mit12

I have the same thing happen after an attack. Not only is my head sensitive to touch on the side of the attack but for the next couple of days my head feels just like it does after a concussion.

My Clusters are on the right side until the last one in a cycle it changes to the left side for a long 3 to 5 hour hit before it goes a way.

How many of you are bothered by perfumes or scented candles? I try to explain to my wife that it feels like someone is sticking a finger in my eye when I smell them, she can not understand.

Every time I get sick I get cluster headaches. It makes being sick so much worse.

My shortest was around 35 hours with 5 hour long cluster events. It was worse than the standard 3 to 5 day a week cycles I normally had. I an glad to say I am still cluster free since November 20! Which was the day of my final bust day. I have done 2 maintenance doses because I was getting dull headaches in the 2 month durations.

I tried acupuncture and chiropractor for a couple of years. Neither Offered any relief.

I have found that any change in eating time, going to bed or sleeping time will cause the beast to wake up. As far as work goes I had a microwave and heat packs in my office. I turn off the light put the heat pads on my head and neck and do my best. It is a brutal situation to live with.

Has anyone had any success with using oxygen a few times a day as a preventave measure?

F-123 I hear your pain! Getting off Diltiazem was one of the worst 5 days of my life, but after I completed the busting process last November 20th I have been cluster free! Good luck and I prey that you are successful.

Watching that video brings me to tears. When I found this site I was at the end of my rope. I was trying to figure out how I could get the family together and let them know that I was going to kill myself. How do you explain to your family that you can not live with this anymore? Well I found this site and you guys saved my life. I can not put into words my appreciation to all that helped me here.

Pain I am one of the lucky few that has migraines with cluster events during the headache. It is a horrible existence to live with and I am sorry to hear you are suffering with them. Listen to these guys on this site they can change your life. They have saved my life.

I took Diltiazem twice a day for about 10 years. When it stopped working I had to stop taking it for about a week and get back on it. This worked for a long time but it stopped working. Talk to your doctor about how to stop your dose. My doc had me take prednisone while I was taking the week off. Good luck.

Just want to give you a heads up on larger welding oxygen bottles. Please strap them to something that will not let them fall over. I worked in the petrochemical business for 33 years and let me tell you if the tank falls over and brakes the valve off the tank turns into a uncontrolled missile. The smaller the tank the less likely it will happen but trust me it is deadly when it happens.

Sierra, Yes I do. Sorry I forgot that part.

Sierra, Thanks for posting. You just confirmed what I was debating in my mind. I am out od MM and I will definitely be getting more. FYI. I found a way to store MM for months at a time. I grind them up in single doses in a coffee grinder. I put the powder into the capsules that use to have my Diltiazem in. After i have filled them I vaccum seal them in a single dose, just to be safe i double bag them. Mine stayed good for since November 20 2015. I hope this helps and thanks again for the post.

I finished the survey, but i wish it had some place to make some final comments. My attitude and wellbeing is far better now that I have busted with MM than before. If this survey was taken back when I was suffering my answers would have been way different.

Be careful with how much and how long you take Prednisone as it can soften bones. My doc was very specific in the use and duration he would let me take it. I hated that because it was Prednisone was real effective for me. There are a lot of good people on this site that have a lot to offer. Please listen to them with an open mind. This site and its people have saved my life and I will be forever grateful. Good luck.

Spiny, I figured it out.

spiny, Is it possable to do private messages on this site?

LM, Welcome to Clusterbusters. There is a lot of good guys on this site that will answer questions and give you advise. This site has changed my life. I wish the best for ya.

Well tomorrow makes 90 days after I busted with MM and I am happy to say I am still cluster free. Although I am extremely happy with the results after suffering for over 30 years. I find it frustrating that Doctors can not use this to treat patients. Even if they had to use it in a controlled environment. Three doses have brought me more relief than 30 years of doctors saying try this and tell me what it does for you? Thank all of you for the support! This site has changed my life.

I remember going in for an MRI and I told my mom I hope they find a tumor, my mom started crying. no one that does not have these can understand what we go through.

Have you tried the busting technique described on Clusterbusters?

I get what you are saying. I have used that term also. I can tell you with certainty from experience that my Cluster headaches hurt more than anything I have broke or have had medically wrong with me. For me Kidney stones, shattered Acetublum, broken vertebrae, separated shoulders, broken collarbones, torn ligaments in both ankles torn cartilage in both knees do not hold a candle to the pain of a cluster. So for me I just say that they are the most painful thing I have ever felt.