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Showing content with the highest reputation on 08/22/2022 in all areas

  1. I suppose it's odd to many "the want of meeting a fellow cluster head". I think in many ways it's like a child with a deformity meeting someone with a similar deformation for the first time. Seeing that your not the only one. In some ways, I think this gives us strength in knowing that someone else is carrying the same load that we are and that they too are navigating through rough waters. At times I have felt guilty for this want, as it would mean that someone out there was as miserable as me at times. Finding this place has given me eyes that see others like me and that has made a huge difference.
    4 points
  2. You see those nice Medical O2 tanks on my deck? THEY WERE FREE!!!!! Yes. I saw my Neuro last week and requested a script for O2. He gladly obliged and WE filled out a form. Our local O2 carrier is Lincare. The form has a bunch of questions unrelated to Clusters, so we left those blank. There were a lot of blanks! It stated ' minimum of 15LPM with a non-rebreather mask for 15 minutes, as needed for Cluster Headache'. My delivery came in 24 hours!! They will bring however much I require every week. 'How long does one tank last for you? How many next week?' So, should you need it and you are on Medicare, you can now receive it!! I am in heaven. Also in cycle, but this project makes it SOOOO worth the pain. I am delighted to have this cycle and uncover this stupid mystery we have been wondering about. Thanks to all of those who were able to attend 'Headache on the Hill'!!! WE WON!! Ok, time for a massive HAPPY DANCE. Yes, I will Pin this!
    1 point
  3. Fauci Resigns https://www.reuters.com/world/us/fauci-step-down-president-bidens-chief-medical-adviser-2022-08-22/ It's going to take some time to prove, but the COVID-19 Coronavirus and mRNA biologic jabs are contributors to CH. Take care and make it a good day. V/R, Batch
    1 point
  4. 1 point
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