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Posts posted by xBoss

  1. On 8/10/2022 at 3:50 PM, jon019 said:

    ....just wanna throw in for those contemplating welding O2 and coming across this thread in future.....NEVER tell them you gonna breathe it or you are gonna have to find a new shop....

    ....and i have to say...i am totally shocked they would ship a full tank ($125...yikes!!), and i bet it's by ground...planes have gone down from O2 tank "incidents". have witnessed a broken stem tank going through cement wall ....and a chlorine tank explosively leaking for no apparent reason (that gas is eerie green)..

    My dad ran a racing shop his whole life and he has friends that had a tank torpedo through walls before!


  2. Hey, Sorry you are hurting. Try a super hot soak or shower but I like the soaks. They can abort the attack just like oxygen can and quickly. It does not work for everybody but it works for me! GL Warrior.




    • Like 3
  3. On 3/7/2022 at 8:31 AM, BustOrNothing said:

    One of my attacks came after blowing a candle out and breathing in the smoke of the wicks. After that, no blowing out candles only capping them to put it out. This lead to cooking things at lower heat to not burn it and avoiding smoke entirely. 

    Especially hard because smoking Mari makes the stomach and mood feel better but don’t want to do it so that I don’t trigger a CH.

    Burning cooking oil used to trigger me instantly but the strange thing is that it stopped being a trigger a couple years ago.

    • Like 2
  4. 8 hours ago, EmpiresBurn said:

    and yes please before everyone jumps on the O2 being the best. I live in the US and that's just not happening at this current time I've gone down that road with 2 regular doctors and 3 Neurologist and 1 Headache specialist. It's currently not in the cards for me as an option. 

    You can always go gonzo and do the welding oxygen. The route I am about to take...

    • Like 1
  5. 3 hours ago, EmpiresBurn said:

    Thanks everyone. I'm still trying to figure out this beast. January was pretty much 1 hit a day at nighttime and now as we have progressed into February it's moved to an afternoon hit and nighttime. So I feel it's ramping up to a climax. Hopefully at least. 

    Not too bad at all. My worst is about 7 hits a day but there are people that have 14 or more.

    • Like 1
  6. 1 hour ago, EmpiresBurn said:

    When they switch do they usually continue at the original time as well or switch from one time to the other?

    They switch all over the place time wise. Usually it's a couple weeks of right on time three times a day starting at 9pm then they go to every time you fall asleep all night then switch to random day hits. Early on in my cluster career they were like clockwork for the most part but it just keeps changing. Oh, and I have never used pharma for CH but I was trying to bust so many that was a factor.

    • Like 1
  7. On 11/12/2021 at 6:08 AM, spiny said:

    That is pretty cool xBoss!!!


    It is growing. I hope more states join soon.


    "A Republican Missouri lawmaker introduced a bill this month to give residents with serious illnesses legal access to a range of psychedelic drugs like psilocybin, ibogaine and LSD  through an expanded version of the state’s existing right-to-try law."



    • Like 1
  8. It gets harder every year to succeed with a claim. About 20 years ago it was cake. My wife was denied after a three year effort and she has all kinds of issues and has been hospitalized many times. 

  9. On 1/27/2022 at 4:48 AM, Shaun brearley said:

    Just can't bear the sight of food when in cycle . Plus I vomit like no tomorrow when under attack.  I lose so much weight when I'm in cycle then take months trying to put it back on again

    Wow, I did not know this was a thing. Sorry mate. :(

    • Like 1
    • Sad 1
  10. I know we are talking about visual input being a trigger but I do believe that the EMF from phones can be a possible trigger as well. Not sure if you are running straight 5g or wifi on the thing but cellular service can affect our nervous system. I am very sensitive to it and I get a numb face and hands when I'm on a long phone call. I hate it and feel that it has a negative effect to us CH folks.

    • Like 3
  11. 9 hours ago, Shaun brearley said:

    Not tried that yet . Instead of hot soak does a hot shower work ? 

    I used to do the hot showers when in massive pain and it helped. I'm not sure if I knew how to abort CH back then. I think the hot soaks work due to a big change in blood pressure or blood flow so the shower would probably work but maybe a little bit less effective. I have still not done oxy for aborts so this was my replacement. Def. getting a tank for the next cycle which seems to be coming soon because I'm getting muscle lock and tension lately.

    • Like 1
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