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Showing content with the highest reputation on 02/18/2023 in Posts

  1. I have to second this. I tend to think that I need to get every bit out of my tanks but have noticed that the end trails of the tank are less effective. Not sure if this is because you can no longer adjust the LPM's higher or what but find this true. (at least for me).
    4 points
  2. I think it is just the case that there are times when O2 is less effective, but I'm also gonna mention that many people (but probably not all) find that when the O2 in the tank gets low (which could be from about 1/3 full to less), it works less effectively. It is also true for some people that only consuming caffeine when starting on the O2 (and not at other times of the day) seems to help make the abort more effective.
    4 points
  3. ....as the tank got below half full i used to stare at the flow gauge as a form of distraction.... so i could turn up the decreasing flow as the tank approached empty. there indeed was a point where the knob was at 10 (11 if you are a Spinal Tap fan) and flow just steadily decreased anyway...bears monitoring. sometimes when aborting a night time wake up, with no lights, the sound of the hiss was all that was needed. THAT'S too much experience....sigh
    3 points
  4. ...only a few cycles with the 1 hr wake ups for me..(O2 always worked better than day time hits!). never could figure what was different to cause this oddity ("normally" 3 daily hits) except sleep being a frequent trigger for most clusterheads (no blissful in cycle naps for 30 yrs for me)....and triggers can be transient. ...have you tried staying on O2 post abort for as long as it took to abort.. ...since CH is likely a wonky hypothalamus...which also controls sleep...a connection to CH is not surprising, and more than a few have found improvement of CH with sleep apnea treatment. worth a doc consult....it never occurred to me at the time...
    2 points
  5. ....an e tank would last me approx 2-3 hits and a m-60 approx 5-6. if it didn't work after 15 ins i'd quit to save O2 and ride it out (or spend a precious Zomig NS)...always worked better with an energy drink (never more than 2/dy)...
    2 points
  6. For me each cycle has been different. Most times 5-10 minutes is all it takes. However..... there have been cycles where aborting took longer than the norm. Personal best, if you can call it that, was over 2 hours using more that 2 E tanks and 2 Zomig nasal sprays. A version of hell on earth if there has ever been such. Frequency and abort time dictate volume. How long are aborts taking now vs. past experience?
    2 points
  7. Yes, I have essential tremors. It's mild, affecting my right hand when I try to do things requiring dexterity. They don't happen when I'm at rest. Caffeine is an amplifier for mine. Same for my mom also has CH and tremors. Hers are worse than mine though. They got worse with age. Neither of us take meds for them.
    1 point
  8. Naw. Your experience helps the rest of us... Odd but I sleep to a white noise via sleep buds that is very similar to the hiss of a low tank. Cathartic to me. Odd ball i know....
    1 point
  9. I had the same 'shadows' thought as @CHfather, since what you're describing sounds like it might fit in that box. Saying that makes me feel like I'm a 'shadow boxer'. Wow that's such a groaner of a lowest-form-of-humor pun I hope the worldwide eye rolling it unleashes doesn't trigger any CH attacks.
    1 point
  10. Semi, I'm not sure this will be helpful, since you've had CH for a long time and so you might be describing something more unusual than what are called "shadows" here -- ongoing pain at a lower level than a full-blown attack. There is some advice about shadows (under the heading Shadows) in this document, toward the end -- https://clusterbusters.org/forums/topic/6213-basic-non-busting-information/ -- and there is a lot of discussion of shadows in various threads. You can see that discussion by typing shadow into the search bar that is at the top right side of every page. There's a lot there, but you can skim the summary text to get a sense of what the posts cover. If you're just looking for SUNCT/SUNA information, I hope someone will respond directly, but you can also see the posts about them by putting SUNCT into the search bar.
    1 point
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