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Maybe you should tell your doc about CH and ask what doc think about it? i have migraine, and from what you describe, i can`t say it sounds like migraine to me. But you need to get a proper diagnose from a neuro. I guess most of us in here are told migraine in the beginning. Because it`s more common or i don`t know why. But i always kept thinking "why do migraine hurt me this bad, when others can take the pain?" So i kept my mouth shut, i didn`t want to rant or be a whimp. And again, i think this is a common thing among the people in here. we get isolated with the pain, because in the end we feel as what can we do.... Don`t give up on that one, keep searching until you get taken seriously!!

Can you describe how your pain feels like? Who gave you migraine diagnose, have you seen a specialist on headaches?

Hi Welcome to you The feeling you get when dos tells you that nothing is wrong over and over and over again, that is true frustration. 18 years, that is a long time. You must be exhausted. But your life can really change now, knowing your not alone helps allot as well. The first time i talked to another person having CH, i started to cry. He told me he understood it all, that was such a relief, because i wasn`t crazy and not alone in the world. About the sensation you get hours after having an attack, i think i know what you mean. I think it`s the nerves that give these sensations. I think there are people in here that knows more about it than i do, that may answer this more correctly Have you tried Magnesium and Co-enzym Q10 to improve your sleep? Just ask if you want to ask Pain Free wishes from me

How nice About your migraines, you know that depression, chaotic thoughts, irritation etc etc is symptoms that comes along with a migraine diagnose? i know there`s people in here with migraine, maybe they will chime in and give you good advices as well?

Hi there Shaggy!!

Good news!! Happy to hear he`s doing better and better And what a lovely wife he have

You folks are amazing, i`m absolutely amazed!! Thank you for doing this, wow!!

For those who experienced this pain, i think we all couldn`t be more happy if someone get relief Enjoy being a participant in your own life, after twenty years, well, you really really deserve this kind of relief

Wait for one more day yes, preferably seven days.Psilocbe Sem by number. Maybe start with twenty first time. i never weigh them, you count them. Jepp, det er ganske digg å ha et liv igjen!!!

Hei Kleinsopp!! Welcome, so happy you came on this site!! Here, you will get the best help and support you can get. Pain Free wishes from me

I couldn`t agree more!! This place is a lifesaver, it`s the warmest place i ever known. Thank you all

When i presented CH to a message board in my country, i was offered so incredibly much help! People doing mushrooms seems to me as very friendly, helping and posiive persons. Just be careful, but if you tell about CH, i think most of us will get help from that kind of people. Good luck with your auction

Hi Welcome to this lovely place Good luck with your growing Pain free wishes from me

Hi Matty Thank you so much for thinking of me I have a lawyer and all that. I just don`t want to. I`m so happy, and that`s the most important part. I feel as myself again now. I had a reaction, all of the sudden it was like i realized that this is bad stuff, when i was told this isn`t a big deal. But i`m ok now I had the most wonderful day today. Every tuesday, my daughter and i pick up a boy from school. We go home, eat dinner and have a good time. Wednesday`s a friend of my daughter come home with her, and we make arts and crafts. Today we made our own play dough with glitter ;D Then it`s off to the girls gym class. Saturday, i gonna have a Halloween party for some girls in my daughters class. I LOVE doing all these things. Alomost a year ago, it was absolutly impossible for me. I wished i could, and it made me very sad. When i prayed, in my prayer i said i don`t have to get rid of it, it`s enough with relief. I got relief that is to me to got rid of it. And i found a treatment that worked on "all" my problems. It made not better from worse, it made it better than good. This slap in my face is a reminder to me, how good things really are now. I don`t think i should overdo it, and ask for even more. There will always be a problem, if i choose to. I gonna make myself more complete, work on those issues, for my own future well being Thank you so much for your good thoughts, i really appreciate it. Your a really good person i think Hug from me

What i can tell you is that i was CCH from the start, but once i started using triptans, it escaletad from around four attacks to nine. And stayed there. It also got impossible to kill attacks. So after awhile, i had it ongoing. This started once i started using triptans. Didn`t take long. But i think we all, more than once come to the point where we try everything, even what we know wouldn`t work. Just in case it will. Now, i dislike triptans so much, i have been standing with the imitrex shot pressed to my thigh, and then been thinking no.... And back to O2 again. O2 didn`t work as long as i used triptans.

