tingeling

How great when life is good, that`s the most important thing

These kids ;D My daughter that little..... She wondered what this sticker was on her bike. I said it was for the insurance company, if it should dissapear. She mondered what insurance was.... I explained if her bike f ex get stolen etc etc, she will get a new one from insurance. She lit up in a big smile and said "How clever!! That sounds very fun!! New bike for me." I tried to explain no, it has to be stolen or broken. " Yes, we can fix that, or what?" Eeeeh, noooo WE can`t!! Oh my... What tendencies are this!!! But i gotta laugh. She`s so cute, it smells trouble ;D;D

Thank you Alleyoop, and the same to both of you

LOL ;D True words ;D Days like that make life go on, remember that feeling

I never been good at open up for compliments and caring. So i think i just gonna say thank you very much for your kind words. Sounds weird, but the earlier me, having a positive respond to my own person, would make me run in the other direction. Decided to start giving people a chance again. I feel as if i found a meaning with all that has happened to me over the years, it gives me an excellent opportunity to be there for all kinds of people, in many situations. To try do this gives my life meaning now, and in time, i think i will find one way or another to do what i have in mind. Thank you Ron BTW, seen Alleyoop lately?

LOL ;D No, but i would like to. But if i start think of it, i get scared as he.. to be honest. I can`t not be able to dose.

Hi Welcome First time i got hit, i thought someone hit me with a knife in my head. Got very confused, no one behind me.... Well well Nothing to be afraid of, the RC seeds. Can`t see why wait? Good luck and painfree wishes to you

What a wonderful man you are Ron.

Do you have a network where someone could give you a hand? We are here anytime, if you lived near i would come and help you. Wish i could. Let the pressure out here, it helps allot. Your not alone

Thank you ladies I was a CCH over night. Right after birth. I was not given any meds during birth so i think it had to be the hormonal changes. Or i don`t know. But since i never had longer breaks, i don`t know about pregnancy. I can`t risk 9 months with 9 attacks a day... I have a child, she has to be taken care of the right way during that time. But guess it will be exiting this time, to see how long i stay out of cycle

How, or did, pregnancy affect CH? iu understand you both had CH before pregnancy? Are you CCH, or ECH?

Hi Since i did those seeds and shrooms, life has been taken a turn. It been good ever since starting this treatment, but now it once again, taken a turn. It got out of cycle. When you can keep your home tidy, or at least as tidy as you want it to be. To go out the door on impulse, even without your "survival gear", which i btw don`t know where i put at the moment. I go to gym without it being a fight, and to have the strength so it doesn`t break you down, but build you up. Do activities with the family, be out meeting other people. To participate in society, not feeling like some sort of appendage outside society. No need to plan and save strength for doing things. It feels so easy!! Life feels so easy now. With it`s ups and downs as it should. I love it and enjoy it. These routines in our daily life is the beauty of everyday life. It`s what makes it an everyday, it`s what you long for when your not able to do it. I been bumping into people lately, people i occasionally bumped into over years, who i appreciate and share history with. People who is not likely to just bump into. I had one of them for dinner, after he literally tumbled in my terrace door this weekend. LOL ;D What a funny man. We both been to different child care centers, that make some sort of bonding. We live very different lives. That evening he was himself. It was like time stood still, a golden moment. We talked about past, he is a man who doesn`t even admit having something called feelings. It was nice. What was even better, he talked about future. Good sign i think and hope. Kabooms post made me think of past, my old friends visit made me think as well. It could have been different. I`m lucky, because i`m happy. This condition was truly a blessing to me, i`m happy and content it was treatment who made this. I hope more and more in this world with this condition, will find this place and be helped back to live fully, to have they're everyday back. Wish you all the best Hug from me

Hi Welcome Your not flying solo, your here, and that`s not solo!! your with an CH fighting army. So hang in there and ask what you need to ask, vent what you need!! Look forward to read your posts Painfree wishes from me Tingeling:)

When i go hunting shrooms, i look at this shrooms, this tiny tiny natural thing. Sometimes almost feel like crying. Everyone who come along me had to listen to this rant, poor folks... But they take it very serious. When this mushrooms make our life worthy again, they take away pain so strong that no painkillers can take it away. They save life. To me this is the only thing that could take this away, or help at all. I hunt them so i can live, i try to survive. How can this be illegal.... Looked at from a Human ethic view, this is a violation to the human rights, they allow torture.

