Shaun brearley

I really hope to make it over to US for conference 1year, would be great to meet all the US Clusterheads in person that talk to on here, hope you all have a great conference

Yes been pain free since January so can't complain just got flight home to get through but should be ok

Sorry @CHfatherforgot about tanks below a third being less affective

Was that quite well enough @BoscoPikosorry took time to replay on holiday in Bulgaria hope you well and pain free at present

@DanPit's great that your only using once a day. but temptation is always there to use more as the relief from the pain is so fast, triptans can cause really bad rebound attacks that can be alot worse than your initial attacks, plus triptans can prolong your cycle, you only need 2mg to abort with triptans so consider splitting your injection (easily done) I've been down the dark rabbit hole with triptans, I got to a state where I was using up to 5 injections a day, prolonged my cycle by around 3months with headbanging attack day and night, my body became so weak and after each injection I'd feel like I was going to have a heart attack, so please be really careful with them, don't get me wrong I still carry them with me if I out in public or go on holiday because it's not great to get an attack in public, but I never use them at home anymore I'd rather ride the pain if my O2 doesn't work but I'm lucky at present as O2 works for me, I do change my breathing techniques know and again, have you ever tried busting? And get on D3 ragime it really help alot of use

Triptans are a nightmare my friend, O2 works so well for many of use, what's your routine with O2?

Sod off @jon019your mad as a hatter

@Craigoonly speaking the true my friend, we have to be mad to put up with this

Welcom to the CH club, we are all a bit mad in here, but we have lots of knowledge, so ask questions, tell us your experiences

Hi @Subreally good that you have a neuro that understands CH, that's the first step and normal that's one of the hardest, as for verapamil really works well for chronic and episodic,but not for everyone, biggest problem with varap is the dosage needed to be affective for CH, with it being a blood pressure med it can cause serious damage ie heart block, really need to get on O2 life changer for most CH, as for samatriptain injections, just be careful can lead you down a horrible dark rabbit hole that really hard to get out of, have a look at the D3 vit ragime, again works for loads of us and your shadows may well respond to ginger,

Got a really understanding employer, I drive a coach for a living all over Europe, but when in cycle, I work local and have days off when needed,

Only reason I smoke it is because of PTSD, WORK FOR THAT,

INDICA IS BEST STRAIN FOR PAIN RELIEF, DOSEN't do anything for CH

I'd say go and get some Professional Help my friend,

Yea but you need a brain first for that to work, so I'd say that a few of us on here have got No chance, what you think @Bejeeberand @BoscoPiko? Not mentioning any names