mit12

Clusterb, Try different breating methods. I turn my regulator to 25lpm and breath deep and hard for a couple of minutes, i turn the regulator down to 10 and take a deep breath and hold it until the bag fills exhale hard and repete. I have found that holding the O2 in longer makes it work better/faster for me. I do not think that there is a "one way works for all" way to breath O2. Good luck.

Zomig nasal spary works great but if I use it more than 3 times in a row I will get rebounds. I suggest using O2 and get away from Triptans as much as possable.

Snowflake, i suffered for over 30 years with the beast. Busted with MM and I went from existing to living. There are a lot of good and knowledgeable people on this site that can help you change your life. Keep an open mind and ask questions. Good luck!

Looks great!

Be careful with prednisone, if used to long it can cause bone issues.

John I only have 2 instant triggers. Perfumes and Champagne. All others happen between 15 and 30 minutes after I eat them, Shrimp being the worst.

Anyone ever felt the effects of MM the day after? I took a maintenance dose yesterday 1 1/2 grams my normal. Today I have flashes of the same sensation that I get durning a dose.

Rimantas, For me 1.5 grams is a perfect dose, feels like I had a 6 pack of beer and colors are brighter especially red no trip at all. How often are you doing maintenance doses? Have you tried busting with RC seeds? I trade of maintenance doses between RC seeds and MM as I am afraid of my brain getting use to MM or Seeds.

For me the only thing I can take 3 times in a row without rebound headaches is O2. I can get away with zomig for 1 or 2 times after that the rebounds start. Anyone find that (Immatrex, spelling?) makes their CH worse? I have tried it multiple times and it was insane how bad it got.

This is horrible. Has she tried polorized sun glasses? She will be in my prayers.

Sebastianewald Are making sure that you are off all meds that block the busting? I believe the list on this site is playing well together.

The pain I get after a hit reminds me of the day after a concussion.

Laura401 I would be one of the lucky few. A little background, I have migraines and Clusters. The first time I first busted I did it all wrong, was still on meds. Second time I went on this site and ask some questions and found out what meds i needed to quit taking. I bit the bullet and went cold turky off all pharmacy meds for 5 days, it was hell with very little sleep and consistent hits. I did the three bust cycles using MM and it worked. I made the mistake of getting over confident and ran out of maintenance doses of MM and got hit hard for a few days. I found RC seeds and started taking them. I still have migraines but not near as often. My Clusters have been few and far between as long as I do a maintenance dose when i get shadows for c couple days in a row. Good luck and sorry for the hard times.

I tried orange juice and it was way easier to handle the mudd taste. Seemed to take away shadows so far.

Rush Any welding supply can rent you an oxygen cylinder. You can purchase or rent one from Airgas. Remember if they ask you are doinf burning and welding.

Thanks CHfather. I am going to take a maintenance dose tonight I will tell you if it makes the mud taste better.

Pebblesthecorgi I agree with you and I hope that we get some progress. My point was that our system the pharmacies does not sell cures, they sell stuff that manages symptoms. The pharmacy had to cry when I found MM and seeds because I no longer use any prescription meds for headaches any more. Thats thousands and thousands of dollars a year they no longer get, not to mention I am not seeing my headache specialist at the co pay of $80 per visit. Again thank you Clusterbusters you guys are the best!

Can you soak them in orange juice? Or will the orange juice kill the LSA?

The only thing that worries me about research and making it legal is cost. 1 Zomig is $30 and they do not stop attacks from happening. I am afraid to think what the cost of a drug that only needs to be taken 3 times and when ever you need a maintenance dose!

If you go to Airgas watch out for the $11 Hazmat charge. It is a BS charge. Call them up and tell them that you refuse to pay a Hazmat charge for a O2 bottle that is in your possession! They will try and tell you that it is a standard charge, ask for the number to their reagional manager. They will wave the charge. Only down side is they will put that charge on every month, so you will have to refrence the phone conversation and deduct the $11 dollars from your payment. Note a 80cf O2 tank is about $200 The 60cf or 100cf tanks are within about $20 plus or minus. If they ask what you are using it for tell them welding.

There is a little difference between blowing out without the mask. You must remember that unless you get a mask with an exhale port as big as the opening of your mouth there will be always a difference.

John2000 I think you have a defective valve in your mask. I have the Clusterbusters mask and there is no problem breathing out.

I have migrains also so at the first sign of a headache I take 4 Advil PM with a energy drink. This works most of the times for my migraines. It seems that the more I control the migtaines without meds the better my CH responds to MM or Seeds. Keep trying different things until you find something that helps.

I do not know how to answer this other than saying that if you can get your hits under control it will get much better. I have a little black soft sided ice chest that I kept my rescue meds in. If I forgot to grab that bag when I left the house I was in a complete panic. This has almost completely gone away now that Iave been able to be 99% CH free for the past year. I still take the bag with me but I have only used it 2 times over the past year compaired to 3 to 5 days a week with hits. Good luck John2000

Mike99 For me a sinus infection will cause me to have hits. I believe it is because of the sleep pattern interuptions. Then again gitting sick will cause me to get hits also.