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Yes, with the hospital stay and calcitonin they were able to get my levels to where they needed to be before something really bad happened..... I felt compelled to come to this forum that has helped me so much in the past and give this warning.....please get regular blood tests if you are in the D3 regimen like most of us are

Thanks for the post and the reminder that these tests are an integral part of the D3 regimen and very important!!

Hello fellow cluster sufferer here I recently spent 5 days in the hospital because of the D3 regimen. I followed the regimen down to the T and the doctors said my kidneys were actively failing. They said my calcium levels were critical in my blood and spent a week trying to get them down. I have been on the D3 regimen for about 10 years. I am not here to blame anyone, but I am here to tell y'all to make sure to take your blood tests and get checked out

This is what Batch has written about testing: "You will need to see your PCP/GP for lab assays of your serum 25(OH)D3, calcium and PTH. Adjust the vitamin D3 dose to keep the PTH serm concentration between 20 and 14 pg/mL and still keep the calcium serum concentration within its normal reference range to obtain the maximum therapeutic effect. Once at a stable vitamin D3 dose, annual labs are sufficient. It’s important to drink 2.5 liters of water during the 24 hours prior to the blood draw for your labs. Once you’ve established a vitamin D3 maintenance dose that keeps you CH pain-free, an annual set of assays is sufficient." There is more information about why these tests matter at Cluster and Migraine headache treatment protocol - Sept 2023 | VitaminDWiki

Hi Chrissy, a cycle with unexpected changes in what had previously been consistent, reliable behavior of the attacks, such as the time of day they strike, duration, how many attacks per day, etc., is a phenomenon I've seen reported aplenty, and I've experienced this myself. Just when a pattern has been seemingly cemented into place, stuff will suddenly out of nowhere get all switched up. Long remissions after many years with CH is common enough too. Many get caught off guard when the CH does return following an extended remission, having believed their CH had completely burnt out.