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Showing content with the highest reputation on 02/25/2023 in all areas

  1. Just a few unreliable thoughts . . . As Bosco' says, I'd try to avoid the triptan. It sounds like you are doing that the best you can. Many people find that ginger helps a lot with shadows. Ginger tea (store-bought made from real ginger, or made yourself by peeling and boiling some ginger (look up specifics on google)); ginger candy (Ginger People or crystallized ginger); non-alcoholic ginger beer. Excedrin helps some with shadows. Some people find that frequent use of caffeine reduces its effectiveness. You gotta do what you gotta do, so this is again just a thought for you to consider. Basically, try not to drink it when you don't need it. You might try some Benadryl, since sometimes persistent CH stuff results from allergies. I think Batch would suggest trying Quercetin first, because it's less drowsy-making. He suggests 3 grams/day, but you might start less than that (or not). Some people stick with the Benadryl (roughly 25 mg four times a day, as tolerated). I'm not sure that O2 is good for shadows. I just don't know. Haven't read of many people using it for that, but if it has worked for you, one possible reason it might be less effective now is that O2 is (for many people) less effective when the tank gets low on O2 -- maybe 1/3 full, or less.
    4 points
  2. Hi Johnny, The triptans are highly suspected to increase attacks and durations of cycles. I don't touch them unless on my death bed as they have extend my cycles and blessed me with many more attacks per day. Sometimes the effectiveness of prior aborts and prevents just simply become immune to the cluster bunny.. I do have to tell you that the topomax/Toprimax most likely wont help much unless your looking to fog out whilst being banged up. Verapamil can help a bit, but the D3 that you started is what I would consider to be much more effective. I am always so mystified by remission times of the duration you speak of and can't help but ask what you were doing during that time? Maybe your just one of folks that get the longer time off of which I am happy for you. Sure seems like it would be harder coming back to the pain after such a long remission so for that I am sorry. If you haven't already, do have some lab work done to see where your D levels are at along with your calcium (you may need to load a bit longer). The D3 reg takes a bit to kick in so stick with it and do your best to avoid the triptans. Lastly do read the blue banner (new users read here) for additional methods of treatment. I am sure at some point the more knowledgeable will come along and try and help you!
    3 points
  3. We all find our own little 'method'' that works best for us, at that point in time.
    1 point
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