I would see this dancing as well. Another version of dancing in the rain, or what? LOL ;D Your right. I do what i can to stay as healthy as possible, so i will be able to care for her the best way, learn her how to cope. If necessary. And pray for BOL to be legal. Thank you

I`m so scared of flying, because of CH, that i actually scared of flying to next years convention already now..... But, followed one of the Bob`s advices here last flight and it was ok!!

U know, yes it certainly is. And i`m very sorry for this. I`m really not used to people getting concerned because of me. No one ever been concerned about me, and people i have around me are used to that i always manage on my own. When i came home yesterday, my plan was to answer, but i was so tired i just had to get my head toghether. I never had this kind of family. I been thinking of this all day, i really hope i will meet you folks. I love this place, and i love the people that makes this place. I`m so sorry.... Really learned something from this.... Thanks again, you are all amazing people:)

Thank you Ron, and everybody else for caring. I care for all of you as well, didn`t mean to be unthoughtful. I apologize for that. I just been very tired, what i just been in, was very draining and time consuming, and it got acute a late evening. In future, i will make a sound, at least

Hi I`m sorry...... A person close to me is in a very bad situation. I followed this sit for many years now, we and in the end for long periods, it`s been only me helping out. How strange how people choose to disappear in sit where people need their friends. Makes me sad. I think the sit now is at top of how bad it can be, i don`t know how well she can do in the future. I tried my best to help out, not much i can do, but i`m the person who can reach her, in a way, as the person she really is. She is most likely Schizophrenic. Psychosis comes and goes, and she`s not alone..... But it`s only the two of them. It really gets me.... Earlier i tried to get her the help she needed, but with this illness, for long periods the person that`s ill doesn`t want to be helped. Now i done what i can do, if she doesn`t want to be helped, or if they can help, i don`t know what will happen in the end. I really can`t do anymore at this point, except from being a supporter. and i can tell, that`s not easy!! To support a person who change from being aggressive and paranoid, to sad and disillusioned, and then a third "person", it`s really a challenge. But i remember what person she really is, that`s enough, maybe she can come back, that person is still in there. I`m sorry, i just checked in and read a little. I didn`t want to write or answer before i had my head with me. But, over to my little angel. I do not use anything besides water. When she had a HA, it doesn`t last long. I been waiting for it to come, because it usually would at this time. Nothing yet, hopefully it won`t either.... She haven`t seen me in full attack, i have this hide thing. I go and hide. But before i know it myself, she give me this look. Like she study me, and i know she noticed some sort of change. And that`s strange, because i had this all her life. Now that i`m better, she started to talk a little. she suddenly said how strange it was, why do some get ill all the time, and some don`t. And how come others get well, and some don`t. she hoped she never got ill. Poor girl, so yes she worries. It`s not my fault, but in a way it is, it comes from my genes. She had some "symptoms". I do not focus on it, i don` talk about it. what is strange, and very good, is that she selects out what she eats. All by herself!! I have never talked to her about food triggers, so i really don`t understand where this comes from. She tells me all of the sudden she can\t eat hot dogs right now, she don`t want sweets, drinks only water etc. Very strange. She`s so sweet, she tells me i want water, ice ice cold, i love water Maybe this does it all I talked to doc about it, i`m not taken seriously. Worried mom etc etc. Too early to tell and all that. But i won`t give up if she get more HA, because if she does get it or get CCH as adult, i want this to be reg some place, and not have too much trouble with f ex economy. I worry too much i know, but you all know how this works with documentation of illness and what a struggle it may be sometimes. And most of all, i want her to get the helped in the right way with the condition. I have to make sure she will not suffer the way i did. I remember one time, she wanted to help me peel shrimps. she stood on a chair and started to sigh and swallow and sigh again. Trying to be brave, but in the end she started to cry. "Mummy, you hurt those shrimps! Why you take their heads off?". She never wanted to eat shrimps again. I looked at her and got worried. How is this girl gonna manage with heavy pain f ex? Cause she`s still this way. Everything goes straight into her heart, she`s so sensitive. That`s my biggest concern. If she in the future gonna suffer from CH, how can she ever bust?! I hope for BOL to come. Thanks so much for answer,support and caring. This place is where she can be helped as well in the future, in diff ways. Now i gonna try not worry about anything for the weekend. Weather is nice as well. Wish all of you to enjoy the weekend. We are blessed, we find happiness and sincerity. I am very grateful to all of you. Big big hug from me :-*

