Leaderboard

I have heard of a few who used them to get to their real O2!!! You can accomplish the same thing with deep breathing and forceful exhale to ditch the CO2 as you hoof it to the real tank.

...$15 band aid for a bullet wound...

I think your reading will clarify some things, so just briefly . . . . You should be using the M tank (with a reasonable regulator), not the concentrator. Did your provider not even supply a basic mask to use with the M tank? Your supplier should also be able to provide you with a regulator that goes to at least 15lpm. A typical sensible doctor's prescription calls for up to 15 lpm (and a typical sensible doctor's prescription also calls for a nonrebreather mask). You probably will do better by buying your own regulator, so you get a higher lpm than 15 and you pay less overall, since you are "renting" the regulator from the supplier. You can get a much smaller tank for portability. You will read about that. The smaller tank requires a different regulator than the M tank. Oxygen is always a necessity for CH, and attacks can become a bit more intractable over time, so even though your current system is working okay, you want to be sure your system is optimized. It's hard to imagine that those Boost canisters will help you. 10 liters is about one minute of treatment. BTW, the prednisone taper you are on is pretty long. Three weeks, with four days at 60mg, is a more standard prescription. Not a huge deal, but you don't really want to be using more pred than necessary.

It is often suggested here to stay on the oxygen for a while (5-10 minutes) after you have stopped an attack, because that seems to help hold off subsequent attacks. You are stopping attacks with 10lpm from a concentrator, using cannula???? You're gonna be thrilled at how much faster it can happen if you have even more correct equipment (in addition to the mask you have ordered). Is there a way that you can get cylinders/tanks from your O2 provider instead of the concentrator? Concentrator O2 has more room air in it than is ideal, and with a cylinder you can use a higher-lpm regulator. Cylinders also address your portability question, since the smaller cylinders are highly portable. There's a fairly thorough discussion of oxygen here: https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/

Yes, getting pain free will make your brain happy. And plenty angry with the ones who were supposed to fix it and failed miserably!! Why? Because they DID NOT LISTEN!! Venting is certainly understood here!! We all get really frustrated with lousy doctors who insist that we have something we don't and refuse to listen to what we are saying. Women in particular face this wall of ignorance. Some fools still think that women can't take pain the way that men can and are just wimps!!! Well, let them pop out a 7 lb'er and say that. Biological clock refers to the natural wake/sleep cycles of our bodies and the hormones released at certain times during that 24 hour cycle. So, you get some that are released when you sleep and some when you are awake. Ergo, the timing of your sleep should be pretty regular to help regulate those hormones. I am so happy to read that the D3 is helping!! It really can be amazing. Just vitamins to get rid of this shite? Yes please! Keep taking it! Have you had your labs yet to see where your D is currently? You might need a bit more to get to home base!!

One simple way that they differ is that while people with migraine can generally go lay down in some helpful situation (dark, quiet room, damp cloth on forehead, etc.), people with to CH are too agitated to do that (and it doesn't help the pain). Agitation -- pacing, rocking, etc. -- is a clinical sign of CH. This is pretty generally true, even in milder versions of CH. Since you say that in some situations it your attacks can last for a while, maybe you have experience. At the most basic level, medical preventives and abortives for CH and migraine are the same, so it might not matter all that much. O2, however, is generally not effective for migraine. The D3 regimen is a preventive that helps with both.