Lee_Ann

I feel compelled to write this for anyone considering the ONS. IMHO, it is nothing more than an implanted TENS Unit. It may work wonders for migraines, but I seriously doubt it could stop the pain of a clusterheadache. The pain is simply too great to mask with electrical stimulation. My husband Dan had the trial in April and it did not work. We were under the impression that it would prevent a clusterheadache. I don't believe this is the case. I think it is designed to be a counter irritant, something to mask the pain. The surgeon won't tell you this before, but if you are considering this option, I would be sure and ask if this is the theory behind it. And all that said, I know it is hard to say no to something that a dr tells you is 90% effective. If Dan had to do all again, he would definitely choose the alternative meds before trying the ONS. Lee Ann

Happy Birthday Ron. Hope you had a great day!!! Lee Ann

This is so sad :'( My prayers are with Will's family and friends and all those who suffer this horrible disease. This pushed me to make the reservations to Portland. I hope to see you all there. United we Stand. Lee Ann

I have been wondering about travel too. I really want to go to the convention in Portland. Can you take oxygen on the plane? Will there be oxygen available at the convention? BTW, I am a fan too and yours too Ron!!! Thanks, Lee Ann

Hi Darrin, So glad you found this place. I am new too but have already met some wonderful people here and as you know from my PMs have already started the process. Dan's attacks have improved significantly after two doses. Oxygen is working better than ever. You must get a non-rebreather mask. It can be ordered from ch.com. Best of luck to you and wishing you PF days in the future. Lee Ann

Happy Birthday Bob!!!! Thanks so much for everything you are doing. You are our hero. Lee Ann

Excellent presentation. Thanks for telling us about it Denny. Thanks Bob for everything you are doing. Lee Ann and Dan

Hi MrsRobinson, I am also a supporter of a chronic. I just posted my story. It is right below your post. I am waiting to read your next post. Is that where the video is? Your story sounds just like mine. I am mad as hell and ain't gonna take it no more. This little Texas gal is fully loaded and prepared to fight the beast to it's death. Good luck and wishing you all pf days. Lee Ann

I just ordered the RC seeds from Psychoactive Herbs. Hopefully they will arrive soon. Lee Ann

Hi BJ, OMG!!! 2 Chronics!!! I can't imagine what you are going through. I sent you my email. I am so looking forward to hearing your story. Thanks so much. Lee Ann

Hello, My name is Lee Ann and my husband's name is Dan. We live in Texas. I still remember the 1st attack in 2003 that woke us both up in the middle of the night. He has been chronic ever since. I found the clusterheadaches.com website and immediately recognized the symptoms. We went to three drs, two of which were neuros, in our small town. I can't even remember all the drugs he took, none worked. He was in a car accident in 2005. He had a cervical fusion because of numbness in his hands. The surgeon said that he had bad osteophytes that were causing the head attacks. He was pain free for 2 weeks. We thought he was cured, but no. The same surgeon then severed both occipital nerves. Maybe a few weeks of no pain, but it came back. In 2007 we found a headache specialist in Dallas. Finally, someone that knew what drugs worked. He took Verapamil and Lithium for 2 1/2 years. He also prescribed O2. For 2 1/2 years, no head pain, but he could hardly get out of bed in the mornings. Chronic fatigue, constipation, and hand tremors. And then the head attacks started busting through. The dr said there were no other drugs to try and recommended ONS. Had the trial on April 9, this year. Guess what. It didn't work. Well, we are ready to try clusterbusters and we need help. Forgot to mention, that some time ago during the past years, we tried clusterbusters, but it didn't work because we didn't do it right, like BobP. haha I know most of you and your stories, because I lurk around a lot. Sorry for the lurking, but just didn't feel like I had much to add. So my question is, where can I find the file that recommends the variety to try? Also, I think that our plan of attack will be RC seeds until we can get the shrooms harvested. Any advice? I appreciate all the advice and help we can get. We've touched our last nerve, pun intended. Thanks so much. Look forward to hearing from all of you. And thanks BobW for answering my private message. Lee Ann