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ClusterBusters

CJW

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Everything posted by CJW

  1. CJW

    Alcohol intoxication during cluster

    yes I have also realized and mention the affects of alcohol on not only triggering but blocking cluster headache's. but the underlined question here is what if any chemicals are at work with the body to produce this blocking affect. can they be artificially produced? it just seems to me its an avenue to venture down. 4 month PF. loving the time away.
  2. CJW

    Nortryptiline

    antidepressant medication, rather bust with MM. just saying.
  3. CJW

    My chronic CH are the result of a virus

    81007 has asked have you ever been around cats? why? I have no idea, but in an earlier post I have asked for a spreadsheet, excel format we can all ask any question under the sun, with all questions and answers being unanimous. my goal is to see any and all outrageous questions may be statistically tallied. I have seen the other apps for which are not on this site and are not followed as close as all other post here. I too believe my condition was caused my head trauma many years ago. you brake a leg and incur some sort of nerve damage the problem remains in the effected area. still a firm believer there is a common cause for all. nobism site is nice for all that technical data, I'm thinking more of the outrages or common Q and A. sorry if I'm beating a dead horse. PK (post killer) cya.
  4. CJW

    spread sheet

    Don't you think there should be a questioner in the form of a excel file with every question under the sun on it? for all of us to answer and or add are own question's. the results could show up as statistics or percentages. (just thinking out of the box) anonymously of course ex: yes no sometimes do you smoke? x have you ever had a concussion? x do you drink? x does Topamax work for you? x
  5. CJW

    spread sheet

    very informative thank you very much Jon.
  6. CJW

    spread sheet

    thanks all.
  7. CJW

    Stomach pain while on d3 regimen

    D3 ran through me like a freight train in the middle of the night. That's the reason I stopped taking it. Vitamin MM is all I take, on my third month of remission. will do a maintenance dose soon.
  8. CJW

    What if there WAS a CURE?

    In a different post I've seen you cut up a 10mg Rizatriptan. I have looked at the side effects from that, and as for me it sure looks like a drug most people would like to stay away from. strictly for Migraines. as CHF has mentioned. buck says we scared you away for good. hope I'm wrong and you can give someone something worth while to ponder. will see. if it worked for you chances are it may work for others. Merry Christmas.
  9. CJW

    What if there WAS a CURE?

    so we need a 100 people to blow there noses? ugh. I was hoping the cure was chicken pot pie. my three favorite things.
  10. CJW

    Happy Thanksgiving!

    I give thanks to my 4th PF week, been two years since I could say that.Maybe its the MM or just the way the beast operates. either way, I'm on cloud nine. I wish all with CH a PF holiday.
  11. CJW

    Open letter to major chemical companies (BOL-148)

    almost 6,000 views, what's the record? do you think its a hot topic?
  12. CJW

    60 minutes

    60 Minutes aired a special last night on the help that psilocybin has to offer. unfortunately no mention for clusters. too bad.
  13. CJW

    Gone , but not quite yet?

    I've said it b4 I'll say it again, hangover days are PF. I need a pill to simulate a hang over, then I'll be all set.
  14. CJW

    Open letter to major chemical companies (BOL-148)

    ugh, Compass Pathways, well I guess someone has to get rich off of us. https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=2&cad=rja&uact=8&ved=2ahUKEwiui-OHysPkAhUBY6wKHZh_CHoQFjABegQIABAB&url=https%3A%2F%2Fqz.com%2F1454785%2Fa-millionaire-couple-is-threatening-to-create-a-magic-mushroom-monopoly%2F&usg=AOvVaw1cgz5fJTh2N-KUADi48qOx
  15. CJW

    Open letter to major chemical companies (BOL-148)

    On the edge of my seat. waiting for this topic to continue.
  16. CJW

    Sphenopalatine Ganglion Block

    Joe Rogan podcast #1056 give it a listen, I hope that helps, sounds like some parallels there.
  17. CJW

    half time

    seems to me, most of my hard attacks I go through have a half time, when you think oh maybe a shorty but no it kicks back to the previous pain level. just saying.
  18. CJW

    printed hand out

    Card's you can carry with you: “I am a cluster headache sufferer. If I am having an attack, please do not call an ambulance, there is nothing the medical profession can do. Cluster headache is a debilitating disease and is one of the most painful condition known to man. They are also referred to as suicide headaches. If you are interested in learning more or willing to be an advocate, please contact ________________________________.”
  19. CJW

    Busting Music Playlists

    Release (Pearl Jam) my favorite....
  20. CJW

    Freezing

    I tend to go in basement for the cold floor, love to blast he AC out when I'm in the car during a bout.
  21. CJW

    Work and CH

    most employers are or should be tolerant to employees pain conditions. my relief comes from the energy drinks. i'll even mix my 5 hour into a Pepsi, yum yum.
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