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....well, it's a given Shaun is quite batty, but as for myself...i am perfectly normal since the transplant...

I keep them in the car, the office and any other place I might be going to. I even take them on vacation with me. I figure they do enough work for me they deserve a little vacation too.

Just completed survey

Again, thank you all! Some updates — O2 concentrators, while not ideal, are DEFINITELY aborting my headaches. Used 7 times with 100% success rate after ~10-15mins of use. Half of these were headaches I woke up to mid-sleep, not onsets. Haven’t used for a “monster attack” yet, just standard CHs. Intensity may matter considering sumatriptan nasal spray failed for my worst “monster.” (I have 3mg injectables in place of nasal spray, now, but have not used them). To repeat a common CH phrase: “best thing since sliced bread.” Really. I’m sure this is common, but now that I have a taste of O2 and sumatriptan, my tolerance of untreated attacks has gone way, way down. Haven’t had to use the 100%-O2 canisters yet but will be taking your advice and asking for larger canisters nonetheless.

I appreciate i am very late to this conversation but I just want to drop in that red bull is now a key part of my armoury the moment the dreaded knock kicks in. I will post a detailed synoptic of my experience in coming days but for anyone suffering right now, seriously consider taurine. To me it's a life saver but I do have to say we are all different and some of us have intolerances and other complications so do be conscious of your personal needs. But if you don't have an issue with caffeine and taurine give it a go. Pour on lots of ice and gulp it freezing cold so it hits the back of your throat which is the nearest you can get to your pituitary gland without poking a hole in yourself. The cold soothes the brain and the taurine does some magic and at least dulls the agony. X

Hi everyone, I'm curious if anyone here has explored using AI or digital tracking tools to help manage cluster headaches - particularly for logging triggers, medication timing, or sleep patterns. I've been experimenting with a few apps and found that combining them with tools like voice-to-text or reminder systems has helped me stay more consistent. Would love to hear if others have tried tech-assisted approaches or if there are any apps or tools that have worked well for you. Always looking for smarter, less stressful ways to manage this condition. Thanks in advance!

I was a management consultant for many years. As I said to a former colleague the other day, ChatGPT is a better consultant than I ever was -- in less than a minute, and for free. I don't have grandchildren, but Chat is becoming like my grandkid, where I keep saying to others, "You'll never believe what Chat did today! Isn't this fantastic!?!" Still a bit of a jokester, though. I had it colorize an old black-and-white photo of my father the other day. Everything looked right, except that it was someone else's face! I pointed this out, and Chat said "Oh, gosh, you are right. Let's try that again." It did. A different face, still not my father's.

I'm loving my AI tools for web dev. My image assets, logo's and scripts are better than ever. You have to move with the tools because everybody else is...

Double barrel meow meows!!! All is rt with the world now

Sod off @jon019your mad as a hatter

Welcom to the CH club, we are all a bit mad in here, but we have lots of knowledge, so ask questions, tell us your experiences

I can’t say I’ve tried AI tracking tools, but it sure sounds like a good idea (thank you), while we wait for AI to figure out the 100% effective for all CH’ers, zero side effects treatment (some of us tapping fingers impatiently ).

...personal experience for me was 1500 mg taurine minimum to be effective (as energy drink ingredient...never tried as a supplement) best jon