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Everything posted by mit12

  1. The last two CH attacks I have hit the O2 and aborted the attack only to have it hit harder in about 1 hour. Whin I hit the O2 again it does nor stop the attack. Is this common or is it rare? All I know is it makes for a brutal day.
  2. Zomig nasal spray was a life saver for me. My insurance used to give me 36 for 3 month supily and my doc would give me a hand full every visit. Be careful as your headaches will start depending on the Zomig and you will end up having attacks all the time. I had to stop taking it and suffer through until the cycle pased. Now I try not to use it unless I can not stop the attack with Oxygen.
  3. CHfather, well said. I could not imagine watching someone I love go through the pain I feel during an attack. Think you for all you do for all of us.
  4. I have sleep apnea and before I got a CPAP machine my CH was way worse. My oxygen levels would fall dangerously low during sleep which would set off CH. I could fall asleep standing up before getting a CPAP. Keep your sleep study appointment and good luck.
  5. mit12

    CH side eye

    ThatHurtsmyhead, that is what I am talking about. Spiny looking at pictures it appears that this has been a slow process and has been this way for a few years according to pictures. I just noticed it because of the bifocals. I thought that my glasses were made uneven. Thanks for the replys.
  6. mit12

    CH side eye

    Spiny, it is the complete eye. Weird thing is i got bifocals and noticed that the reading level was off from side to side. I looked at the glasses and they were the same. I looked in the mirror and it is the eye. It is not a lot but it is noticeable. Does not cause any problems. I guess the strain of having CH over 40 years has taken its tole.
  7. I get Clusters on my right side and have noticed that my right eye is a little lower than my left eye. I have looked at pictures from when I was younger and my eyes look to be the same hight. Has any of you noticed this?
  8. Batch, Thanks for the information very informative. I just checked how long it takes for my O2 bag to fill using 8 Lpm. It takes 11 seconds. The huffing method works for me but it takes much longer. Is 11 seconds of holding the O2 in dangerous to me? I do not want to be giving bad advice.
  9. Clusterb, Try different breating methods. I turn my regulator to 25lpm and breath deep and hard for a couple of minutes, i turn the regulator down to 10 and take a deep breath and hold it until the bag fills exhale hard and repete. I have found that holding the O2 in longer makes it work better/faster for me. I do not think that there is a "one way works for all" way to breath O2. Good luck.
  10. Zomig nasal spary works great but if I use it more than 3 times in a row I will get rebounds. I suggest using O2 and get away from Triptans as much as possable.
  11. Snowflake, i suffered for over 30 years with the beast. Busted with MM and I went from existing to living. There are a lot of good and knowledgeable people on this site that can help you change your life. Keep an open mind and ask questions. Good luck!
  12. Be careful with prednisone, if used to long it can cause bone issues.
  13. John I only have 2 instant triggers. Perfumes and Champagne. All others happen between 15 and 30 minutes after I eat them, Shrimp being the worst.
  14. Anyone ever felt the effects of MM the day after? I took a maintenance dose yesterday 1 1/2 grams my normal. Today I have flashes of the same sensation that I get durning a dose.
  15. Rimantas, For me 1.5 grams is a perfect dose, feels like I had a 6 pack of beer and colors are brighter especially red no trip at all. How often are you doing maintenance doses? Have you tried busting with RC seeds? I trade of maintenance doses between RC seeds and MM as I am afraid of my brain getting use to MM or Seeds.
  16. For me the only thing I can take 3 times in a row without rebound headaches is O2. I can get away with zomig for 1 or 2 times after that the rebounds start. Anyone find that (Immatrex, spelling?) makes their CH worse? I have tried it multiple times and it was insane how bad it got.
  17. This is horrible. Has she tried polorized sun glasses? She will be in my prayers.
  18. Sebastianewald Are making sure that you are off all meds that block the busting? I believe the list on this site is playing well together.
  19. The pain I get after a hit reminds me of the day after a concussion.
  20. Laura401 I would be one of the lucky few. A little background, I have migraines and Clusters. The first time I first busted I did it all wrong, was still on meds. Second time I went on this site and ask some questions and found out what meds i needed to quit taking. I bit the bullet and went cold turky off all pharmacy meds for 5 days, it was hell with very little sleep and consistent hits. I did the three bust cycles using MM and it worked. I made the mistake of getting over confident and ran out of maintenance doses of MM and got hit hard for a few days. I found RC seeds and started taking them. I still have migraines but not near as often. My Clusters have been few and far between as long as I do a maintenance dose when i get shadows for c couple days in a row. Good luck and sorry for the hard times.
  21. I tried orange juice and it was way easier to handle the mudd taste. Seemed to take away shadows so far.
  22. Rush Any welding supply can rent you an oxygen cylinder. You can purchase or rent one from Airgas. Remember if they ask you are doinf burning and welding.
  23. Thanks CHfather. I am going to take a maintenance dose tonight I will tell you if it makes the mud taste better.
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