Lee_Ann

Wow, that sounds cool. I'll have to put my chef's hat on and come up with a burger. If I do and they put it on the menu, I'll send the money to Clusterbusters. Hey, this might be a good challenge for everyone to try. Lee Ann

Thanks Bob, I found it and sent out some invitations.

I am a member of Clusterheadaches group. Is that the same one or is there another one called Clusterbusters? I just sent out a few friend requests to the names I recognized. Please send me a friend request. Lee Ann

So glad to hear you are doing well.

Glad your okay Denny. We seem to have missed most of Tropical Storm Hermine. Got a little rain, but not much. Last week we got some pretty fierce winds. The neighbor's trampoline blew over their fence and into our front yard. LOL I went out back to gather up all my patio cushions and then looked out front again and it was gone. The next day we saw it about 100 yards behind the neighbor's across the street. We never told them where it went. I wonder if they ever found it. LOL

Keeping our fingers crossed that he will soon be pain free.

Hi Shellie, Dan is Hipshot. LOL The mouthpiece comes with the mask. Or should, I believe. Have you received your mask yet? Lee Ann

One more thing about the Alcohol, and correct me anyone if I'm wrong, but in the BOL trial, the only participant who didn't get relief was the one who continued to drink alcohol. I don't mean to be preachy, but just sayin.

Hi Angel, I did notice that difference in our stories. And maybe that is why it is taking a little longer. I am so happy he is med and alcohol free now. Hopefully this will make his bust more successful. ;D Lee Ann

Hi Angel, I'm just now reading your story. I've been busy with my own chronic hubby, Dan. This is all new to us too. He started dosing April 28th. He has taken 7 doses of mushrooms. They have all been 1.5 grams. The first few doses were spaced at 5-7 days and then he tried to stretch them out as far as possible. He was completely detoxed from all meds when he started. He didn't have a drink of alcohol until July 4th. By that time he had had many consecutive days pain free. Just keep after it and I think you'll get there. Lee Ann

I either threw away the mouthpiece or misplaced it, so Dan hasn't tried it, but I'm going to order another mask, just to have a backup on hand. He has had 2 attacks since July 1st, so not having to use much oxygen lately. Clusterbusters Rock!!!!! Lee Ann

Great pictures Bob!!! What a good looking group. Thanks for posting. Lee Ann

Hi Shellie, I don't know if Dan told you this or not. I don't think he mentioned it in his speech, but he did not have the proper mask until a couple of weeks before he started busting. As soon as he got the mask, there was a definite improvement in abort time. Before he got the proper mask, the oxygen sometimes worked and sometimes not. After he started busting, it worked even better. If he didn't have the proper mask, I don't think his bust would have been as successful. The proper mask and his complete detox from all medication made the difference in his success in my opinion. Definitely worth a try!!! Remember, get on the oxygen as soon as you feel an attack coming on, and stay on it until it's completely gone. Good luck!!! Lee Ann

Awww, thank you Dave, ahem I mean Dan ;D

Good for Mick!!! I never thought about anyone wanting to hear how I felt. Several people mentioned it later. It is a very hopeless feeling watching someone you love in that much pain and knowing there is nothing you can do for them. :'( I suffered with him(silently) for many years until I started talking to people on this board. What a relief to find such caring supportive people here. Thanks everyone for all your support!!! ;D Lee Ann

Daniel, yes Dan is a real clown. He told some stories that I didn't know he was going to tell.

Hi Eddie, It was so nice to meet you and hear your success story. Keep in touch and hope to see you again soon. Lee Ann

Hi Marsha, It was so nice to meet you and such an honor to be asked to share our story. Looking forward to seeing you again next year in Chicago. Keep in touch. Lee Ann

LOL, You are so funny. Dan steals all the lighters in our house. I started buying girly lighters so that he wouldn't steal them. The last one I bought is pink with a girl's face on it. He wouldn't dare put that one in his pocket. Hope you are having a great day. Lee Ann

Try this link http://s942.photobucket.com/albums/ad266/shinydellgirl/

Oops!!! Didn't work. LOL File size too big.

The "Texas Bunch" at Rock Bottom Brewery in downtown Portland

Hi Shellie, It was so good to meet you too! I am praying you will find some painfree time soon. Hang in there, you can do it. Looking forward to hearing about your progress. Lee Ann

Hi Daniel, It was so nice to meet you. Dan says to tell you "hey". Maybe I can get him on here soon. We look forward to seeing you again in Chicago. Lee Ann

Just wanted to say thank you to everyone involved in putting together this meeting. Dan and I had a wonderful time and met some of the nicest people in the world. Hope everyone can make it to Chicago next year. Believe me, it will be well worth your time. Special thanks to BobW, Funguy, and Dr. Halpern. Thank you for everything you do. Your work is priceless. Also, special thanks to everyone who attended. It was so nice to meet you all. Lee Ann