I love music. All kinds of music. I start everyday with music. You know when a song give you this feeling, a feeling where several different emotions are involved all at the same time? Strangely enough, many times i think why do i like this song? Like this song, i do not like muse very much, not at all in fact, to me this voice is long winded ranting in a way, lol ;D But this song wake something in me. It has a drive, there`s energy in this song What about your hearing? I know they want me to give up. But i feel like these persons would still have a sort of grip on my life if i let this be a part of my life, for a longer period. My life have been enough affected by it. My lawyer actually sent a new letter, so it will continue a bit longer. But after that, i think im gonna stop it all. Really, it doesn`t mather to me. Very often, i feel like the luckiest person walking this earth, because i have this wonderful daughter, because i can go too gym, that i do not suffer anymore. All thiese things. And this is enough for me, i want to live in what i wished for, when i can

Someone close who could help out?

Not at all Ron, i take it as a compliment. Thank you You and Alleyoop, your like a solid rock i never had. It feels safe. Thank you both for that. It helped getting out some anger, please listen to the drive in this song http://www.youtube.com/watch?v=wa1S9D9Uaag

Thank you everyone. I went all day yesterday, i didn`t think i cared about it. All of the sudden it was like i was struck by lightening, i got mad as......... There is a meaning with everything, this maybe is to help me react and get over certain things. I think so. Maybe i need to be mad about what have been unfair in the past. I guess when your capacity give room for it, things will come to the surface. I live very good and i live happily, so my world won`t fall apart, if i taking it inwards, or bringing it out would be more correct. So maybe it is time to do so. All this experiences alt least it thought me to be a good person, to respect others and always look for the good things in life. I`m happy for that, and i`m not lying now, but i feel lucky, because my life is so good. But i realized all of the sudden this is not fair, this has been bad. I have managed very good, but i didn`t necessarily had to. Because i did, someone can tell me oh, your doing fine. It felt like i was told your so worthless, that we don`t care. I always thought that if you want something to happen, but it takes tumbling the hole world up side down, then it`s not meant to at the moment. It will steal your energy you need to live happily. i have a lawyer, but i will let it go. Because, when i sort my feeling out, what is my problem with this is the fact that i felt someone claimed this doesn`t affect me. It`s like all the ghosts came out from the closet at the same time. Then it affects me more than i think. What i need to do now, is learn how to deal with this, so it won`t haunt me forever, and tidy up my closet for real. As far as it`s possible at least. To do that in a good way, my life has to be as stable as possible. So i will just let it go. I don`t bother. Thank you everyone for being so supportive, there`s no one i would seek for support on this, so i appreciate it allot Thank you and a big big hug from me Now i gonna run for an hour i think, lol

Hi Sorry, i will speak very free now. I guess you folks should be spared for that amount of info, but i am so upset now, i shiver and i want to cry!! I experienced being kicked to the ground and forced to eat chewed food, while held down and beaten, i been kicked down stairs, kicked inside closet etc etc. I been locked in, taken all freedom and will away, i been locked in an empty room without windows and woken up every single time i tried to sleep the time away. I could give more ex, but it`s enough already. BUT, never ever in my life have i felt this violated as i do today. Letter from lawyer: "You suffer from post traumatic stress syndrom and traumas from childhood. Along with Clusterheadache, we cannot see how this could affect your daily life." Sorry, but....WHAT THE FLYING FU#K?!!!!?? I need a cigarette!!!!!! I am so angry!!!!!

Well, where do you live?

OMG, that energy drink sounds perfect for us!!

You can`t get hold of any? Someone on the board living close to you?

Are you out of shrooms?

Hi Welcome I`m out of being a CCH sufferer after six years, that`s when i found this message board. Just ask what you want, or rant if you want Pain free wishes frm me