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Showing content with the highest reputation on 07/05/2021 in all areas

  1. @trjonas I'm glad you were able to get some releif at last for part of your symptoms. Can I ask how you were able to tell what components of your headaches/symptoms were from the compressed nerves vs CH? I ask because I have clear cluster symptoms and a diagnosis, but also seem to have strong triggers from neck posture/position and neck motion and I have wondered about nerve compression and/or cervical component. Was there any testing or imaging that was able to confirm the diagnosis of compression of the nerves? I have had many nerve blocks over the years with some partial response but with nothing clear or repeateable. My somewhat recent CCH diagnosis (after 11 years) does seem correct for what is going on and I am getting ready to follow the guidelines clearly laid out here at clusterbusters. Like others, it is a long bumpy road. @spp-fan There is a study from the 1990 that does indicate that neck position/flexion IS a factor in cluster headaches for at least some percent of patients, more so with CCH, according to the abstract. [Nuchal features of cluster headache - PubMed]. This seems true for me and has been part of why it took so long for me to get to the cluster diagnosis. And being my first post, I do want to thank the community for all the kindness and effort that is shown across the forum. Thank you, L
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