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Everything posted by mit12

  1. mit12


    Update time, Another week headache free!
  2. Been there Great cartoon. Merry Christmas!
  3. mit12


    Well one more week added to the no headache list. I hope it keeps going.
  4. mit12


    Juss, I am going to be 60 in April and have suffered with migraines from my early teens on. The list of meds that have been tried to help control the headaches is amazing. With each new wonder drug there is a new hope that the 45 plus years of suffering will come to an end. It was not until my early 20s that the clusters started. I was misdiagnosed for years as just migraines. When I finally started getting treated for clusters I finally got some relief. What I have learned along the way is nothing seems to work for long. I try to stay positive and not get depressed but this roller coaster ride we call life is hard to keep a smile on your face. I would like to thank everyone of you for your support and encouraging words. Until the next up date hope you all have happy holidays.
  5. mit12


    Well last night had a pretty bad migraine. It is a little depressing but like every thing else we deal with I need to look at the positive. 1 migraine in a month is way better than at least 3 per week!
  6. MM did not seem to make a big difference with my migraines but RC seeds seemed to help some. They took me from 5 to 7 days to 1 to 3 a week. This lasted for a couple of years until they stopped having good results. I was back up to 3 to 5 days a week. I am on Nurtec 1 every other day and have been headache free now for a little over 3 weeks.
  7. mit12


    An update, Well insurance is weird, doc prescribed 16 for a month 1 every other day. Insurance only pays for 8 a month! I called the insurance and told them that Nurtec does not work well for me as an abortive but it seems to be doing great as a preventative medication taking it every other day. Well guess what, they cover every other day if I get a 3 month supply???? (So guys call your insurance and ask questions it can’t hurt) So I am getting 48 tabs for $90. I have been taking it for almost 1 month now and I have been migraine free and no Clusters so far. I am hoping that It keeps the migraines in check because like I have said before I have never had a Cluster without having a migraine first. I will keep the updates coming.
  8. Spiny, you nailed it with “what works for you”. My go to is 3 advill PMs taken coffee or energy drink. Don’t have a clue as to why this combo helps but it does for me.
  9. mit12


    I am trying Nurtec because I have Migraines at least 3 times a week. I believe that my situation is a little different than most CH suffers as I have never had a CH without having a migraine first. My doctor described my situation as a migraine headaches with cluster events. I always said that I believe if I can get controll of my migraines I can be CH free. I will be contacting my Insurance on Monday to see if they cover Nurtec. If my insurance covers it I will keep you guys informed with my results.
  10. Don’t worry about your post, we all have came on here and let our frustrations get the best of us. We live in a world that 99% of the world can not begin to understand. This site saved my life, the great people here know what we are going through and are willing to listen and give advice.
  11. mit12


    I tried it for 3 times a week for about 3 months with no relief at all.
  12. I am glad you found this site, there are great people on here that will help you out a ton. Your headaches sound a lot like mine. I have clusters and migraines which I have been told is rare, lucky me! I can not take imitrex as it makes my headaches worse, but I can take Zomig and it works wonders. Be careful there is a rabbit hole that comes with triptans that can send you into rebound headaches that will not go away unless you stop taking them and suffer through a few days. Prednisone is a life saver but you have to be careful with how long you are on it as it is bad for bones and liniments. O2 is great also if you cant get a prescription and a high flow O2 regulator rent a oxygen bottle from a welding supply and get a welding regulator.
  13. Well I called the place that I got the Botox injections and the doctor that she used to give here the injection sites had to retire because of cancer. I am now looking for a different doc.
  14. Moderna for me no difference after both jabs.
  15. I know that you can take 15mg of zomig nasal spray and still live. I had a killer hit one time and took the 3rd dose within 1 hour after the first one. It did abort the hit but I had rebound headaches that went on for well over a week. Looking back on it I don’t know if it was worth it. Desperate times can make you do desperate things. Kind of a weird thing, I found that if I snorted the spray rather than spraying it in like the direction said It was more effective.
  16. Mathew, My doc and I took apart a Zomig to see if there was a way to reduce the dose. The nasel spray is 5 mg. I tried it with a Q Tip with no success. I don't think I would risk injecting it.
  17. Update number 2. The botox has changed the area that my migraines hurt, they have always been very intense in the eye much like my clusters are just not as intense. Now the migraines are more spread out over and around the eye. A little less painful but still there. I had a three day migraine which is not uncommon for me and it changed sides toward the end of the third day and went away some time in the night. They say that I need to give it 3 treatments before I can make a definitive its working or not so 90 days is the target. The fact that it has changed the pain from intense eye pain to around the eye is encouraging.
  18. A little update. I was having migraines everyday for about 2 weeks before the Botox. After the Botox injections I had some small headaches but they never got bad and went away on their own. Sunday night I did have my first migraine since the Botox injections. I think it is to early to call it a success, I will keep updating weekly.
  19. I have decided to take the plunge and try Botox to try and get my migraines under control. I feel that if I can get my migraines under controll I will be able to put a cap on my clusters. The reason I feel this way is because I have migraines at least 3 times a week and I have never had a cluster event without having a migraine. I go for my first treatment Monday, I will give updates on what happens.
  20. So happy for him! I hope that this last forever!
  21. I got my second Moderna shot the 27th of April. Did not get any hits at all. It definitely effected my arthritis for about 20 hours.
  22. Got my first shot Tuesday, had a migraine when I went to get it and about 1 hour after the shot the headache went away. Woke up at 4:30 on Wednesday with a migraine that lasted to 12:30am. Today all is back to normal. Thank god it did not wake the beast! Second shot on April 27......... hoping it’s a non event. thanks guys.
  23. Any one get a Covid vaccination? Getting mine tomorrow but am wondering if it will piss off the beast.
  24. I am one that imitrex not only does not work but it makes the CH worse. The weird thing is Zomig especially the nasal spray works great. My Doc does not understand why.
  25. I also get migraines with cluster events. My cluster attacks are a little different because the cluster hit last 3 to 5 hours with 1/2 hour break between attacks and the migraine stays throughout the attack and can go on for hours after the attacks go away.
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