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Showing content with the highest reputation since 05/05/2024 in Posts

  1. Join the PSYCHEDELIC OUTLAWS: Virtual Book Club in June to meet the author and fascinating characters who are revolutionizing the treatment of chronic pain. Who are the outlaws when regular people use illegal drugs to escape brutal pain, while respected institutions plunder for profits and prestige? Register to join 4 enlightening and entertaining, interactive events. For more information and registration: https://cbbookclub.planningpod.com/
    2 points
  2. Positive Results: Psilocybin Reduces Cluster Headache Attacks A new extension phase study from Yale led by Dr. Emmanuelle Schindler proves that repeated, low-doses of psilocybin lead to a significant reduction in the number of cluster headache attacks. After doing a 3-dose pulse regimen of low-dose psilocybin, cluster headache attacks went down from a baseline of 18.4 to 9.8 cluster attacks per week. For more information: https://conta.cc/4d8NI22
    2 points
  3. As a note, I have had what I just assume are angry shadows, hitting into the 8 area during normal shadows for a few minutes then dropping back to the normal annoyed shadows.
    1 point
  4. For me, it has been: prednisone 5mg oral tablet - 13 day taper 12 tabs x 2 days (60mg) 10 tabs x 3 days (50mg) 8 tabs x 3 days (40mg) 6 tabs x 2 days (30mg) 4 tabs x 2 days (20mg) 2 tabs x 1 day (10mg) Stop
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  5. hiya Mox...good to hear from you...very happy for your success! ...yup, that is exactly what happened to me on about 3-4 cycles over 30+ yrs. the first time i was sure i was dead with a stroke. 0-10-0 in 1-2 minutes. took me to my knees. once i knew i wasn't dieing i wished for that kind of cycle every time....quick and gone and get this shit out of the way fast. the difference for me was no other CH symptoms, except maybe the mental/physical fatigue intense pain causes. ...i dunno what SUNCT is so can't comment there. didn't seem to me a different HA type, same tho more intense pain, in exactly same spots...just a different presentation of CH... best j
    1 point
  6. Same as above, sunct sounds like it fits, seems like you are getting to know that side of the primary headache family tree, which sucks.
    1 point
  7. If I recall correctly, the last one I did had me at 60 for a week and then tapered off.
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  8. This sounds like SUNCT; which is characterized by really short but painful headaches
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  9. I was wondering how many of you know that their is a relationship between some cluster headache sufferers & sleep apnea? My wife suffered from cluster headaches for about 15 years. We thought that it was because of "El Nino" weather patterns as the headaches correlated with these weather events every couple of years. Every neurological test & study she went through yielded nothing...no abnormalities! Until one recently bad episode last year, I contacted a pulmonologist to set my wife up with a sleep study. The results of that study indicated she had severe obstructive sleep apnea. She started using a bi-pap machine with sleep & the cluster headaches immediately disappeared that very night! The pulmonologist stated that he has seen dozens of cases just like my wife's! I rarely see this discussed on Cluster Busters.
    1 point
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