birdman Posted December 13, 2012 Author Share Posted December 13, 2012 Still of, hoping for a fun holiday. Fingers crossed. It's a miracle how things can change in a few days. Happy holidays to everyone. Quote Link to comment Share on other sites More sharing options...
birdman Posted December 16, 2012 Author Share Posted December 16, 2012 Continuing to have pain free days. During the night I get what almost feels like a sinus headache instead of cluster but it is same side only. Clears after walking for about five minutes. I can live with this easily. Convinced there is still some beast activity but the busts and D3 have it beaten down. Hope all are well Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted December 16, 2012 Share Posted December 16, 2012 Santa visited you early this year! Glad he knocked the beast down in the 3rd round. ;D Quote Link to comment Share on other sites More sharing options...
birdman Posted December 19, 2012 Author Share Posted December 19, 2012 Still pain free, some nightime tweeks but nothing serious. God bless this site and our sister site. Without all of you.......I don't even want to guess where I would be. Happy Holidays!!!!! Quote Link to comment Share on other sites More sharing options...
Pos1964 Posted December 19, 2012 Share Posted December 19, 2012 Wow, that's really good to read ;D, if I'm correct you're pain free for 10 days now? Hope this is the beginning of another 2 year remission [smiley=2vrolijk_08.gif] [smiley=tekst-toppie.gif] Quote Link to comment Share on other sites More sharing options...
birdman Posted December 19, 2012 Author Share Posted December 19, 2012 From Elly's mouth to God's ears. I hope between maintenance dosing(which I vow to actually do this time around) and Vitamin D3 I hope to keep it at bay for a long time. Quote Link to comment Share on other sites More sharing options...
jackieblue Posted December 19, 2012 Share Posted December 19, 2012 This is really great news! Since you are feeling some minor activity, you may want to bust one more time. I busted Thanksgiving and had 2 glorious pain free weeks. I was convinced I was done with only minor activity. Then out of nowhere, it returned with a vengeance. I don't want that to happen to you, even though you belong to the evil empire ;D Seriously, when my cycle ends, it is gone like it was never there. No shadows, nothing. Just an idea. If you feel confident, then go with your instincts. I am cheering for you! Quote Link to comment Share on other sites More sharing options...
birdman Posted December 26, 2012 Author Share Posted December 26, 2012 Thanks Jackie!!! Feeling great, nothing at nighttime anymore. Still think the cycle is happening in the background as I still get the one pupil dilated way more then the other. My daughter notices it all the time. We shall see what the new year brings...maybe a dose to put the bitch to bed. Have a happy new year everyone!!!! Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted December 26, 2012 Share Posted December 26, 2012 Really liking hearing about this continued PF nighttime stuff Birdman. Quote Link to comment Share on other sites More sharing options...
Pos1964 Posted December 27, 2012 Share Posted December 27, 2012 We're so hoping the new year will bring you a lot of PF time. Keep doing what's working for you, you've noticed it has result! Wishing you a very Happy, PAINFREE, New Year! Quote Link to comment Share on other sites More sharing options...
jackieblue Posted December 27, 2012 Share Posted December 27, 2012 I also think I am nearing the end since I am sleeping through the night with a little activity upon waking. Busted with M 11 days ago and have not had sleep hits. Sipped on some Coffee Patron on Christmas Eve with no headaches. Had a mild headache yesterday. Took 85 seeds last night. Slept well and feel pretty good this morning. Neck and shoulders are really sore. Perhaps a massage today? I have my fingers crossed. Happy 2013 to All! May this year bring miracles to our cause. Quote Link to comment Share on other sites More sharing options...
davidj Posted December 29, 2012 Share Posted December 29, 2012 Birdman and Jackieblue, Great news from both of you!!! :) Quote Link to comment Share on other sites More sharing options...
jackieblue Posted January 1, 2013 Share Posted January 1, 2013 Thank you for all of your support. This cycle is officially over. Short one in retrospect...8 week of hits. I promise to stick with a maintenance schedule this time. I got comfortable with my 3 year remission. I also promise to check in here more often to help those who have been here for me. My first charitable donation for 2013 is being made here... may a cure be in our sights! Happy New Year, Friends! Quote Link to comment Share on other sites More sharing options...
CHfather Posted January 1, 2013 Share Posted January 1, 2013 That sounds great on all counts, jb! Quote Link to comment Share on other sites More sharing options...
birdman Posted January 2, 2013 Author Share Posted January 2, 2013 Great news Jackie!!! Status quo here and I tested it on New Years Eve with a few drinks. No hits!!! Woop woop!! Let's hope we see some positive pain free days in 2013. Happy New Year!!!! Quote Link to comment Share on other sites More sharing options...
Pos1964 Posted January 3, 2013 Share Posted January 3, 2013 Wow, that is really GREAT news for both of you Birdman and Jackie! The new year has a good start for you and we're not doing bad either Hoping so much it stays this way!!! [smiley=tekst-toppie.gif] Quote Link to comment Share on other sites More sharing options...
HeadacheRelief Posted January 5, 2013 Share Posted January 5, 2013 Birdman, That is really great news. I am very happy to hear you are maintaining a string of PF days. I hope this continues well into the new year and beyond!! Quote Link to comment Share on other sites More sharing options...
birdman Posted January 16, 2013 Author Share Posted January 16, 2013 Still pain free and looking to stay in touch. On the vitamin D3 regimen and have M ready for a maintenance dose. Life is good right now, hope all fellow cher's are getting some relief. Quote Link to comment Share on other sites More sharing options...
Pos1964 Posted January 21, 2013 Share Posted January 21, 2013 Yeahhhhhhh [smiley=tekst-toppie.gif], That is really great to read, could you believe that two months ago when you we're in such a bad period, that you would be this far right now? We are really so glad for you! We're hoping and praying that this will continue and you will be able to keep the "good life" for a very, very long time! Elly Quote Link to comment Share on other sites More sharing options...
jackieblue Posted January 22, 2013 Share Posted January 22, 2013 Still PF here. Birdman and I are on the same circadian planet. Hope all others are finding relief. Hugs!! Quote Link to comment Share on other sites More sharing options...
birdman Posted January 22, 2013 Author Share Posted January 22, 2013 Thanks Elly and glad to hear good times for Jackie. Hope a lot of pain free days ahead. Quote Link to comment Share on other sites More sharing options...
birdman Posted January 28, 2013 Author Share Posted January 28, 2013 Thankfully, still pain free. Busting and D3 appear to have been awesome. Lets hope we are close to getting BOL ready. Hope all are well!!! Quote Link to comment Share on other sites More sharing options...
Bejeeber Posted January 28, 2013 Share Posted January 28, 2013 The birdman rocketh. 8-) Quote Link to comment Share on other sites More sharing options...
Pos1964 Posted January 28, 2013 Share Posted January 28, 2013 Keep going like this! Quote Link to comment Share on other sites More sharing options...
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