tingeling

Magic Potter, got to say, that picture you got there, cool ;D

Hi Welcome to you and your dad I see you have been reading, and are on "the move", or the beast should be on the move soon. Don`t be afraid to ask or to tell us how your doing as well. We`re here for both of you. My best wishes Tingeling

Head buster, what a great name!! Call Red Bull!! ;D So i joined "The naked Mycologist Association" yesterday. i think it could fit under the category i "Myco porn", or maybe not. ;D

You said it alleyoop

When i read this, i`m thinking you sound well!! To me, that`s the thoughts from a happy person. Happy New Year

This sounds just incredibly important, this can`t be missed. I`m impressed, you folks are really professional. Thank you.

Beautiful is the word!! You folks don`t get this from public health care? I spent lots of time forcing info to pub med care, because they said this thing didn`t excist. And in the end, i got it!! It really works in a completely different way, Michael could get a totally different experience with O2.

Hi I got my OnDemand valve today, 35 flow, using mouthpiece on it. For those who haven`t tried that, i got to say this was another world. It also have a disposable filter. The O2 just keep flowing in, no waiting!!! This is something to try, very effective PFWF me Tingeling

Well, there you go, that`s me

Actually, i get this "lion" or "bear" like look. During high cycle it really more and more a facial feature. My hole facial features transform.

Beautiful Soothing the "path of life". Thank you for sharing

This was odd. Could it be i reaced badly because i overreacted and got sideeffects, from what yourwrite about edemas and stuff. I get low BP, edemas and thirst. Odd. Thank you, interesting.

Easy on that oil, that`s my advice. I tried smoke some for a period to try eas on the pain, it just got worse and worse. The reason why we are posting today, or any day, is the fact that we all been there. I`m a chronic, i been for the last seven years. I was hit up to 9 tines a day. I felt i was lurking around underneath that dark world. But i found Clusterbusters, now i live better than before i had CH. And i did for the last year. There is hope, believe us It is not good when bloodpressure goes down, at least not for me. Somedays i can`t sit for more than about 3-5 min. Or lye down. What is important is to get to know your own body, listen to that inner voice, pay attention to the signs you get. I yhink we often get a "feeling" after eating something etc etc, just try to stay away from it then. It might help. F ex onion, bacon, hot dogs, stay away from sweets etc etc. Drink allot of water, try sleep in a more sitting potition. Get up at the same time every morning. That is one of the things that actually helps me more than allot. It may sound overwhelming, but i can assure you, it`s worth the effort!!

I think it`s difficult wherever you are, sadly. Do you manage to get out? Guess UK have about the same weather as Norway. What helps me is moving allot out in the cold air. I stay out for hours now a days, helps allot. But this can be difficult when your already very tired from getting hit. I agree with Jerry, go to the ER, or call your doc. It is his job! Before i got my O2, my doc told me to go to the ER having O2. Maybe you could do that? Pill form doesn`t help much, they work too slow, you need Imitrex shot if you want to abort you attack. That way you get less of the drug as well, into your body. I cannot rec to use this drug in the long run, but when there isn`t anything else, or nothing works you got to do what you got to do, you need relief from this. Do you have someone who could go with you maybe, or call for you or something?

what do you do to treat your attacks at the moment, to get some relief?

i understand, i guess it comes from getting rejected time after time at hospital and docs in general. But we have every right to get help there. Your alone at the moment?

Does the pictures show masks and gloves as well? One thing that concerns me though... The tanks aren`t that high remember.....

Merry Christmas to you and your family

Hi Welcome to you Ch`ers can`t possibly find a better place than this, when it comes to help, support and treatment. You will find allot of information in here, but also allot of posts that tells how life has changed completely, after finding Clusterbuster. This is reading that gives hope in a way no doc can give you. Because this is others like you. Your not alone about this anymore, your with us My best wishes to you from me Tingeling

I posted early in the morning where i am But i looked at what i wrote and the way i wrote it, it just kind of... i just, i wrote shortly and it looked negative so i had to do something about that. And that`s not what i ment, and i`m always interested in what isn`t a Pharmacutical med. thank you for sharing Welcome le genser, i hope you have a PF day today at Cbristmas Eve tingeling

Sorry, i didn`t mean to be negative about licorice. I just ment telling my experience with licorice, when eaten as roots. I have no clue what the other thing is.

We could dress up in black catsuit thing, white big letters written over it f ex, think it could be pretty cool. Having CH can surtainly give a person the feeling of being totally "stripped and naked", it could give people who see the pictures a feeling of looking at that feeling. Eh... not easy to describe exactly what i mean but.... And since you don\t give me any names Denny, i asume it`s you as "the naked mycologist".

Licorice lower the Testosteron levels, allot. It lower BP. Real licorice is nothing to laugh at actually. I get hit almost immidietaly eating real licorice. i love it, and i like chewing licorice roots for the taste, but i can`t do it.

Guess it`s a hot button to all of us...

Crazy, that`s all i can say, crazy. But lately i started being very open about this, and i am very suprised. Very suprised!! I once told a a lady a person about this, but i didn`t tell her i was doing it. I spoke to her a couple of days ago, and she told me she had been wondering all autumn if she should pick me some mushrooms. I get accept from "everywhere" now, except from other CH`ers it seems. People have seen me go from very ill to being very well, so fact can`t be denied. the fact that other CH`ers do, i think that can be some sort of fear for big changes in their lives. Who knows, i find it sad.