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Hello, Quick follow up. I've got a new Primary Care Physician and have gotten the results of my OH 25 D2 test. 14 ng/ml which is deficient. Been waiting on the protocol until I had the baseline numbers. I will be starting the D2 (plus cofactors) today. The reason that I had the luxury of waiting for the blood test results instead of just starting is because the busting method was an incredible success! No headaches after the 2nd installment although I went ahead with the 3rd installment to complete the regimen. I have been CH free since 12/10 with very slight twinges that I wouldn't even call shadows. After bust 1 there was definitely a shift in symptoms for the best although a ton of shadows for several days leading up to bust 2. Ginger tea was my friend. After the 2nd bust all was well except for a nice tension headache that was easily attacked with ginger tea and Excedrin. FYI I was about 6 weeks into my episode which are typically 12+ weeks long. Thanks for all the help CH Father, Jonathan and Batch! Your tips in this blog and previous ones have been very helpful and you have made my quality of life so much better. And thank you Mr. Bob Wald for having the courage to advocate for us!! I owe you big time. Peace and love, John

Oh, I definitely agree with that statement Kat! A headache specialist is most always better.

Thanks everyone for the responses. Feels good to know I’m not alone out there. @spinythe hunt for a good neuro is really stressful. It almost seems like I need a headache specialist rather than a neuro. Neurologists seem so set on migraines and ready to push the latest and greatest migraine med on me. Nurtec, emgality etc. when I tell them it didn’t work for me, they are still someone convinced it’s migraines. Ughhhhg

I will go from the worst attacks or 'wakers' at night to sleeping nights and 6 am kick me in the face and through the day ones, usually in cycles of them seeming to rotate forward through the clock. The one constant for ch is it is not consistent. I truly wish there were more headache clinics out there for everyone, once I got sent there, I was diagnosed and immediately felt 'validated' by a team of neuros whose specialty was headache disorders.