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Yeah, I gave up after seeing the costs and it's a complete joke that you have a device that counts how many times it works then it shuts off so you have to pay again. It's not like it wears out, they just bleed people dry...

Topic phama company buddy they run the world. Its all about money. Thats why we have no proper treatment for CH Not enough of us CH sufferers in world to buy medication of them for them to bother developing 1 for us .

...is ever thus the ongoing frustration across multiple healthcare systems....my insurance would cover triptans at $600/script/mo, yet deny the oxygen that would have eliminated 90% of that cost......

A great big hug A-Z!!! We are puzzles of many pieces, aren't we?

Shaun', if you type Gamma into the search box at the top of any page, you'll see some reported results. As I recall, a couple of people reported having success with it. In the US, it is very expensive, $600 or so every month. Maybe with your NHS it's not so steep. (As I recall, it was far less effective, or plain ineffective, for people with chronic CH. I have also never understood what the appeal would be except for (1) people for whom oxygen doesn't work, since the abort time in the trials was longer than what most/many people can get with an optimized O2 system; and (2) for its portability, which is not an insignificant benefit if it works and the cost isn't prohibitive.) I guess some people have been told that regular use has preventive benefits, and not just abortive. I don't remember if we found out how that worked out.

I wait to be pain free for 3 week b4 a drink as its 1 of my biggest triggers and it gives me 1 of my biggest attacks i have

Hi bosco , im the same i managed to bust mine with LSD had a few days pain free, thought id shut (not shit ) the beast away but he came back to hit me big time , not panicking about it gonna give busting another go but also now been on D3 for last 3 days . Keep smiling through you will get there as we all will