiotic - CO Q10 - 200mg - QBC Plex (1,250mg Vitamin C, 500mg Quercetin and 50mg Bromelain) - Cerasee Tea for 7 days (Gallic Acid and Catechins) (https://healthyeating.sfgate.com/health-benefits-cerassie-tea-12057.html) I will post again and let you know how this goes. I have also scheduled some time with my PCP to have a full allergy test done so that going forward, I will have an idea of what can and cannot eat because some food allergies manifest in ways that we would never know.

You should be able to access Ketamine treatment, has your doctor tried this? Have you discussed it with him? It's approved treatment for exactly what you describe and highly effective for 50%+ patients. It's a low dose supervised IV drip that gives relief lasting weeks and sometimes months. This is the treatment they took out of clinical trials to give it special approval because it was so effective it was unethical to have a placebo group that wouldn't be able to access it. https://www.nimh.nih.gov/about/director/messages/2019/new-hope-for-treatment-resistant-depression-guessing-right-on-ketamine.shtml

Yes, just as THC is stored in fat cells. If you're a fat stoner like me, losing weight feels awfully good