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Showing content with the highest reputation since 03/06/2025 in Posts

  1. Ummm yeah, I reckon I'm up for the 80 mile drive to hang out with a bunch of clusterheads!!
    3 points
  2. CLUSTERBUSTERS 20th ANNUAL U.S. PATIENT CONFERENCE September 11-14, 2025 We are very excited to celebrate our 20th Anniversary Conference with you. Join us for this long weekend of support, education, and community in Grapevine, TX near Dallas/Ft. Worth. Check out the event page for information about scholarships, tickets, programming, and booking a room at Embassy Suites by Hilton Grapevine DFW Airport North. The agenda and more details about the conference will be shared soon. This is a great opportunity for those living with cluster as well as caregivers to socialize and connect about shared experiences in safe spaces. Saturday’s dinner and award ceremony theme will be the Roaring 20’s for those who choose to participate. This conference is also appropriate for Healthcare Professionals who want to learn more about cluster headache and obtain CMEs for their education. We hope to see you there! For more information and to register: https://cbdallas2025.planningpod.com/
    2 points
  3. I'll be there. My wife has volunteered to work/help, but she hasn't heard from anyone yet about that. Anyone know who we'd contact to see if we need to arrive a day or so in advance?
    2 points
  4. I was just planning the trip, hotel reservations made and watching flights. We will take the opportunity to explore more of Texas beforehand.
    1 point
  5. While “planning on” attending doesn’t always thoroughly guarantee it will actually happen, Jeebs (staying true to form and referring to himself in the third person) plans on attending! Psssst....I have to whisper this, but last I heard, Dallas Denny is rumored to be making plans to attend also...!
    1 point
  6. Last year was my 1st year attending. I had never met anyone with CH before that conference. It was great being around everyone. I learned a lot and hope to attend again this year !
    1 point
  7. @MiloS, thank you for this input! I think virtually everyone here would recommend that you start on the D3 regimen right away. It might or might not help during this cycle, but it will help you with future ones if you stay on it. D3 regimen - ClusterBuster Files - ClusterBusters And split those triptans: Getting partial doses from sumatriptan injectors (Imitrex, Imigran, etc.) - ClusterBuster Files - ClusterBusters And maybe try a 5-Hour Energy or some other energy beverage as you start with the O2. This speeds up aborts for many people. Consider the mask made for CH that many people say shortens their O2 abort time by 10% or more. ClusterO2 Kit - Clusterheadaches.com - Online Store And at least keep busting as an option (click on New Users - Please Read Here First in the blue banner at the top of each page).
    1 point
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