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Hey all! The stabbie critter is perfect Jon! For what it's worth guys, I am happy to be among friends! I moved south about two years ago. Yes, I've been told I did that wrong too! I want no more snow. So, Anatoly and I are living it up! It is great to see familiar faces!

Grateful for all of you and all the great advice you give to our community!!

I haven't posted anything about this ongoing project for a few years! For context, these verses came together many years ago (2015 if I remember correctly) in the span of a few hours.....a clusterhead from Cali put up a post in one of the Facebook clusterhead support groups explaining that he'd written the first verse (to the tune of "Sound of Silence" in the style of the group "Disturbed"......he challenged the group to collectively write the remaining verses. I had the privilege of watching as another 7 verses were added to the thread over a few hour time frame! So, I copied it all down and over the past 10+ years I've played with it, taking the liberty of rewriting in some cases to make the words fit the tune better, and reducing it to 4 verses which I actually (attempted) to sing at our 2019 patient conference in Dallas! But try as i may, I never could come up with a 5th verse to match up with the original tune. At this past years patient conference (in Dallas once again) I shared the lyrics with a longtime Facebook friend who lives in Bermuda who loved it and told me he had a good mate who might be able to record it for me when I figured out a last verse! When I got back home from the conference I was feeling inspired and reached out to a few folks for input and finally came up with the last verse.....which wound up being the 3rd verse and the original 3rd became the 4th. So, fast forward to today.....my Bermuda friends mate has had the lyrics and a backing instrumental that I found on YouTube but as yet he's not come thru....now I've begun the process of going to individual small recording studios in my area area, relating the story to them, and hoping they might have worked with a vocalist that could pull off a "Disturbed" version....no luck thus far and I'm thinking I'm gonna have to drive down to big D but fortunately I know a guy with a studio down there where I recorded years ago.... Anyway, that's the backstory, hoping to have a wrap on this project by this year's conference.....I've sent it to the Boss and he sez we can post it on clusterbusters YouTube channel... Hello Clusters my old friend You've come to haunt me once again You rudely wake me while I'm sleeping My nose is running and my eye's weeping And the demon that was planted in my brain Still remains I feel the pound Then shadows From restless dreams I wake alone From the pain I rock and moan Search thru darkness for the table lamp As I whimper with a cranial cramp Then my eye was stabbed In a flash with a red hot knife I cried in fright I felt the pound Then shadows Over many year's I saw One hundred doctors, maybe more Doctors listening without hearing Doctors treating but not healing Doctors writing scripts That seemed like living hell And nothing helped Erase the pain Of Clusters The unafflicted cannot know The shadows like a cancer grows Hear my screams that they might teach you Feel my pain that It might reach you And my tears Just like acid raindrops fell It's bloody hell 'exquisite pain Of Clusters Then I busted, fought and stayed Of the beast I'm not afraid And the Beast lashed out his warning Feel the burning and the pain swarming And the Beast said your head Will be bouncing off the sheetrock walls I KICKED HIS BALLS! He feels the pound Then shadows.......

So, one thing that is widely accepted as true here is that triptans make cycles worse and longer. Seems like that is surely happening with you. Injections and nasal sprays are the most efficient forms; pills don't do much. But no matter what form the triptans are in -- they are highly likely to be making things worse. What you want -- what you need -- is oxygen!!! That is the game changer (because among other things it reduces your need for triptans). How much verapamil are you taking, and in what form (immediate release or extended release)? Many non-fans of verap here, but there's no doubt it can help some -- in the right form (immediate release) and at the right levels, which are usually considerably higher than doctors prescribe, and which have to be gradually worked up to with testing to be sure there are no bad effects. Verapamil takes time to get into your system and start working. A course of prednisone is often prescribed when verap is first started, because the prednisone can hold off some or all of the pain while the verapamil takes effect. Not a standard prednisone "dose pack" (although that helps some) -- a longer and stronger treatment. For an overview of things you can do, I would very strongly suggest you read this post and the replies: Basic non-busting information - ClusterBuster Files - ClusterBusters In addition to oxygen, which should be the first thing a doctor prescribes, most folks here are primarily committed to two things that your doctor probably won't know about: (1) "busting," which is using psychedelics to stop CH cycles and prevent new ones (you can read busting basics at the very end of that post I just linked to), and (2) the vitamin D3 regimen, which has helped many hundreds, if not thousands, of people with CH to reduce and avoid cycles (there's a link to it within that linked post above). Of course, there are also the newer CGRP medications (Emglaity and others) that help some people. In short, there are lots and lots of things you probably have not done that will make your prevention and treatment of CH much more effective!!!

...so glad Spiny is back peeking in....Hotel CB:" you can check out... but you can never leave"

@FunTimes Spiny has been locked out for a spell....but I just got an email from her saying she got in this morning and browsing the board so I'm sure we'll see her posting soon!

Thank you to all and lol @Bejeeber!!! Jeebs, in 1972 I went to work twisting wrenches at a little vw repair shop in Shawnee, Oklahoma.....it was there on.my 1st day that I met, and later became biz partners, with John Robert (Jack) Thorpe who just happened to be the youngest son of the great Indian athlete Jim Thorpe!! Jack was several years my senior (me at 25 and him at 37)....within a few hours after meeting Jack we were bs'ing and he said to me, "Chief, I'm gonna tell ya an absolute truth that you can take to the bank.....The older ya get, the faster time flys"! I have found that statement to be 1000% accurate!!! At my age, Jan 1st feels like it was just a few days ago!!! Of course, at my age, my short term memory is in the shit can as well so maybe it was just a few days ago!! Lmao! When Spiny and I spoke on the phone the other evening (she's just a couple years younger than me) we agreed that we both suffer from CRS=can't remember shit....we both.lost our train of thought several time during our marathon hour long plus conversation and the one of us would have to remind the the other what we'd been talking about!! Im tellin ya, old age ain't for the faint of heart!!!

G'mornin all!! I was doing a search for something else yesterday evening....this is from 2010 just a few weeks after I met Hollywood Dan of NatGeo fame....made me lol last nite as much as when his Bride Lee Ann originally posted it... I did Verapimil/Lithium cocktail for years. It caused constipation, the trembles and tears. The doctors and pharmacies, well they can just suck it. No longer will I take their pills by the bucket. They took all my money, they cut on my head. Leaving me wishing they'd killed me instead. My pulse was forty eight bpm at the best. My body shut down, it demanded a rest. With the help of my wife; include that I MUST. And with the help of this board...She learned me to bust! MUSHROOMS, THEY'RE NOT JUST FOR BREAKFAST ANYMORE! Dan