Hi My daughter is soon to be seven. She is the purest most wonderful thing in the world. And i get so worried.... she had some episodes in the past with HA. She been sitting in her bed upraised, just screaming almost constantly. Her eyes swollen and actually hole head have been looking all swollen. When telling her to lye down and relax, she says i can`t i can`t it hurt so bad, and just continue to scream. I noticed she get very effected from weather, and sometimes angry without understanding it herself why. she get`very frustrated when this happens. She complained about a toothache last week. And suddenly i realized, damn, she said this since she could talk, around two times a year. We went to the dentist every time, nothing wrong..... Last time now, she didn`t have a HA, and it`s around half year since last HA. This worries me so much, i have no clue what i could do about this. this is horrible, i think she have CH... Or it`s early signs. It`s my fault, i have to fix this the best way i can. I just don`t know how. Any with experience here? She is seven in Oct. PFW and a big hug from me

To me that was a positive thing, if we get cycles both sides, it has to work trough both sides it seems. PFW from me

Hi you know, i had this long process. Months. It first had to work both sides, then both it seemed. i got relief from LSd, that made it worse for about two weeks after. then some free time. Shrooms made me free at once, but not as lasting as LSD. Seeds and shrooms, after three bust, got me in real remission. now both sides look the same, my tongue is straight, nose and throat swellings are gone. Why not try. But what i think is important, is to wait for two weeks. It may get worse those two weeks, but it has to settle. But, the three busts with shrooms and seeds, i did with first five days apart, then 7, then 9. i had improvement every time, the time in the middle got better each time. Then i stopped and let it work it`s way, and settle. I stay away from every supplement, except from Red Bull the week after bust. Keep a very strict food diet, eat non refined food, drink water not juice etc, keep reg sleep pattern. this makes it easier. But one thing, even now, if i do not follow this, i get worse immidiatly. One day may turn out well, but sec day something starts. So i have a rule of one candy "unit" a week I been following this for years, and i found that this is so important, that i will keep follow it. Even if i got well now. It`s just not worth it. Please please don`t let the Zomig this time. His time will come Thinking of the two of you, wishing the best. Please give and quick update, let us hear how the two of you are doing!! Big hug

How strange, after busting, i hardly can take coffee. It`s like every craving is gone, coffee and cigarettes taste bad. but when CH whines up, i want it all the time. I stopped smoking for some years, it didn`t do any difference to the CH, but in the longer run, it certainly can`t do any good for that either.... So i quit again. I`m so stupid sometimes, when i started again, i went to the store and said to myself, i gonna buy cigarettes and start smoke again. I did it in anger. How stupid, well well. Sometimes you gotta do what you gotta do....

Actually i found allot of differences in these vitamin things as well. But when i say so, people just shake they`re heads. But, after busting some times, i found that my body doesn`t want anything except from the real thing. I have to eat my anti ox from pure food f ex. Very strange thing. Or maybe i didn`t listen good enough before.

My best wishes, It may be a longer process for some it seems. Thinking of the two of you