mit12

Well said CHfather.

Make sure you do the MM busting properly. You need to get off certain meds. On this web site you can find a list of meds that you need to stop taking before the bustling process starts.

I have been broken up a lot. I have crushed my acetabulum broke my back, seperated my shoulders one incident, broke collar bones, broke ribs, torn ligaments to name a few. I have passed kidney stones a couple of times. I can tell you that none of those listed come close to the pain of CH!

For me, migraine start out with a dull headache about a 4 behind my right eye and it seems to be connected to the base of my skul at the neck. When I have Cluster events along with a migraine it goes from a dull pain to feeling like someone has pushed a rod through my eye and it comes out behind my ear at the bottom about 2 inches back at a 10+. This will continue for 1 1/2 hour to 3 hours normally with a 30 minute break with just the migraine remaining and another one will hit. The silver lining is when I get a migraine with cluster events they usualley do not go for days. Because of this strangeness of my condition it took over 20 years for my doctor to make a diagnosis of cluster headache.

I suffer from both. For me a Migraine is a pain that just stays there and you want to be still as possable in a dark room with no sound. They last for hours or days at a time. A cluster headache is one that hits hard and you can not sit still because you are trying everything in your power to take away or divert the pain. In my case the hits last 1 1/2 hours to 3 hours although I had one that lasted 5 hours with about a 30 minute break inbetween hits. Don't get me wrong a migraine hurts but the pain difference between a Migraine and a Cluster Headache is being real uncomfortable and something that hurts more than anything you ever experienced.

This used to happen to me every time until I decided to take a maintence dose of MM or seeds the day before my vacation. So far I have been able to travel to a destination spend a week and fly back without a hit.

Zgreek I use Airgas for my rental of O2. They will try and slap on an $11 a month hazmat charge, when you get the first bill call them and tell them you refuse to pay a hazmat charge for a O2 bottle that is in your possession. They will tell you it is their policy. Ask for their regional managers phone number. They will remove the charge. When you pay the next bills reference that phone call and date and just pay the rental cost. They do this all the time even though it is not needed, it is just a way they squeeze $11 out of people that will not challenge their billing.

Well said

I have low T. Getting my levels back to normal did not make a difference with my Ch headaches. It is weird that every time I go in for my shot I get a migraine.

Mike, I do not know if there is a correct breathing technique that is perfect for everyone, I think you should experiment with different techniques until you find what works best for you. I have found that taking fast deep breaths exhaling hard for about 1 minute with my regulator set at 25lpm then I reduce the regulator to 10lpm and take a deep breath and hold it until the bag fills exhale hard and repeat untl the hit has passed is what works best for me. I use the clusterbusters non rebreather mask. Good luck.

Look in the Theory & Implementation.

Sounds like you have the same tyoe of problem I have. After 20 plus years of my Doc of treating my headaches as migraines it turns out that I have migraines with cluster events during the attack. What happens with me is during a migraine I will get a CH that last between 1 1/2 to 3 hours long with 1/2 hour breaks in between CH events. Oxygen and MM and seeds have been a life saver for me.

What ever you do make sure you have plenty of maintence doses. After my first bust every thing was going so good I got comfortable and paid the price.

I have short term memory issues caused from multiple concussions, so I can not speak for others. In saying that I have noticed that after a CH my short term memory is much worse. The good thing is it seems to go back to my normal in a few days.

Treelove2, There are some great people on this site and it looks like we gained another one.

I do maintence doses when I start getting shadows. My best advice is to make sure you read the Playing well together to make sure you are detoxed for 5 days before you start the busting process and continue without taking any pharma during the process.

John2000 I went and tried breathing with my mask and it is real easy to breath in and easy to breath out. I think you might have a problem with the check valves not working correct.

I have the clusterbusters mask.

I think you have the mask on the wrong end? you should be able to breath out easy.

You breath out through the mask. The mask has check valves that let you blow out without filling the inlet line. Take deep breaths almost hyperventilating is the most used technique. I have found that deep breaths almost hyperventilating at 25lpm for a few minutes and than Reducing the LPM to 8lpm and taking a deep breath and holding it for the time it takes the bag to refil exhale and repete works best for me. Keep trying different breathing Techniques until you find what works best for you. Good luck.

Pebblesthecorgi I asked my doc about blood pressure and pulse durning an attack, he said it was normal and not to worry about it.

Done

Kellylynn22 Sorry you are getting hits. I use welding oxygen it cost me $26 a month to rent a 60cf bottle from Airgas. You can pick up a non-rebreather mask i believe for $35 from Clusterbusters and you can get a regulator for under $100. I was a person that tried O2 at my doctors and it did not work at all. CHfather pushed me to try it again with the proper mask and high flow regulator and it works awesome. You have came to the right place, there are some real good people on this site that will answer any question you have. Good luck

John2000 I have the same thing. 120/80 up to 145/95 durning CH or Migraine. Pulse goes up higher during CH compaired to Migraine which does not change it much. I believe with respect to pulse rate it is because when I have a CH I can not sit still, with migraine I do not move at all.

Zgreek, I do the same as THMH except I drink it just before bed time. For me I do not feel any symptoms at all and sleep like a baby. When I take it during the day I get an upset stomach, feels like I need to throw up. I do not feel any other effect from seeds much different than MM for me.