BoscoPiko

I know this might get viewed in various ways. Yes I am a new sufferer so maybe that gives me less merit in what I have heard called Cluster Ville. I feel like so little attention is being paid to the depression that accompanies having your life swiped? Maybe that's just me but I have a hard time believing it. Are we really reduced to a suicided prevention link? I know I would like to see an extra link on the General Forum. I struggle daily with not wanting to be here anymore as all I have ever known is gone. My brain is different and try as I might to move through a day like I used too; is past tense. As much as I want to make believe that I will get the prior me back; I have given up hope that I ever will. I suppose what I am saying is that it would be nice and reassuring to see some of you or hear of you having good days and to see what that sounds and looks like? Not just the busting days that we are not all brave enough to do, but days after you have a breakthrough? What does that look like? What do you do? Do you fish, spend time with the the kids do you ride moto, horses, idk just wondering how your brain stays wanting to stay alive? Can we have a tab for that? Post pic's of loved ones, animals, beautiful walk; just a happy place to post? Maybe someone other than me would find this hopeful?

Just curious if anyone has issues with bad air quality levels and if it has ever extended the duration of a normal cycle? I recently got started or the D3 reg and thank goodness because like in many of my previous posts I mentioned that nothing has been full blast mode. However I am continuing to get daily pain, super temple pressure and rando spikes. The spikes have spread out a bit more since I extended the high dose of D3 as I tried to taper down to soon the first time. I live here in Unicorn Land (CA) and am not far from the Caldor fire which is about 40% or so contained and has been burning since 8/14/21 (216,000 acres). The smoke has been so bad that at times it smells like I have a bonfire in the living room.. I have four air purifiers running but my ding bat self forgot to click the button that purifies the air last night so I basically had a fan running last night. Several days the air quality has been at a reading of 499 and today was a 259. Just wondering if anyone has experienced a CH cycle being extended by something like this??

The writing is great and very relatable. Cannot remember where I read or heard that a good writer can make one fell an emotion. Your writings made me feel one so. I say nice work. I like to write as well. Just poetry. Not great at it but it lets me release some of the inner torment here and there. Can't think of any famous artist that released songs inspired by CH but I would tend to think that there are most likely song writers out there that have written for famous singers with songs inspired by CH or some other enormous pain? Anyhow I really liked the songs.

I have only been dealing with CH for a bit over 2-years now and am still learning all the terminology so sorry for the miss post!! Regulator Thing- a- majig!!

No I stand corrected it was not a demand valve I apologize.. It was just a regulator... Sorry!!

Wow. So glad that he pulled through and that you have one another!

Oh my! Sorry he had to go through this!!

I didn't take it that way. But I can be one at times:) I appreciate your share and perspective on things!

So I'm not the only one then.. Yes I hate the mind game and agree that at times it is almost worse as I feel like I have to stop what I am doing because I am unsure if I going to hell for real or just spiking? Still trying to figure this fkr. out . I have started the D3 and do see improvement in the intensity of the spikes. Thank you for the response

Sorry Jon that was not very kind of me..

ok I suck I suck I suck soo much .. why can we go to space but no one can swap hypyos out yet ? Can I just have a new brain already please and thank you!!! They say defund the popo how bout defund the pharma!!!!!! errrr all kinds of mean!!

I don't like to use Amazon much but I was able to buy one on there for about $30.00 bucks that goes up to 25.

Trying to post the link again... I know just talking to at the moment but sometimes I work things out that way:) http://www.clusterheadaches.com/cgi-bin/yabb2/YaBB.pl?num=1247229527

Now this most likely wouldn't do much for the men out there with CH as I don't think it's possible to trick a male body into thinking its prego but...IDK. I did see a different site where a gal with CCH had started using it and had some pretty good results. I wanted to post the link here but it seems like when I try and post a link or even an emoji I get a message saying I am posing an invalid value? Anyhoo....

Oh I see. And no I don't think I could do the needle up the nose.. That sounds awful!

Just curious if anyone has had any experience with this hormone and if it has helped them or not? I seen some posts on here about how some women become CH free when prego and it made me wonder about this old fad diet hormone people used to take? If I recall correctly it tricks ones body into thinking its prego? Just wondering?

Hi Ganuchi, Are you sure about the up the nose thing? I looked it up and this is what I found: The guidelines recommend Botox is given as a series of between 31 and 39 small injections. These are given under the skin or into the muscles in and around the head of the forehead, above the ears, and into the neck. The person doing your treatment will have been trained to provide Botox for chronic migraine. (Now mind you this was a not an in depth search just a quick google). I too am super scared of needles so I don't know that I could last through the series of pokes but I do tell myself that I've made it through a 6/hr. CH so maybe I could but could I survive all that spider poison ? IDK...

Wow ok then.. I did not know that...And that's a bit of a game changer.. I think that changes things from a maybe to a hard no.....

Uff.. I know this is old but I was just set to try this out on the 28th not the actual just a consult.. Just because.. Well because I'm a chick in her 40's and I thought well maybe??? Plus if a few diapering wrinkles resulted too.. uh ok cool.. Don't care enough about the wrinkles as I hate needles so if its a no go.. its a no go but you did mention different folks different folks? So maybe?

That's ok too! Tell me I have to go to the dentist and watch the crocodile tears flow:)

About the coffee needing to be black to be coffee!

Agreed!

Dident

That's strange... I responded to this but I don't see it here now.. Any how Thank you Spiny for the response. I know