mit12

Defiance, Where are you in california? If you are near Santa Anna give Dr. David Sosin a call. He will work wonders for your dad. Hang in there.

Rogier, My pain feels like two rods are stuck through my right eye one exits just behind the center of my ear and the other exits the neck at the base of my skull. I have the mussel pain down the neck for a few days after an atack. I use a medical heat pad and Flexeral for a few days. I have to take the flexeral during the day and stay awake or it will bring on an attack.

More information. I got the 60 cubic foot oxygen bottle today. Rent is $28 for the first fill and tank and $18 per month. I asked about purchasing a tank and the recertification. Airgas will recertify or replace any tank you purchased from them when the certification expires.

Niles, When your headache switches sides do the end? Mine always start on the right side and it switches to the left side for one day of real long hits 3 to 5 hour long with very little time between hits and the cycle is finished. Some times they are gon for a couple of weeks some tines a few days.

Spiny, Can you explain post hit 02 time? Thanks

Niles, What you are describing seems alot like my headaches. For 15 years my doc thought I had migraines because of my symptoms. He figured out that I have migraines with CH events. The migraine hits slow and builds up over a few hours and then the CH events start. I do get CH on their own without migraines also. Like you the CH events can be long my longest was 5 hours. Most of the time they are between 1 1/2 to 2 hours long. You have came to the right spot here with Clusterbusters, these people know what they are talking about and are great people. Hang in there.

CHfather, I had the regulator, just received the Clusterbusters oxygen mask and should have the Oxygen bottle tomorrow. I have a 0-25LPM regulator. What setting would you siggest I start at? Thanks for all your help.

I believe that as long as the tank certification is current they will fill it. That is the problem with buying a tank, recertification or replacing the tank can get pricey. For me Airgas is only about 6 miles from my house. I know that the company I retired from will let me use a real large tank at no cost so that I can refill my self. So for $18 a month I should be set.

Just an FYI. At Airgas you can rent an 60 cubic foot Oxygen bottle for $18 per month. I filled out the credit application today. It will cost $20 dollars to fill it each time.

CHfather, You are correct they are DISS ports/fittings. Thanks.

Thathurtsmyhead, My regulator has demand valves, do I need caps for them when using the regular fitting?

I found a 0-25LPM Oxygen regulator on Ebay. It took some time but I found one that hooked up to a oxygen welding tank.

After watching the movie Concussion it got me thinking. Has there been any research done in the same manor as the doctors did in the concussion studies?

If people that have never had a cluster headache was to read our stories they would think we are exaggerating or crazy. Good luck.

Mp5 Have you tried heat packs placed on the side of the atack? Anything cold on my head during an attack makes it worse but a medical electric heating blanket set to 165 works for me. I put it on the side of my head on my closed eye and back of my neck and rock away.

I am 54 and over the past 35 plus years I have came to learn what they mean with the term "practicing medicine" how many times have you had a doctor tell you this medicine has shown promise so take this and tell me what it does? I am suprised that I have a healthy organ left in my body. The question becomes quality of life vrs length of life? Thank god for this site. I took the leap of faith and stopped taking Diltiazem and stated the busting process. I finished my third day of the bust on Dec 20, I have been CH free since.

I have the same thing happen after an attack. Not only is my head sensitive to touch on the side of the attack but for the next couple of days my head feels just like it does after a concussion.

My Clusters are on the right side until the last one in a cycle it changes to the left side for a long 3 to 5 hour hit before it goes a way.

How many of you are bothered by perfumes or scented candles? I try to explain to my wife that it feels like someone is sticking a finger in my eye when I smell them, she can not understand.

Every time I get sick I get cluster headaches. It makes being sick so much worse.

My shortest was around 35 hours with 5 hour long cluster events. It was worse than the standard 3 to 5 day a week cycles I normally had. I an glad to say I am still cluster free since November 20! Which was the day of my final bust day. I have done 2 maintenance doses because I was getting dull headaches in the 2 month durations.

I tried acupuncture and chiropractor for a couple of years. Neither Offered any relief.

I have found that any change in eating time, going to bed or sleeping time will cause the beast to wake up. As far as work goes I had a microwave and heat packs in my office. I turn off the light put the heat pads on my head and neck and do my best. It is a brutal situation to live with.

Has anyone had any success with using oxygen a few times a day as a preventave measure?

F-123 I hear your pain! Getting off Diltiazem was one of the worst 5 days of my life, but after I completed the busting process last November 20th I have been cluster free! Good luck and I prey that you are successful.